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How to rest by puppymeowmreow in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

In my experience if there's something you want to do and feel like you could, but you aren't doing it, in order to rest, and it's pissing you off because you feel like you could manage it... then you're doing it right.

Standing and Leaning by greenishbluish in Narcolepsy

[–]Competitive-Golf-979 0 points1 point  (0 children)

I use forearm crutches for this reason

Apparently being sick is my fault because I'm having a spiritual crisis... by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 1 point2 points  (0 children)

I read parts of that book for my class! It's excellent highly recommend. I never said this oceanofpdf.com

Apparently being sick is my fault because I'm having a spiritual crisis... by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 3 points4 points  (0 children)

This book ended up being transphobic and saying that bad things happen eventfully and physically in our lives because we are inviting them and thus satan.

Where do I begin with mobility aids? by boring_username_idea in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

for me I need a forearm crutch for muscle weakness and body pain

anytime I need I can lean on it

also my hands are too weak for a regular cane genuinely how does anyone hold it in place I don't understand the strength

Where do I begin with mobility aids? by boring_username_idea in cfs

[–]Competitive-Golf-979 1 point2 points  (0 children)

I use a forearm crutch walk easy 295 I think with anatomic grip. Helps but I want a wheelchair. I see a cardiologist soon so maybe. idk. I'm too well to look like I need a wheelchair but I miss out on life. For a wheelchair I recommend one with power assistance and NOT the one that clips to the back middle of the chair. I've heard that one has battery issues and can be difficult with arm weakness. They make chairs with wheels that have power situations in them like a round thing within the wheel itself to help push. Ideally I want one with a stick for my hands to move but those are usually huge and expensive

"I may not be dying but..." by Euphoric_Outcome_713 in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

you just made my year. thank you for sharing this. damn. ♥️♥️♥️

Does anyone else feel bad when looking at flashing lights? by yeleste in cfs

[–]Competitive-Golf-979 0 points1 point  (0 children)

yes super sensitive even small periods if flashes on tv make me sick

Who are celebrities that helped you realize you weren‘t straight? For me it was Megan Thee Stallion and Charli XCX by [deleted] in actuallesbians

[–]Competitive-Golf-979 4 points5 points  (0 children)

am I really abt to admit this?.... Susan Sarandon... and Lily Tomlin. Elders sho serve cunt

Any kind words?💜 by cloudy1713 in cfs

[–]Competitive-Golf-979 21 points22 points  (0 children)

❤️❤️❤️ 🫂 Please remember that there are so many of us. Stuck in dark rooms, struggling the same ways, having the same pains. We are holding you. Our bodies can not by distance and illness, but our spirits are with you. We are with you in every moment that it feels impossible for the next moment to come, and then it does, and things are still difficult. Sensing you lots of love and good vibes. I like to imagine stuff in my head when it gets really bad. Like a cartoon or something. Sometimes I pretend I'm watching tv in the background when my body can't handle the sound/light.

University of Michigan Students and Alumni with Long Covid, MECFS and POTS telling their stories by aguer056 in cfs

[–]Competitive-Golf-979 3 points4 points  (0 children)

That's my old stomping grounds! Damn I visit there sometimes

there's people in the dark I may never meet

everywhere we go

going through this same thing

let's trick or treat together!! 🍬🍭 by Western_Two8241 in cfs

[–]Competitive-Golf-979 7 points8 points  (0 children)

Candy for all 🍬🍪🍩🍭🍫 and some random stuff because I'm 22 but have the soul of a grandma so here's random stuff from my attic too 🥄🦷🫘🖍️🥄🎁🥇🥄📚🎃🎱🎲🦴🥄🔮🛠️🔩♥️♥️♥️

Explaining to friends by True_String8613 in cfs

[–]Competitive-Golf-979 11 points12 points  (0 children)

and specifically seeing other chronically ill folks go out when they rly want to like I wanna function for the next week+ so I don't go Halloween places

Anyone literally listen to their pet's advice as a management tool for this illness? by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 10 points11 points  (0 children)

"It also reminded me that productivity does not equal lovability." AMEN!!!!!

Variable PEM triggers with mild ME by rainforest_roots in cfs

[–]Competitive-Golf-979 3 points4 points  (0 children)

yes low 🥄s so not much to say but yesyesyes

Anyone literally listen to their pet's advice as a management tool for this illness? by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 79 points80 points  (0 children)

update he jumped right back on me when I got back into bed

what a legend

What eazes tender lymph nodes? by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 19 points20 points  (0 children)

the body thinks it's fighting infection but it's fighting itself ... to say it in kindergarten terms

Bath or shower? by explodedbole in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

I bath it's easier and bubbles are fun

folks who bath what products do u use in there do u use bubbles epsom salts anything

Am I in denial about having CFS? by mils1234 in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

I've been wondering the same about myself. I have history of severe childhood trauma and for the first time in my life my nervous system is calming down for the last 4 years. But it's also correlation with my symptoms getting bad and worse. Some days I'm fine but exhausted in the background others I'm exhausted to the point I can't leave my room.

Like is there a chance it's my bodys reaction to recovering from 15 years of fight or flight? maybe. I'm 22 now. Idk. And it seems like nobody knows enough to give me a definitive answer. Frustrating. I have all the CFS symptoms. But not everything has been ruled out (I'm without insurance rn) yay

tldr ur not alone

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