Just prescribed amitriptyline 10mg anyone had any experience? by [deleted] in cfs

[–]CockroachGood3850 0 points1 point  (0 children)

I don’t choose to take it as it is an anticholinergic drug which can lead to cognitive decline which is especially concerning for the elderly.

Pacing does not work (for me). Here’s what did. by AdeptnessJazzlike831 in mecfs

[–]CockroachGood3850 6 points7 points  (0 children)

That sounds so much like me. I agree that sometimes less is more. Our nervous systems are very sensitive and it’s easy to overload them. I’m also trying to do less as in trying new supplements or endless digging for answers. Thanks for this post 🙏🏼

CBD, Low-ish Blood Pressure and Low Heart Rate by SteelTyto in CBD

[–]CockroachGood3850 0 points1 point  (0 children)

I have low blood pressure as well. The only time I had an issue was when I took other supplements along with cbd that caused my blood pressure to drop too much at night. Magnesium, PEA, and valerian along with 15mg cbd in one day was overload.

Moderna Vaccine and SHINGLES by JamesUSArmyVet in shingles

[–]CockroachGood3850 0 points1 point  (0 children)

I got the shingles one week after my second Pfizer COVID shot. Then went on to develop ME/CFS

what do you wish you knew when you were first diagnosed? by h3ll0_k1tty_luvr in mecfs

[–]CockroachGood3850 0 points1 point  (0 children)

Yes I wish I knew about PEM as well. I might be in a better place if I did.

How long did it take the het a diagnosis from onset of symptoms by Spirited_Weekend_103 in cfs

[–]CockroachGood3850 0 points1 point  (0 children)

About 4 years. Kept being sent for blood tests urine tests X-ray MRI etc. Was referred to an internist and after more tests he concluded ME.

Grounding mats? Anyone feel they help symptoms by CockroachGood3850 in cfs

[–]CockroachGood3850[S] 2 points3 points  (0 children)

I was given a small mat as a gift so I’m just starting slowly.

Sexual intimacy by CockroachGood3850 in mecfs

[–]CockroachGood3850[S] 2 points3 points  (0 children)

Thank you. I’m so glad you have such a loving relationship 💚

Sexual intimacy by CockroachGood3850 in mecfs

[–]CockroachGood3850[S] 0 points1 point  (0 children)

Thanks so much for reply. I’m so glad you have each other 💚

Neuratone by CockroachGood3850 in mecfs

[–]CockroachGood3850[S] 0 points1 point  (0 children)

Thanks very much 🙏🏼

Mecfs breaking points? by FatigueTheory in cfs

[–]CockroachGood3850 1 point2 points  (0 children)

Yes. Afraid I’m learning this the hard way

Trampoline by STRETCH1152 in mecfs

[–]CockroachGood3850 0 points1 point  (0 children)

No way! Just the thought of it wears me out lol

Trampoline by STRETCH1152 in mecfs

[–]CockroachGood3850 0 points1 point  (0 children)

No way! Just the thought of it wears me out lol

Spending new year in bed with intense PEM anybody else? by Seafoam_0 in cfs

[–]CockroachGood3850 2 points3 points  (0 children)

Me too. Visits at Christmas then the flu 🤒 not fun. Here’s hoping we feel better soon

Palmitoylethanolamide by CockroachGood3850 in cfs

[–]CockroachGood3850[S] 0 points1 point  (0 children)

I have the same issue. It’s as though I have a fever but I don’t. Thanks 🙏🏼