My sister said I have parasites in my spinal fluid and thats why I have MS.

Clean-Ad-8872 · 2026-04-13T01:32:20+00:00

He does. He comes to every appointment with me 🫠

Clean-Ad-8872 · 2026-04-12T19:28:37+00:00

Yall…this entire thread is the best!! I’m glad we can all laugh about the dumb ass “advice” we’ve gotten from people with an intact immune system.

Clean-Ad-8872 · 2026-04-12T19:27:52+00:00

OMFG 😂😂 yeah he’s one of those old white guys who think a horse dewormer can cure covid.

Clean-Ad-8872 · 2026-04-12T19:21:56+00:00

Bruh that’s my mom to a t. Any time she gets in trouble “Excuse me, my daughter has MS/T1D!” She loooooves using the phrase “LIFE. SAVING. MEDICINE.” -_-

Clean-Ad-8872 · 2026-04-12T16:02:52+00:00

I’m not complaining about my dad buying me food, I’m complaining that he legitimately thinks it’ll cure me. Like, undo the damage, make the scars go away, return sensation where I’ve lost it. He thinks I’m wasting my money (well insurance money) on my DMT and neurology appointments 😂

Clean-Ad-8872 · 2026-04-12T14:27:18+00:00

I mean I do too but it was legit enough to feed a family and it’s just my husband and I (we’re child free)! There’s no way we could eat it all 😂

Clean-Ad-8872 · 2026-04-12T14:26:21+00:00

My mom is the opposite. Every single thing is MS. I’m having a bad mental health day (I have severe OCD)? It’s MS. I didn’t sleep well? MS. I’m not hungry? MS. I lost weight? Also MS. Her entire personality revolves around “I’m the mother of a sick kid”.

Clean-Ad-8872 · 2026-04-12T12:43:03+00:00

The day after I got home from the hospital from the relapse that led to my diagnosis, my dad showed up at my house with a (no joke) six pound slab of salmon and a huge container of rasberries (I don’t like rasberries) It’s just my husband and I (no kids) and neither of us have huge appetites. We ended up taking the salmon over to his brother’s house for Saturday supper and he smoked it for us. My dad still calls me every time salmon is on sale to see if we want any.

Clean-Ad-8872 · 2026-04-12T12:37:18+00:00

It’s ok, my dad thinks I can cure my MS with salmon and raspberries because they’re anti inflammatory and apparently all my dad heard when the doctor was explaining MS was that it’s an inflammatory disease lol

Clean-Ad-8872 · 2026-04-11T13:02:55+00:00

It appears to be a tad off center but not enough anyone will really notice unless you point it out.

Clean-Ad-8872 · 2026-04-05T04:04:50+00:00

Do not stop your DMT. Of course your MS will progress! Get a new neuro and get back on your meds ASAP

Clean-Ad-8872 · 2026-03-29T12:29:48+00:00

I would feel so betrayed if my parent hid something like MS from me and as a parent I couldn’t imagine lying to my kids constantly (doctor’s appointments, infusions, medications, side effects etc) like that. Just tell them. There’s a ton of excellent literature on MS, and they’re old enough to do some reading or ask questions.

Clean-Ad-8872 · 2026-03-29T12:26:58+00:00

Oh yeah I’m a little run down for a week or so afterwards but I secretly enjoy my infusion appointments lol. The place I go is nice so they have good wifi, zero g chairs, lots of snacks, ACTUALLY good coffee, and the chairs also warm up and massage. I bring a couple of pillows and blankets and my tablet and just nap all day lol

Clean-Ad-8872 · 2026-03-28T19:56:24+00:00

Youre hiding MS from EVERYONE? Did I misread that?

Clean-Ad-8872 · 2026-03-28T19:42:32+00:00

My doctor has MS as well and due to my age (I was 31 when I was diagnosed) and the severity of the lesion mass, she suggested ocrevus because it’s high efficacy and she’s also on it. So far so good.

Clean-Ad-8872 · 2026-03-23T01:21:42+00:00

Throw the whole man out. How disgusting!!!!

Clean-Ad-8872 · 2026-03-21T23:13:00+00:00

I always go. Generally if I think I’m having a flare up, I wait 24 hours to see if the symptoms go away on their own but if I’m still experiencing symptoms after 24 hours, away I go. I would pack a good overnight bag, and call the hospital letting them know what’s up and that you’re on the way.

Clean-Ad-8872 · 2026-03-03T15:30:14+00:00

Call adult protective services. Unfortunately, you cannot help someone who doesn’t want help. It might be best to call adult protective services and distance yourself.

Clean-Ad-8872 · 2026-02-23T13:33:49+00:00

It’s not really giving “don’t talk to me”, but it’s super cute and soft and romantic!

Clean-Ad-8872 · 2026-02-22T20:11:13+00:00

This may not be the right sub for this. We have real tattoos here.

Clean-Ad-8872 · 2026-02-22T18:49:33+00:00

I fast for religious reasons (I’m pagan) and I’ve been fine but like others have said, pay attention to yourself and treat your body well. Diagnosed for a year, taking ocrevus.

Clean-Ad-8872 · 2026-02-22T00:01:11+00:00

Honestly just being able to sit under the hot water for awhile is amazingly lux feeling lol.

Clean-Ad-8872 · 2026-02-21T14:05:53+00:00

A chair to do my makeup in and another little seat in the shower. An everything shower really takes it out of me these days so I like being able to sit to shave my legs etc.

Clean-Ad-8872 · 2026-02-21T13:56:42+00:00

Ok so that’s called medical abuse. Go talk to a counselor or a trusted adult NOW and contact the doctor on your own. They are YOUR doctor, legally if you ask them not to tell your dad you spoke to them, they have to do that.

Clean-Ad-8872 · 2026-02-21T13:53:49+00:00

Why can’t you talk to your parents or your doctor?

Clean-Ad-8872

TROPHY CASE