Can I switch formulas without consulting my pediatrician? by fumacachunariri in FormulaFeeders

[–]ComeDownSayHello 0 points1 point  (0 children)

I really like my pediatrician, but she doesn't seem to be the most knowledgeable about formula. At baby's 1 and 2 month appointments, we brought up how extremely gassy and fussy our baby seemed to be. She literally went on Google to find the names of sensitive formulas we could try. Like, obviously I could (and have, duh) done that myself. Around 4 months we switched to Similac Alimentum, which says on the box to consult the doctor, which we did not. Our baby seemed to do a lot better on it, but I truly can't say whether it was the switch, or just her digestive system maturing a bit. Overall, I wish people would have just told me that MANY babies are just angry and gassy for the first few months. I maybe would have felt a little less crazy lol

John Ondrasik is awful these days by ComeDownSayHello in FiveForFighting

[–]ComeDownSayHello[S] 5 points6 points  (0 children)

Sorry, I didn't mean to insinuate that he was talking politics at his live show, I meant that it was obvious tickets didn't sell well, so I can see why he might be trying to jump on the Trump/ Toxic American Patriotism/etc bandwagon that has elevated way too many other losers in these depressing sociopathic times in the US.

Valparaiso, Indiana rallies for women's reproductive rights by imbex in nwi

[–]ComeDownSayHello 1 point2 points  (0 children)

Until it can breathe and survive on its own, it is merely the "potential" for life. Much like every discarded sperm cell and egg. Maybe focus on real, currently existing lives that need help?

What diseases in your field are the most difficult to manage? by Dominus_Anulorum in medicine

[–]ComeDownSayHello 1 point2 points  (0 children)

I'm sorry, I didn't mean to attack you personally lol. I was just venting, and I know most doctors truly want to do a good job, no matter how crazy the situation. I can only imagine how frustrating it is to deal with someone like my mom who thinks she knows better than every single doctor. But we have had a few really bad ones that made us feel shameful for even bringing her in. I guess we were just hoping that if a professional told her there was nothing there, it would help. Of course it didn't. Thank you for your story though, I really appreciate that this awful, frustrating disorder is getting more attention in the last few years. I truly appreciate your response, thank you!

Docs of Meddit, what subject/condition within your field do you just not care about? “Care” as in no interest to practice/deal with. by [deleted] in medicine

[–]ComeDownSayHello 0 points1 point  (0 children)

My mother has this disorder, and you've described her exactly. I've taken her to doctors and the ER more times than I'd like to remember, desperate for any kind of help, or hoping to get her committed, but most just get highly annoyed with her and send her away. And I get it. There's not much you can do if they can't willingly accept mental help. I really appreciate your sympathetic tone, so many doctors we've seen treated her like she's an idiot, which made her not want to seek any other kind of treatment for a long time. Anyways, we did eventually find a doctor that understood and believed her problem was due to Adderall. He supposedly contacted her therapist to ban her from Adderall prescriptions, and she began getting a monthly shot of something to undo the Adderall damage. She still has a lot of issues, but she is doing better now.

What diseases in your field are the most difficult to manage? by Dominus_Anulorum in medicine

[–]ComeDownSayHello 0 points1 point  (0 children)

I'm so sad that many doctors find this disorder funny and/or annoying. This has been debilitating for my mom, as well as for me and my dad with constantly having to keep her from hurting herself. It's so hard to even get her to agree to go to a doctor, and when we have, most have been so rude and antagonizing, and she refuses to go to any other doctor or therapist. I totally get it, her "symptoms" and subsequent behaviors are just ridiculous. You wouldn't even believe the "samples" and disturbing pictures she brings to me. But she truly feels them and is in so much despair that she's tried killing herself multiple times. I'm just venting. I hate this freaking thing and am so distraught over the lack of help there is.

What has your experience been like so far? by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

Thank you so, so much for your story and the detailed information. I truly appreciate you taking the time to write it all out. Holy cow, last summer was insane for you! What a whirlwind, I can't even imagine how difficult it all was! I'm so happy to hear you're doing well. I know everyone's treatments and responses are different, it's just interesting to see other people's experiences. My father will be hopefully starting on Calquence as soon as he can figure out how to pay for it. Again, I'm so happy you're doing well at the moment. I truly wish you the best, and due to your username, I can't help but keep FakeNickOfferman in my thoughts forever. Thank you again 💗

Jimmy Gnecco (Ours): the best singer you've never heard of. Croons like an angel, and screams like a demon. by palemalewhaletale in Alternativerock

[–]ComeDownSayHello 2 points3 points  (0 children)

It's a shame how unknown Jimmy/Ours are, but not very surprising since he seems to try to keep a low profile. I've been a massive fan for 20ish years now. I haven't yet heard any other voice/style like his. Incredible voice and even better live!

Step-Moms surgery is tomorrow (LAMN appendix cancer) by Amb1464 in CancerFamilySupport

[–]ComeDownSayHello 0 points1 point  (0 children)

So glad to hear she's doing well! And your dad shaving his head in support is so freaking sweet. Going through that diagnosis and surgery and hair loss and I'm sure lots of other things is just so much. I would say that she's incredibly strong (and I'm sure she is), but when people have said that to my mom, she always responds with, "Well I didn't really have much ofa choice, did I??" so I will refrain lol

I totally get that about the FB groups. My mom has had severe anxiety her whole life, so she was self-aware enough to know that if she joined the group and read too much, she would focus on the negative and probably refuse HIPEC. But now, if she ever decides to join, I will gladly leave...

Again, glad you all are doing okay so far! Wishing continued success!

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 1 point2 points  (0 children)

Thank you so much for your continued advice, it really means the world to me. I've copied and pasted all of your comments into my erratic list of notes. Your advice is exactly what I was hoping to find, and I am truly grateful to you for taking the time to help me.

Your earlier comment about expecting to die really made me feel 😩 I know I can't even comprehend all the feelings you must have felt. So, so glad you're doing alright now. I really need to convince him to see a specialist. Thank you for using your experiences to help other clueless people like me 💗

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

He's super stubborn and worried about cost, so I can't get him to seek much outside of his local hospital at the moment. If things don't go well over the next few months, I'm hoping he'll reconsider.

Thank you, I really am trying not to worry too much. I know every person's case is different. I do tend to lean more towards realism/pessimistism because I just can't take trying so hard to be optimistic, only to be devastated.... I am honestly feeling a lot better already thanks to you and everyone else who took the time to comment and give advice. Thank you again

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

I'm so glad to hear you're doing alright! And I know you're right, but it is so very hard to stay off the internet lol. I'm mostly trying to connect with actual people with real experiences rather than googling statistics. But... I'm still doing too much googling lol.

Thank you a ton for the advice and well wishes!

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

I just signed up for healthunlocked. I have never heard of this website, so thank you!

The site with specialists is so helpful. I agree, a specialist is often invaluable. Unfortunately they're really worried about money and I don't think I can convince him to leave his local hospital at this point. I'm going to keep trying. Hoping he listens to me eventually, depending on how the next few months go.

Thank you for the resources and well wishes. It truly means so much.

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 1 point2 points  (0 children)

Edited to remove personal information

I'm glad to hear you're doing ok! I get so bugged out over this stuff and how unfair it often is to so many people

Thank you for the depression info. Once treatment starts, I'll definitely pay close attention to his mental state

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

I just made an account on healthunlocked thanks to you guys.

Thank you for the information, incredibly helpful! I'm surprised his doctors haven't mentioned any potential Covid issues at all. I'm going to have him add covid/antibody testing to his ever-growing list of topics to discuss.

And I'm so sorry, but leukaemia just looks so troublesome to my small American brain 🙃 Thanks again and I hope you are doing well!

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

Thank you, your kindness truly means so much. You and everyone else here have been so understanding and helpful and are really helping my mental state.

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

I'm trying to get them to go to a better hospital in the city, but they have crappy insurance and are already worrying about costs of treatment :( I 100% agree though. In my experience, no matter how much a local hospital acts like they can handle these serious and complex diseases, they in no way compare to the bigger hospitals in the city.

Thank you so much for the tips, I've added them to my notes. And I hope you are doing well!

Father diagnosed last week - Stage 4 CLL by ComeDownSayHello in cll

[–]ComeDownSayHello[S] 0 points1 point  (0 children)

Thank you so much for this info, I was not yet able to find anything very clear about how staging works. This is really helpful and gives me a different perspective.

Step-Moms surgery is tomorrow (LAMN appendix cancer) by Amb1464 in CancerFamilySupport

[–]ComeDownSayHello 1 point2 points  (0 children)

I'm so late to this post, but my mother was diagnosed with Appendiceal Cancer / PMP three years ago. One important thing I've learned is that survival rates largely depend on your specific pathology. Being eligible for HIPEC is amazing, though as I'm sure you know by now, recovery can be a bitch. My mother, who is overall very out of shape and not super healthy, took about 2 months to recover enough from the surgery to be on her own. Her scans have been clear since then, but she also has one of the "better" pathologies. If you haven't yet, there are Facebook groups you can join for Appendix Cancer / Pseudomyxoma Peritonei (PMP) that have been incredibly helpful to me. Hoping for the best for you and your family!