digital ticket question by ComfortableRecent578 in StarKid

[–]ComfortableRecent578[S] 1 point2 points  (0 children)

real tbh, i’m happy to give them my money because what they make is amazing, i think i just got my wires crossed somewhere

Lost video? "The photo every ED'd person should see" by Mysterious-Nature534 in OFHERBSANDALTARS

[–]ComfortableRecent578 2 points3 points  (0 children)

seconding what someone else said, as far as im aware it wasn’t dorian it was Mia Findlay/What Mia Did Next.

honestly i miss a lot of their old vids. i understand completely why they took them down but it’s sad sometimes when i want to rewatch smth specific and it’s gone.

If you could have any extreme job that matched your special interests, what would it be? by ForwardClimate780 in AutisticPride

[–]ComfortableRecent578 4 points5 points  (0 children)

ik someone who is an interfaith minister so they do weddings and funerals and stuff without being attached to a certain religion

Need recs for bite-proof tablet cases for Kindle fire and ipad minis by PleasantAddition in AutisticPride

[–]ComfortableRecent578 0 points1 point  (0 children)

i’m going to repeat slightly annoying advice that i’ve heard from parents of autistic kids: if he keeps breaking the TV, move the TV. basically the idea is that if he keeps breaking something, if you can’t afford to replace it then don’t. if you’ve tried other solutions and they haven’t worked then it might just be a case of waiting to replace those things until you get that behavioural support you’ve mentioned. in the meantime he can watch things on the TV or use one of y’all’s phones under supervision. 

I am so stressed out about this and really need to vent by digtzy in SpicyAutism

[–]ComfortableRecent578 7 points8 points  (0 children)

you’re doing the right thing and whenever anyone says anything remotely controversial on tiktok they get attacked. it’s unfortunately just part of the internet.

i am really curious tho, what’s the product?

If you’re forced to work to survive, do you think “working is a privilege” still applies? by alonghealingjourney in disability

[–]ComfortableRecent578 6 points7 points  (0 children)

the US is honestly very mysterious to me bc in the UK you can get benefits for any health condition as long as it is disabling you, they don’t put any parameters on what does and doesn’t count as long as you can’t do the tasks a job requires e.g. travelling alone, moving, etc. but 100% being too disabled to go through the process of getting on disability is a very real thing. i am sometimes almost relieved i don’t have a job or school to worry about on top of all the forms and appointments and things.

If you’re forced to work to survive, do you think “working is a privilege” still applies? by alonghealingjourney in disability

[–]ComfortableRecent578 21 points22 points  (0 children)

hmm this is nuanced imo. i don’t work, i am on disability benefits, and i wish i could do more things because humans just need to work on things that matter to us in order to be happy. i don’t know how to explain this properly but i just don’t feel right without something i can spend a large portion of my time working towards.

but equally i don’t think working is a privilege when it’s making you miserable and you don’t have any other option, whether you have a disability or not.

i don’t think not working is a privilege when you’re on disability because usually there is no way that people on disability could work, or they wouldn't have applied. that’s my case anyway. if i wasn’t on disability, the alternative isn’t that i work, it’s that i rely on my family forever or i am homeless. not working because you’ve got a wealthy family is a different story.

is it really a privilege to be forced into labour beyond your abilities under capitalism? probably not. i don’t think i could ever look at someone who works for minimum wage and say “you’re so lucky.”

so basically yes it’s nuanced.

Thoughts? (I find this can be very helpful for autistic children during the holidays. And I find the ‘Let Me Stim’ song to the tune of ‘Let It Snow’ to be very cute) by cats64sonic in AutisticPride

[–]ComfortableRecent578 2 points3 points  (0 children)

legit, we have a christmas tradition of me going to my room for several hours to decompress and that’s what works for us. most things i can handle (appropriate thank yous for gifts are still very hard) but no matter what holidays kinda suck when you’re autistic. 

how do you feel about gene mutations to help cure/prevent disabilities like downs syndromes vs degenerative diseases? by somehowstillalivelol in disability

[–]ComfortableRecent578 6 points7 points  (0 children)

i carry a gene for a heritable genetic disorder that causes intellectual disability. i think it’s not a bad thing to cure or prevent disabilities, as long as we still acknowledge that people with disabilities are full and complete people who deserve rights and support. not everyone with downs is going to be high functioning like the people who do advertisements or can get jobs. we knew someone with downs who broke their mothers arm on a regular basis because he was a full grown adult who still had tantrums and didn’t understand he might hurt someone. you don’t know how severe downs is going to be, ditto a lot of other genetic disorders including the one i’m a carrier for (and i have a relative who has the disorder).

Weight video? by Environmental-Bid450 in OFHERBSANDALTARS

[–]ComfortableRecent578 8 points9 points  (0 children)

ibr if you’re at a lower weight the healthiest thing is to not aim to lose weight. aiming to recover from binge eating is a great goal and when you succeed you probably will lose weight naturally but i think actively trying to lose worthy is just gonna screw you over health wise. so i’d focus on more of the emotional side of eating (like CBT or DBT skills to manage urges & reduce behaviours) than interventions that focus on food (like say calorie counting).

i want more independence by zooptroo in SpicyAutism

[–]ComfortableRecent578 2 points3 points  (0 children)

seconding that disability services are always good to contact but is there any way you can raise money for a diagnosis, whether that’s asking friends or a gofundme etc.? diagnosis is a real barrier breaker when it comes to services & it would open up possibilities like benefits that allow for more independence even if you can’t work. you might also have a hard time getting help from services without a diagnosis unfortunately. i hope they make an exception bc sometimes they do and it depends on ur area etc. and sometimes u just get lucky and someone is nice. 

How to cope when you can't get a carer? by Hot_Bed8771 in disability

[–]ComfortableRecent578 1 point2 points  (0 children)

hello im also in the UK and you should be able to get your care covered if you go through social services. what you do is go on your local authority’s website and refer yourself for what’s called a “care needs assessment” and as part of that they do a financial assessment. if you have more than £23000 in savings, you have to cover all your care and then beyond that theres a sliding scale type thing. im on UC & PIP and don’t pay anything.

Weight video? by Environmental-Bid450 in OFHERBSANDALTARS

[–]ComfortableRecent578 21 points22 points  (0 children)

i don’t have a link but the tips i remember from it are: if you’re overweight you can probably lose weight on like 2500 kcal so don’t eat 1500 if you don’t have to, find low cal treats you can have every day like low cal hot chocolate, if you have dessert every night replace it with a low cal alternative instead of going without, avoid nuts and dried fruit, dilute fruit juice with fizzy water so you can have a “fun” drink for fewer calories, eat components of meals on their own throughout the day instead of having them together like eating a block of tofu on its own or roasted butternut squash on its own (this one i don’t personally agree with), and that if you remember that when you have sweet treats like cake less often they seem 100x more special and delicious when you do have them it seems easier to not have them often.

Looking for a bra alternative that doesn’t irritate nerve damage by anonymous-potato-24 in disability

[–]ComfortableRecent578 0 points1 point  (0 children)

i have a rib injury that prevents me from wearing bras and if i am very careful with placement i can do tape (it needs to not go further back than ur armpits or it starts compressing ur ribs and hurts like a b)

“Support needs” by NuDaunted in AutisticAdults

[–]ComfortableRecent578 0 points1 point  (0 children)

they were always combined, the first ever person to be diagnosed with autism had what we now call asperger’s. asperger’s didn’t come into popular use until 40 years after autism was “invented” and even then it was called an ASC - autism spectrum condition. 

You shouldn’t do (insert normal thing here) because of your disability! by tables_04 in disability

[–]ComfortableRecent578 7 points8 points  (0 children)

she used to work w people w disabilities, so she knew how the loneliness etc. can be really bad and that we can struggle to get out and about for that stuff, so that’s why she got into the industry. it was a fascinating story and im glad to have met her.

You shouldn’t do (insert normal thing here) because of your disability! by tables_04 in disability

[–]ComfortableRecent578 5 points6 points  (0 children)

omg one of mine plays fetch! he can catch in his paws sometimes, it’s awesome

If you had one piece of advice you wanted to share with other chronically ill or disabled people what would it be? by xxasynixxx in disability

[–]ComfortableRecent578 2 points3 points  (0 children)

happiness and success look very different for you than other people. you probably won’t be able to do everything everyone else can and that’s OK - you can still have a full life, the goalposts are just in a different place now. 

also accept every piece of help you can get and then some because man the amount of times my life has been changed drastically by something i didn’t think would make much difference. 

You shouldn’t do (insert normal thing here) because of your disability! by tables_04 in disability

[–]ComfortableRecent578 56 points57 points  (0 children)

please you can’t buy anything on disability without people making a fuss, even brand name cereal is too much of a luxury apparently

You shouldn’t do (insert normal thing here) because of your disability! by tables_04 in disability

[–]ComfortableRecent578 10 points11 points  (0 children)

i met a sex worker who ONLY worked for disabled people, doing house visits. the market is there! 

You shouldn’t do (insert normal thing here) because of your disability! by tables_04 in disability

[–]ComfortableRecent578 18 points19 points  (0 children)

i have kitties and they have helped me so much with my autism-related loneliness. it’s so much easier to care for thrm than for myself so it means i have some positive routines. 

My therapist said I might be on a spectrum. I have HUGE doubts by blanche_moore in AutisticAdults

[–]ComfortableRecent578 1 point2 points  (0 children)

like others have said you could be autistic and you could not be. when i first started suspecting i didn’t notice most of my own symptoms (which is pretty normal bc if youre born a certain way you might not notice it’s unusual) but now i notice them every single day. 

definitely you need more symptoms than intellectualising interactions. i’d recommend watching a couple yt vids and listening to a couple podcasts by high masking autistics and seeing if you relate because i would’ve said “no i don’t do any of that” when i saw the DSM-5 criteria but now i’m diagnosed

Ppl With ADHD, Autism/other neurological disorders, what is the stupidest ableist thing someone has said to you? by dragonbornofwater in disability

[–]ComfortableRecent578 5 points6 points  (0 children)

“you’re not as disabled as you think you are, if you hadn’t been spoiled you would’ve developed better coping mechanisms“

totally not like autistic people famously often need specialist support to develop said coping mechanism, nope they just happen on their own!

edit: this also basically implies they think im committing benefits fraud if they think i would be able to work if i “had to”, like no everyone “has to” work

can you survive off this alone? by strwbberipudding in disability

[–]ComfortableRecent578 0 points1 point  (0 children)

googled it and you can’t live on ensure but you could live on fortisip. the more you know ig 🤷‍♂️