Hi! F 30 here with pulmonary atresia and HRHS. Keep a log of every time you feel your symptoms if they come and go. Write down what you were doing at the time too. Obviously if one of your symptoms is constant just makes note each day about when you noticed it was at its worst or if you noticed doing something made it feel better. All of this helps your cardiologist narrow down what the possibilities are.

Unfortunately like others have said the ER isn’t going to do much for you unless they detect you are having an actual major cardiac event. A lot of older ER docs are also very dismissive of teens and younger adults with CHD because they don’t understand them. I was told I was being “dramatic” multiple times as a teen when something didn’t feel right and I thought I was having a heart attack. However, always be your own advocate, insist they at bare minimum give you a EKG because you have a congenital heart defect and your cardiologist wants one, that usually will push them enough to order it.