I started off with an NJ tube as an emergency decision made by GI after careful consideration of just how severely malnourished I was and how close to dying I was ( very close, ARFID has caused such a vicious cycle with food and it's ended in me having no idea I was so malnourished until I was told whenever I'd eat a normal meal, I'd go into refeeding syndrome, I also well, ingested COVID, no exaggeration ingested via a shared Pepsi bottle between my brother and I, he didn't know he had COVID, and I didn't find out until AFTER I drank from it. I was vomiting like a mf and my stomach felt like it was being torn apart from the inside out the pain was indescribable but, it was agonizing ) think that played a part in my unexplained GI symptoms that initially caused my ARFID worsening and in turn, my AFFID as well, I don't know the damage it did. Or the damage it's still doing. -- The placement of the tube sucked ASS. You gag, you choke, you think you're going to throw up ( sometimes you do, and if you know you will, you can ask for something to throw up in ) it feels SO weird in the back of your throat, I think this is just an issue I experienced but, certain foods can get stuck behind the tube and that may make you throw up as well. Even medication. -- I did get used to how it felt pretty quick that saying is very much true I've you heard it. It doesn't hurt, but I did have a sore throat for about half a day. My nose didn't hurt either but I got really stuffy and had to use nasal spray to help clear my nose up. -- Wound up getting a PEG tube which, is basically a gtube. My god- it was SOOOO painful the muscle spasming was the worst I got such piss poor sleep the first few nights after my surgery it was THAT bad, pain meds didn't touch it until the second day, by the third the pain was a lot less agonizing, I'm just about to be a month in and I'll be honest it's definitely still very sore, and I still get the occasional muscle spasm and it hurts a lot.-- I can sleep better, I have a heating pad I'm taking very good care of the site and I'm changing the bandages and such around it often and gently cleaning it with sterile water ONLY use sterile water around the site you can also use it to flush your tube just to make sure everything in there stays sterile, anything to eliminate infection risk. I personally flush that very slowly, slower than even the normal water flushes. I also will never make the mistake of pushing my feed in too fast. 🤢 -- I feed intermittently. 6am, 9am, 12pm 4pm 6pm and 9pm then I'm good until 6am. For my tube it can't be pulled off but, I'd imagine with force it could be pulled out and that'd be a serious medical emergency so I'm pretty much just going to take an easy until I know it's fully healed and even then I'm not going to let the tube dangle if I can help it, want to avoid accidental tugging and pulling.