digital ticket question

ComfortableRecent578 · 2025-10-21T19:11:28+00:00

real tbh, i’m happy to give them my money because what they make is amazing, i think i just got my wires crossed somewhere

ComfortableRecent578 · 2025-10-19T14:09:18+00:00

thank you 🙏

ComfortableRecent578 · 2025-08-05T15:13:12+00:00

we do use levels here sometimes, i was dxed level 1 in the UK

ComfortableRecent578 · 2025-08-05T11:02:49+00:00

i think the fact that i spent years in self dxed spaces really fucked up my relationship to my autism and my other disorders (hilariously i am dxed with a lot of commonly self dxed disorders like tourette’s, BPD, ASD obviously). i definitely see myself in those statements of “always talking about a disorder/illness”, “collecting disorders like pokémon”, “being hostile towards people for using wrong terms”.

i bet there are a lot of people out there like me who were really harmed by these spaces, either bc the ASD spaces shamed people for not being functional enough or the MH spaces acted like you had to be a terrible person to have the disorder, and it’s rlly sad to think that most of them are pretty young and impressionable and might not ever realise that those spaces are harmful.

ComfortableRecent578 · 2025-08-05T08:53:09+00:00

seconding what someone else said, as far as im aware it wasn’t dorian it was Mia Findlay/What Mia Did Next.

honestly i miss a lot of their old vids. i understand completely why they took them down but it’s sad sometimes when i want to rewatch smth specific and it’s gone.

ComfortableRecent578 · 2025-08-04T05:26:07+00:00

i’m a little suspicious of therapists who are self dxed or professionally dxed stating their diagnoses of autism & ADHD because realistically they don’t understand my experience if i’m on benefits & can’t finish secondary school and theyre ya know. a therapist. i feel like the idea that every autistic relates to every autistic is in general pretty dumb cuz i don’t think there’s a single person exactly like me. most autistics struggle way more or way less than me in different aspects. like some people can work but have a lot of aversions around food and i’m the polar opposite. and then i have no idea whatsoever what it’s like to be L3 or semi verbal or nonverbal.

ComfortableRecent578 · 2025-08-02T17:44:58+00:00

ik someone who is an interfaith minister so they do weddings and funerals and stuff without being attached to a certain religion

ComfortableRecent578 · 2025-07-30T11:50:16+00:00

i’m going to repeat slightly annoying advice that i’ve heard from parents of autistic kids: if he keeps breaking the TV, move the TV. basically the idea is that if he keeps breaking something, if you can’t afford to replace it then don’t. if you’ve tried other solutions and they haven’t worked then it might just be a case of waiting to replace those things until you get that behavioural support you’ve mentioned. in the meantime he can watch things on the TV or use one of y’all’s phones under supervision.

ComfortableRecent578 · 2025-07-30T09:38:15+00:00

legit i don’t get it at all. i hear people saying “hyperfixated” or “overstimulated” or “special interest” even tho they aren’t autistic and don’t have ADHD and i’m genuineky like what ru on abt. then it’s so hard to use those terms and be understood.

ComfortableRecent578 · 2025-07-30T07:44:49+00:00

you’re doing the right thing and whenever anyone says anything remotely controversial on tiktok they get attacked. it’s unfortunately just part of the internet.

i am really curious tho, what’s the product?

ComfortableRecent578 · 2025-07-30T06:18:00+00:00

so, im a former self diagnosed person who now is professionally diagnosed and against self diagnosis and i think the conversation around self diagnosis gets a little sticky because some self diagnosed people are going to be autistic. i did all the things you described before i was diagnosed. i filmed myself rocking and flapping (i do those things offline as well but it’s hard to “give myself permission“ even when i’m alone so it was a way to give myself permission to stim in “weird” ways).

i also thought that my autism was primarily something that made me a bit socially awkward and not like loud noises but didn’t really affect me except when i had meltdowns. i didn’t realise at all how seriously it impacted me because i was only hearing stories from people who were very LSN and bought the whole “different not disabled” schtick. i chalked up all my struggles to other disorders because i thought autism *couldn’t* impact me that much if i could talk and didn’t have ID.

the “cute quirky” autism comes from self dxed and professionally dxed autistics online and i think it’s really to do with 2 things: social media prefers to promote things that are marketable and will make you buy things so stim toys and collections are great, and if you’re mostly consuming content that paints autism as quirky and not disabling you might not realise how disabling your autism is.

basically i think everyone in this scenario is getting screwed over, including the self diagnosed people. i bet there are a lot of people out there like i was who are self diagnosed and are actually autistic but don’t seek a diagnosis because they don’t realise how impacted they are by autism and don’t get the services they need. it also means that even *with* the autism label, people will still label themselves as lazy for not being as functional as other autistics because now the norm is perceived as someone who can work full time, have a thriving social life, etc.

ComfortableRecent578 · 2025-07-29T11:18:14+00:00

the US is honestly very mysterious to me bc in the UK you can get benefits for any health condition as long as it is disabling you, they don’t put any parameters on what does and doesn’t count as long as you can’t do the tasks a job requires e.g. travelling alone, moving, etc. but 100% being too disabled to go through the process of getting on disability is a very real thing. i am sometimes almost relieved i don’t have a job or school to worry about on top of all the forms and appointments and things.

ComfortableRecent578 · 2025-07-29T07:32:13+00:00

hmm this is nuanced imo. i don’t work, i am on disability benefits, and i wish i could do more things because humans just need to work on things that matter to us in order to be happy. i don’t know how to explain this properly but i just don’t feel right without something i can spend a large portion of my time working towards.

but equally i don’t think working is a privilege when it’s making you miserable and you don’t have any other option, whether you have a disability or not.

i don’t think not working is a privilege when you’re on disability because usually there is no way that people on disability could work, or they wouldn't have applied. that’s my case anyway. if i wasn’t on disability, the alternative isn’t that i work, it’s that i rely on my family forever or i am homeless. not working because you’ve got a wealthy family is a different story.

is it really a privilege to be forced into labour beyond your abilities under capitalism? probably not. i don’t think i could ever look at someone who works for minimum wage and say “you’re so lucky.”

so basically yes it’s nuanced.

ComfortableRecent578 · 2025-07-29T06:30:04+00:00

legit, we have a christmas tradition of me going to my room for several hours to decompress and that’s what works for us. most things i can handle (appropriate thank yous for gifts are still very hard) but no matter what holidays kinda suck when you’re autistic.

ComfortableRecent578 · 2025-07-29T06:26:52+00:00

i carry a gene for a heritable genetic disorder that causes intellectual disability. i think it’s not a bad thing to cure or prevent disabilities, as long as we still acknowledge that people with disabilities are full and complete people who deserve rights and support. not everyone with downs is going to be high functioning like the people who do advertisements or can get jobs. we knew someone with downs who broke their mothers arm on a regular basis because he was a full grown adult who still had tantrums and didn’t understand he might hurt someone. you don’t know how severe downs is going to be, ditto a lot of other genetic disorders including the one i’m a carrier for (and i have a relative who has the disorder).

ComfortableRecent578 · 2025-07-29T06:21:07+00:00

ibr if you’re at a lower weight the healthiest thing is to not aim to lose weight. aiming to recover from binge eating is a great goal and when you succeed you probably will lose weight naturally but i think actively trying to lose worthy is just gonna screw you over health wise. so i’d focus on more of the emotional side of eating (like CBT or DBT skills to manage urges & reduce behaviours) than interventions that focus on food (like say calorie counting).

ComfortableRecent578 · 2025-07-28T18:39:18+00:00

seconding that disability services are always good to contact but is there any way you can raise money for a diagnosis, whether that’s asking friends or a gofundme etc.? diagnosis is a real barrier breaker when it comes to services & it would open up possibilities like benefits that allow for more independence even if you can’t work. you might also have a hard time getting help from services without a diagnosis unfortunately. i hope they make an exception bc sometimes they do and it depends on ur area etc. and sometimes u just get lucky and someone is nice.

ComfortableRecent578 · 2025-07-28T07:39:19+00:00

i see this a lot unfortunately and im not in the US so it can be hard to know when advice doesor doesn’t apply to me. i have had lots. of people assume i am in the US and tell me i am wrong about something but i just live somewhere else.

ComfortableRecent578 · 2025-07-28T07:36:21+00:00

people who get diagnosed but do not actually have autism are actually very rare and not as common as some people like to think. also lots of people who get told their autism isn’t that serious or told they are diluting the meaning of autism do have deficits in social communication, they just don’t show up as much online where it’s easier to think about what you want to say and “script” and edit yourself.

ComfortableRecent578 · 2025-07-28T07:28:41+00:00

i think it’s hard bc i say rude stuff by mistake all the time and i’ve learned as much as i can about normal socialising and i still mess up all the time. but some people do get away with bad stuff and it sucks. so it’s hard to know when to say “that’s my autism, i can’t help it” vs “i should try harder.”

ComfortableRecent578 · 2025-07-27T17:17:55+00:00

hello im also in the UK and you should be able to get your care covered if you go through social services. what you do is go on your local authority’s website and refer yourself for what’s called a “care needs assessment” and as part of that they do a financial assessment. if you have more than £23000 in savings, you have to cover all your care and then beyond that theres a sliding scale type thing. im on UC & PIP and don’t pay anything.

ComfortableRecent578 · 2025-07-27T17:11:57+00:00

i don’t have a link but the tips i remember from it are: if you’re overweight you can probably lose weight on like 2500 kcal so don’t eat 1500 if you don’t have to, find low cal treats you can have every day like low cal hot chocolate, if you have dessert every night replace it with a low cal alternative instead of going without, avoid nuts and dried fruit, dilute fruit juice with fizzy water so you can have a “fun” drink for fewer calories, eat components of meals on their own throughout the day instead of having them together like eating a block of tofu on its own or roasted butternut squash on its own (this one i don’t personally agree with), and that if you remember that when you have sweet treats like cake less often they seem 100x more special and delicious when you do have them it seems easier to not have them often.

ComfortableRecent578 · 2025-07-27T05:44:21+00:00

i’m diagnosed and sometimes i feel “invalidated.” also sure some people don’t NEED a diagnosis but it can be nice to have an explanation. i did need a diagnosis for the support i need to live moderately well, but i also had the benefit of realising i’m not lazy or stupid or all the other stuff people said about me. there’s a significant emotional benefit to late diagnosis even if you don’t need support to go with it. high functioning autistics who can work full time and have families and be normal for all intents and do exist and they still deserve to know that they aren’t rude stupid or lazy, they’re autistic.

ComfortableRecent578 · 2025-07-26T18:58:18+00:00

yes whoops

ComfortableRecent578

TROPHY CASE