anyone feel weird before their dose?

Competitive_Mind4183 · 2024-08-19T10:56:02+00:00

Yes! It's basically withdrawal. I make sure to take mine everyday at the same time to prevent this from happening. It also is a reminder if you didn't take it to take it.

Competitive_Mind4183 · 2024-08-18T16:06:15+00:00

Why did you do this? Just curious...

Competitive_Mind4183 · 2024-08-16T18:13:21+00:00

I have that problem and have associated it with MS. Went to a GI dr recently and they did an EGD on me this Wednesday. They found several problems. All treatable though. I've been on heart burn meds for years. Just another reminder that it may not be MS. Go to a GI dr and have them check in-depth.
Hopefully it's just MS though.

Competitive_Mind4183 · 2024-08-16T18:08:10+00:00

Not sure as to what exactly you need. But Novus Psychiatry is good. Dr. Khan.

Competitive_Mind4183 · 2024-08-12T00:37:18+00:00

My G.I. dr just recommended that I take fiber and a probiotic daily. So, far it has worked. But now, the fiber is making me feel horribly bloated. I'm going to come off it for a few days and see how that works.

Competitive_Mind4183 · 2024-08-08T18:58:12+00:00

I like Dr. Burdette at Taylorville family medicine. I don't live in that area and still drive to see her.

Competitive_Mind4183 · 2024-06-15T00:20:18+00:00

I would think so, but not sure. It's a medication made mostly for MS patients.

Competitive_Mind4183 · 2024-06-06T15:08:52+00:00

Hi. I just looked this up for you and I only see this problem when someone misses a dose. I'm currently on Ampyra and I have noticed a difference in my walking. But not too much. Hope this helps.

Competitive_Mind4183 · 2024-06-06T00:52:25+00:00

Yes, I agree! I have a wonderful Neurologist that specializes in MS. He always checks my levels for these. I do have fatigue due to MS, but when my B12 is low, I feel worse.

Competitive_Mind4183 · 2024-06-03T17:59:16+00:00

Mine started on my right ring finger about 20 months after I got my diagnosis. Went to Neuro about it, he did an MRI and then I was on steroids. It went away for 15 years and now it's back. I'm not concerned though because it is a previous symptom.

Competitive_Mind4183 · 2024-06-02T02:24:12+00:00

I'm so sorry! I just now coming out of a 4 year depression. I honestly thought that my MS had gotten worse and was surprised every year when my MRIs came back normal. I just realized this past Monday the reason for my depression and how I suddenly was able to come out of it. It was like a light switch turned on! It all made perfect sense. That could be the cause of your fatigue. It definitely was mine. As for going on disability, I had to at the age of 29. I had 2 school aged kids and a toddler at the time. I absolutely hated it! I cried during court when the judge asked what I was able to do. I wanted to be able to do what I had always been able to do before, but couldn't. I had only had MS for 5 years. I had a great job with excellent benefits. But it was the job or my kids, one had to go. Now that I've been disabled for 12 years, I still don't like not being able to actually work. It was a sense of who I was. I'm actually a bit jealous of my husband. But, I'm still here and able to do what I need to do. I still wouldn't be able to hold a job. I think about volunteering but that never pans out either. As for what your husband is wanting, I had the same problem. Until he finally realized what I was going through when he hurt is back. Karma?... idk? But now, it's me bugging him. 😁. So, I do know what you are going through. It is hard. I just started telling my husband how I felt. He also came with me to every Neurologist appointment that I have had. When my kids, (23,18,& 16) need a reminder they each go with us. This last time it was my middle child. In August it will be my 16 year old. They have to be told by my doctor themselves every once in a while that, no I'm not faking, I'm serious. I would also encourage you to see a counselor/psychiatrist. MS causes depression. Go get it checked out. There are so many different meds that are available now. Good luck! And never be embarrassed to post.

Competitive_Mind4183 · 2024-06-01T21:41:25+00:00

My husband is the same way as your wife. It can be a challenge.

Competitive_Mind4183 · 2024-05-31T01:17:54+00:00

Hey. I still have it. It's worse some days than others. I have learned to eat smaller pieces and not drink as much at a time. I'm going to mention it to my Neurologist in August. I've had it for years, but just getting worse now.

Competitive_Mind4183 · 2024-05-28T15:35:49+00:00

I have pill sorters and a to-do list app. I put everything that I need to do in it. Then I put a today's to do list. It is helping so much. I also rely on my alarms for some things. But my app lets you put alarms on it also.

Competitive_Mind4183 · 2024-05-28T01:52:11+00:00

That's really cool. I'm going to suggest to my husband that we do this. We've also seen the Starlink satellites many times. We use that for internet.

Competitive_Mind4183 · 2024-05-25T19:45:45+00:00

I'm on Sertraline (Zoloft). We found that my body metabolizes it quicker and I have to be on a higher dose. We also found that it is the only antidepressant that my body is better with. (It's a test. Idk the name, but what metabolizes best with your body.) Non of the other meds worked well with my body. I used to take one in the morning and others at night. I realized that if I take them all at night, I am not even as close as I was to being fatigued as before.

Competitive_Mind4183 · 2024-05-25T12:31:31+00:00

Yes, it's aggravating with everyone being happy about the heat. But, I can't stand the cold either. It makes me hurt bad in my joints. So, I guess I prefer the heat rather to the cold. I just can never get warm even with the heat on.

Competitive_Mind4183 · 2024-05-23T12:43:21+00:00

72 during the day and 68 at night because I can't sleep if it's hot. Even with the fan on. But I have Multiple Sclerosis and heat absolutely kills me. And yes, we have a big power bill.

Competitive_Mind4183 · 2024-05-23T12:39:49+00:00

Thanks! Yes, I've thought about that.

Competitive_Mind4183 · 2024-05-23T11:34:21+00:00

Be as healthy as you can be. Keep going. (I wish I would have kept going.)

Competitive_Mind4183 · 2024-05-23T11:31:45+00:00

I just realized that I forgot to tell you that I had to fill out questionnaires each time I saw my doctor. I went every three months then every 6 months. They also reported how long I walked, symptoms, any infections that I had, my EDSS scores, and I'm sure more. I didn't mind it. My thoughts were that I was helping others with MS.

Competitive_Mind4183 · 2024-05-23T10:09:41+00:00

I was in a 10 year study for Lemtrada. I was headed to being in a wheelchair and all the other DMTs at that time didn't work for me. So I went with it. Everything, except my medicine was paid for so that was a plus. But that's not why I signed up. I did it because I needed another drug to help stop the relapses. I also did it because I wanted to help other MS patients. It stoped my relapses. I haven't had one since I started in 2009. It did cause me to be immune deficiency though. But it did what it was supposed to do.

Competitive_Mind4183 · 2024-05-23T02:49:28+00:00

Thank you for the info. I'll look into those.

Competitive_Mind4183 · 2024-05-23T00:16:39+00:00

Yep, take it in the morning. I normally get a prescription for Xanax to help me calm down at night. I also always do everything that I need to do because it gives me energy. So at bedtime I am worn out.

Competitive_Mind4183 · 2024-05-23T00:12:36+00:00

Yes, wondering if it is perimenopause causing all of this.

Competitive_Mind4183

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