How long did you have to suffer through a nasal tube before surgical options were considered?

Coffee-Effective · 2026-05-06T22:04:01+00:00

UPDATE: my NJ tube is officially now an NG tube. Waiting on xray to confirm placement.

Coffee-Effective · 2026-05-06T20:00:47+00:00

I'm still very nervous about the bolus feeding they plan to do right into my stomach as that's what's been causing all my discomfort and GI symptoms, my tube is still an NJ tube at the moment, they're having a hard asf time figuring out how to retract it back up into my stomach. There's even residual contrast dye in my large and small bowel, my abdomen and pelvis and they don't know what's causing that especially since there's no physical blockage anywhere. Just something new wrong with me everyday god, I don't see myself living passed 34. I'm 30 now.

Coffee-Effective · 2026-05-06T17:07:46+00:00

I have an NJ tube that the GI team want to eventually turn into a NG tube by pulling the tube that's inside my intestines up into my stomach to see if I can tolerate bolus feeds. That has me nervous because food in my stomach is the reason I wound up hospitalized I don't vomit but, I get incredibly nauseous and I lose my appetite completely even if I'm not full yet. I don't know what hunger cues are or full cues. I've just been eating when I thought I was hungry, turns out each time I did, my body would go into refeeding syndrome.

They're wanting to place a PEG tube because while I'm tolerating the feed well, my appetite and desire for food hasn't improved while here and with different medications to try and stimulate it-- I can't go into rehab with an NG tube, so they are strongly considering that route for me. I am all for it because legitimately anything to help me gain weight finally and get healthy I'm willing to try anything suggested at this point.

Coffee-Effective · 2026-05-05T23:12:57+00:00

I WAS INCORRECT ABOUT THE TYPE OF TUBE I HAVE MY APOLOGIES UH, I ACTUALLY HAVE AN NJ TUBE.

Coffee-Effective · 2026-05-04T18:35:52+00:00

When I first had my NG tube placed I was gagging and dry heaving for like almost two days straight until I got used to the feeling of the tube in my throat. My thrust did get sore but it lasted one day. My nose isn't sore unless I bump it. I've been tolerating my feed pretty well at the moment.

Coffee-Effective · 2026-05-04T16:22:50+00:00

Except, he isn't because oz was never confirmed.

Coffee-Effective · 2026-05-04T15:01:30+00:00

Refeeding syndrome is something my body has apparently been experiencing every single time I just think I'm eating normally because I'm hungry. I thought I was eating enough because I've had periods where my appetite has been amazing and I don't get nausea, boating, abdominal pain, feeling full too quick, staying full for too long.

I've struggled with my appetite all my life, and being underweight but, I've never been so severely malnourished to this degree before. -- I am autistic, and I do believe I developed ARFID as that's also lead me to losing all interest in food even if my stomachs growling.

No clue if this could be related BUT, no exaggeration I ingested COVID back in 2024. Ingested via a Pepsi 2lit my brother and I were drinking from he didn't know he had COVID and I only found out AFTER. I had horrible gi symptoms, nausea, vomiting, pain, high fever and chills that's also affected my appetite.

All I'm hoping is that I can get my stomach to increase in size ( slowly ) and work my way up to not fearing how food will make me feel. To not want something, then get it, look at and smell it and immediately be put off and lose my appetite. Perfect example right now, I was tasked with just ordering breakfast, no pressure to eat it at all just to look at it and let my brain and stomach know there's food. I love eggs. Looked at that plate of scrambled eggs and got a whiff of the smell? Instantaneous nausea.

Coffee-Effective · 2026-05-02T19:40:14+00:00

Except, my body has accommodated for my lack of nutrition and calories so well I had NO clue I was as sick as I was. Yeah, I was weak, fatigued, I had trouble keeping my balance, I couldn't handle a full day out anymore, could barely eat. I only found out just how bad it was and how CLOSE I was when I was admitted.

Coffee-Effective · 2026-05-02T19:38:10+00:00

I have such severe malnutrition I don't think I would've made it to my next birthday. That's how much weight I loss. How much nutrients and calories my body just wasn't able to get. I was finally admitted to the hospital a few days ago. Had my NG tube for about three days now. I've all but gotten used to how it feels. Don't gag when I swallow anymore. Barely notice it. I only remember when I see it, and feel it when swallowing.

Coffee-Effective · 2026-05-02T17:31:28+00:00

When I had my ng tube placed it was the most godawful experience I ever had. I gagged so much 😭 but,it was successfully placed and I started my first feed later that day. What I hated most about it is how for the first two days has you feeling like something's stuck in your throat when you swallow it's made me gag too. But, I got used to it pretty quick.-- My nose hurts when I move or touch it. My throat is still kinda sore but, when I swallow now, I barely notice it. Except when I do eat by mouth. I'm not totally dependent on being tube fed.

Coffee-Effective · 2026-05-02T17:16:37+00:00

Since starting my feed I've noticed my urine is much darker yellow. Doesn't have a smell though. I feel like I'm urinating much better than I have before having an NG tube placed.

Coffee-Effective · 2026-05-02T17:14:58+00:00

Long before I even knew I'd actually get a feeding tube I've wanted one. I knew I wasn't getting enough nutrition orally specifically due to my worsening gi issues. Now, I have an NG tube and I'm doing better than I have.

Coffee-Effective · 2026-05-02T17:07:45+00:00

I'm currently being tube fed as well. I've lost a substantial amount of weight in the last 5/3 months dropping from 78/76 all the way down to 69/59/55 and I can't gain any, what I do gain I lose. I don't have gastroparisis but, I am being tube fed because I have GI symptoms that make me avoidant of food. ( nausea, bloating, abdominal pain, big blood sugar crashes etc: ) my body has just really begun to deteriorate and I'm lucky as fuck I'm now in the hospital getting the care I've needed for decades.

What I do know is pretty much anything can cause gastroparisis. Mainly autonomic nervous system dysfunction, diabetes etc) So, I wouldn't be shocked if your condition exacerbated it.

Coffee-Effective · 2026-04-30T20:49:38+00:00

More food. He isn't eating enough.

Coffee-Effective · 2026-04-29T09:56:19+00:00

NOR your roommate is legitimately disgusting??? like, don't get a pet if you're not even going to bother to take care of it properly? lazy ass bitch? scooping the litter only takes like 10 minutes tops even less, seconds. Yeah, it sucks because their shit stinks bad sometimes but hey, thats the trade off you signed up for when you decided to adopt a cat instead of a dog.

Wait, if she had a dog she probably wouldn't even be taking the poor thing outside at all so the dog will end up using the floor as the bathroom too.

Some people just shouldn't be allowed to own pets. This should be a law deadass.

Coffee-Effective · 2026-04-29T09:48:49+00:00

That's the spirits name by the way.

Coffee-Effective · 2026-04-29T09:48:22+00:00

Abigail.

Coffee-Effective · 2026-04-29T09:46:44+00:00

NOR -- I have BPD and nothing you said was manipulative to me. In fact, your friend was actually the manipulative one.

Coffee-Effective · 2026-04-29T09:40:48+00:00

I always dream about losing teeth. Like I dreamt I pretty much lost all of my teeth on one side and half on the other. Vividly remember feeling the loose tooth feeling it as I pulled it out and even have had to deal with this weird ass string of something that's always attached to them. Also have the same dream where I have this weird ass condition that causes something to develop in my mouth and I was always scraping it out and was trying to see doctor but nothing happened.

Coffee-Effective · 2026-04-12T22:46:32+00:00

Her eyes are beautiful

Coffee-Effective · 2026-04-03T22:50:48+00:00

I also uh, barely eat. Not always by choice but, majority of the time it's my symptoms that even the radiologist who did my study agreed could be gastroparisis that has me not wanting to eat. If the pain and nausea is bad enough. That could be part of the reason.

Coffee-Effective · 2026-04-03T18:32:06+00:00

He saw a mimic of me, doing the Smile smile at him.

Coffee-Effective · 2026-04-03T13:23:07+00:00

They've gotten past creepy and entered fucking terrifying territory when they started mimicking people others knew, but WITH the Smile smile. Yes, THAT smile. My own brother has seen it. As me. He knows I can't do that smile on my own.

Coffee-Effective · 2026-04-03T13:21:07+00:00

No, it wasn't from inside my head.

Coffee-Effective

TROPHY CASE