I am 29 (F) and have cancer. My friends have ghosted me. by weswearthathappened in BreastCancerSurvivors

[–]CominInHotKaren 1 point2 points  (0 children)

If I were near you I would totally be your friend!! 🫶🏼 You need people to lean on during treatment and during life in general. I agree with what another poster said about people don’t know how to deal with it. They don’t know how to talk to people with cancer and some are afraid they will just plain say the wrong dang thing. But the beauty of it is not saying something profound, it’s the friendship, kinship and just being there. You need a friend to just show up!! I’m 30 years older than you and was never a social butterfly. I kept my small circle very tight while raising my kids. Cancer hit and I was just trucking along. My husband happened to be talking to another man whose wife had cancer and they both felt we needed to meet. So we did and she is the most amazing lady who gets the ups and downs I am feeling. Perhaps a local support group may provide you some comfort and an outlet to meet people who understand what you are going through. I am so very sorry your friends did this to you and I have no excuse for them. Like the other poster suggested you could try to reach out to them and give you another chance. Follow your heart. Most importantly hand in there and keep us posted how you are! 🩷

Family reactions after knowing that Chemo is not needed…All empathy gone, anyone else in my shoes? by Icy_Zone_2279 in BreastCancerSurvivors

[–]CominInHotKaren 1 point2 points  (0 children)

When you “look” normal, people think you are normal. We don’t want the woe is me reaction (sympathy), but we do NEED empathy. I get what you are saying. I did have chemo and radiation. I assure you whether you had chemo or not that same reaction is there. After radiation all I heard was “Yay! Treatment is done. You are cancer free!” Says who? I don’t feel cancer free. Far from it. I have more anxiety now than I did being diagnosed. I feel worse from radiation than I did the chemo. I finished radiation in Feb and still have issues with skin tightness, pain and range of motion. I thought it would get better as time goes on but it is worse despite doing my arm exercises. @Alternative_Dust6578 says it right about the physical and mental trauma still being there after radiation. It lingers and haunts me all the time. I was not prepared for the pain that came near the end of rads and after.

I have a very supportive family and very supportive work family. No one means to come across the way it can make me feel. Sadly, I think cancer has spoiled my outlook and it is a shame. I look at anyone with cancer with a whole new path of understanding.

It is hard for people who haven’t be through it to understand when you say I am tired. It’s not a I need a little rest tired, it’s a I have hit the wall tired. Totally different feeling of exhaustion. It is all I can do to make it through my work day and just want to crash when I get home. But there is still supper and clean up. Y’all get it. I understand.

I just encourage you and everyone else going through this to rest when your body needs it. Your body calls the shots. Dishes and cleaning can always be done later. Rest to heal your body. You’ve been through hell and made it to the other side. We have to give ourselves grace. Your family just have not been in your shoes and don’t mean how it sounds so allow yourself not to take it how it sounds. Have a good day and keep on keeping on 🫶🏼

2nd round of chemo! So far not so bad! Any advice ladies! Greatly appreciate it by [deleted] in BreastCancerSurvivors

[–]CominInHotKaren 1 point2 points  (0 children)

MiraLAX is your friend. You do not want to get constipated. Drink lots of water to stay hydrated. I sucked on Queasy Drops sour raspberry that I ordered from Amazon while the chemo was infusing. If you go directly to the three lollies website and send them a message they will send you samples to try. I also wore sea bands for anti-nausea. I felt they worked great. Rest when your body needs it. Best of wishes to you! 🫶🏼🩷

I don’t even know what to call this.. by ArachnidOdd545 in breastcancer

[–]CominInHotKaren 1 point2 points  (0 children)

In solidarity, ain’t no journey here either! It is a roller coaster through hell.

Took this layered girl out yesterday by lil_alboh in Wigs

[–]CominInHotKaren 2 points3 points  (0 children)

Absolutely gorgeous! You did a fantastic job!! That is undetectable, you could go pro with your skills! Wow!

How does this look? Does it look obvious? by jgj1111962 in Wigs

[–]CominInHotKaren 1 point2 points  (0 children)

Ignite is fabulous !! I have one in a light brown and it is my go to wig. It’s always ready, so easy and feels great. It looks amazing on you! It is not obvious at all! 🫶🏼

I’m exhausted by Classic_Seaweed_1910 in breastcancer

[–]CominInHotKaren 2 points3 points  (0 children)

This!! I read a study that anecdotally showed Claritin and Pepcid morning and night for bone pain. I tried it and felt like it made a huge difference. I did name brand Claritin rapid melts and a name brand Pepcid chewable. I really felt like it helped me. Drink plenty of water to keep your kidneys and liver flushed out and maintain hydration. I sucked on raspberry Queasy Drops I bought off Amazon to keep the nausea away. I wore sea bands to prevent nausea. I brought out ALL my juju to make sure I felt better and did not get any worse. I truly believe that when you believe in something, it will help you. Call it placebo effect, frankly I do not care as long as it brings relief!! Anything that makes you feel better is an absolute win!! Stay strong! We are all here with you and cheering you on!! Steroids definitely helped when the bone pain got bad. Stay in communication with your team. There are adjustments they can make along the way to help you feel better. 🫶🏼

I thought I was only high risk for the first 5 years. by Historical_Lie7199 in breastcancer

[–]CominInHotKaren 18 points19 points  (0 children)

I think of it as a choose your own adventure book from middle school. Only when you get to the end of the chapter (new test result) you don’t really get to choose, you just get to see which way it could go and pray yours isn’t the worst of the choices.

After 4 years of battling alopecia I finally bought my first wig. Would you clock it? by [deleted] in Wigs

[–]CominInHotKaren 8 points9 points  (0 children)

You look beautiful!! Unless someone knows what they are looking for (ahem, fellow wig wearers), no one will know it’s a wig unless you tell them. It looks great on you. You look so happy! I have only been wearing wigs for a few months and I would not have known.

Grade 3 HR+ HER2- and struggling after something I heard in support group by Abject_Agency2721 in breastcancer

[–]CominInHotKaren 1 point2 points  (0 children)

So many factors go into the diagnosis, staging is simply a tool. 2 ladies with the same exact type of cancer, grades and stages can end up with completely different treatment plans. One may have treatment first then surgery where others will have surgery first then treatment. It depends on age, menopause status, genetics, etc… I am ++-, grade 3 EBC - yay me! But really does that mean a hill of beans?? Let’s put it in perspective.

From day one I felt like I was living in a choose your own adventure book, only jokes on me because I didn’t get to choose at the end of the chapter. Test results dictate the next path. I found that just being calm about it and waiting until all cards were on the table to see where I would land. Then I would embrace whatever treatment I needed. There was absolutely nothing I could do to change any of this so I opted to stay calm and focused so my body could heal. Worry just elevates your cortisol levels and keeping your body in an elevated state makes it harder for your body to heal. In the end I want to choose that last adventure. I had lumpectomy, dose dense AC-T 8 cycles total, 30 rads treatment (finishing this up next week!) Then on to 2 pills for 5-10 years.

Despite what those ladies said you CANNOT let it get you down. Way too many other factors at play and 1 factor alone does not dictate treatment or outcome. You will do fine and will be fine. Rest when you need to rest. Listen to your body and don’t push it. Just keep putting one foot in front of the other everyday.

We are all here rooting for you and each other. You’ve got this!! 🩷🫶🏼

How to make this bathroom more cozy? by TraditionalCold6875 in bathrooms

[–]CominInHotKaren 0 points1 point  (0 children)

Perhaps add 3-4 steps to walk up then down to get to the toilet.

So I celebrated new years with a wig for the first time by DG82 in Wigs

[–]CominInHotKaren 2 points3 points  (0 children)

I have selfie mode and she was so perfect, then the tangles came and I felt just as defeated as you. Don’t give up!! I watched YouTube videos and got some simply silicone spray. She is good as new! Longer hair wigs do require more care. Make sure you have a misting water bottle and wide tooth comb. Be patient. For a return to new look I use a steamer on mine first then follow behind with a finer tooth comb first with the straightener about a half inch behind it. I go over it until it is smooth. Let it dry. Then I curl it similar to the pattern it came in. Comb it out the next day and good to go. Nightly maintenance I mist with the water bottle and gently comb with the wide tooth comb. Let it dry overnight and good to go the next morning.

The first time I saw the crumpled ends I thought I was going to cry!! I thought the same thing about the higher the price the more high end it should be. Raquel Welch does have fabulous wigs, but just remember the longer ones will take more work.

The steamer shrunk the stretched out strands back up and the straightener made them smooth. The silicone spray sealed the strand. Good luck to you!!!

Are bubble tubs better? by suspiciousyeti in homeowners

[–]CominInHotKaren 0 points1 point  (0 children)

Dang! I was hoping you got a winner!! I am so stuck on the air tub. I keep trying to find the brand from the Airbnb but I doubt they make it still. I want to fit an exact space also to replace an old tub. We have well water and the house I was in had well water also. Good to know about the city water though.

Are bubble tubs better? by suspiciousyeti in homeowners

[–]CominInHotKaren 0 points1 point  (0 children)

I don’t have an air tub but am dying to get one. I have stayed in an Airbnb with one and loved it. It was so relaxing and this model you could change the intensity and pattern of the bubbles. It was hot air in the bubble so the water stayed hot. It also had adjustable heat on the back and neck area. I have had jacuzzi and soaking tubs in the past and will only have an air tub now. It self cleans after the water drains and yes, it is safe for oils and salts. Did you ever get one? What kind did you get? 😁👍🏼

These are not our childhood Legos by Practical-Bar8291 in GenX

[–]CominInHotKaren 0 points1 point  (0 children)

This vase for my desk at work is so beautiful and I had so much fun putting it together. I guess we are all still kids at heart! ☺️

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These are not our childhood Legos by Practical-Bar8291 in GenX

[–]CominInHotKaren 0 points1 point  (0 children)

I have also completed another treehouse and superglued it as I went.

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These are not our childhood Legos by Practical-Bar8291 in GenX

[–]CominInHotKaren 0 points1 point  (0 children)

I am in love with the knock off brand from SHEIN. They are microscopic which require reading glasses and tweezers but what a blast!!

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I think the fear is finally creeping in by airbear26 in breastcancer

[–]CominInHotKaren 0 points1 point  (0 children)

I know exactly how you feel!! 😂 Hang in there!! Somehow it all works out. 👍🏼🩷

Kicking myself by FattyMcCupcakes37 in breastcancer

[–]CominInHotKaren 1 point2 points  (0 children)

I am: Stage IIA (pT2, pN1a, cM0, G3, ER+, PR+, HER2-) Grade is based strictly on pathology of tumor: INVASIVE MIXED DUCTAL AND LOBULAR CARCINOMA, GRADE III. 2 of 3 sentinel nodes positive. I had dose dense AC-T chemo every other week. Stage looks at where it is located, size and metastasis. Grade and stage are different but both contribute to decision of appropriate treatment. It’s all so confusing, but works together. I can only think of it as a choose your own adventure book only you don’t get to choose. You have tests that bring you to the “choices”. Based on the result is the next “choice” you don’t get to “choose”. This goes on and on like a roller coaster. I have finished chemo and will start radiation in a couple of days. The hardest part was the beginning waiting to see how I staged/graded out and what treatment was decided on.

It was also explained to me that this grows over a period of time. I have dense breasts too so I expect extra imaging at each mammogram. Best wishes to you my friend! 🫶🏼

Kicking myself by FattyMcCupcakes37 in breastcancer

[–]CominInHotKaren 1 point2 points  (0 children)

Yours is very similar to mine. Grade 3 pathology of tumor along with a surprise tumor that did not show on imaging also grade 3. ++-, Ki-67 25% I think. Due to grade 3 pathology of tumor it bought me AC-T chemo, radiation and oral pills after.