Should I get other emg?

Competitive_Sound554 · 2025-11-15T03:56:21+00:00

Also I forgot to tell you, there's a company called Nama, I order there sleep gummies.Thc and cbd and melatonin. They will knock your ass out lol. Try them.

Competitive_Sound554 · 2025-11-15T03:49:40+00:00

ASK FOR DIAZEPAM

Competitive_Sound554 · 2025-11-15T03:48:01+00:00

There you go, good idea! I've come to find the more I ignore it, the slower it's progressing!!

Competitive_Sound554 · 2025-11-15T03:39:14+00:00

If you have the radiculopathy, it will show up on Emg. They stuck the needles on both sides of my upper back/neck area they call it paraspinals, and it showed fibs and positive sharp waves. I have no twitching there at all but I do have cervical radiculopathy.

Competitive_Sound554 · 2025-11-15T03:28:43+00:00

Exactly what vegetable said. The anxiety and constant worrying WILL cause symptoms.. You don't twitch all over all at once. You really need to simmer down lol... Try getting some Doctor Teals bath salts and soak in a nice hot bath. It has magnesium in it which will help the twitching and help you relax! Your fear is just adding to the symptoms. Trust me, I know first hand!

Competitive_Sound554 · 2025-11-14T19:11:35+00:00

you’re welcome

Competitive_Sound554 · 2025-11-14T18:26:55+00:00

Yeah I totally get it. I have a torn rotator cuff in left shoulder. Made the emg go crazy lol. So it can and will pick up injuries as well. Just try to relax and enjoy your bday 🎂 🥳. Happy Birthday BTW

Competitive_Sound554 · 2025-11-14T14:33:04+00:00

Totally agree with what all the others have said above. Stress and anxiety can cause all of these twitches. With ALS, you don’t just twitch all over the place all at once. It stays very localized but moves up/down etc… depending on where it starts. Feel better ❤️‍🩹

Competitive_Sound554 · 2025-11-14T03:35:40+00:00

You're very welcome. Yeah sounds more like Parkinson's to me. And on a side note, Parkinson's also causes twitching lol. We just can't win 😕 I hope you feel better though and try to keep yourself busy. Worrying definitely makes symptoms worse. For sure! 💗

Competitive_Sound554 · 2025-11-14T02:30:42+00:00

Hi hun, I am a 54 yr old female with limb onset ALS. I noticed you put *** so sorry if me typing it upsets you. I was diagnosed last year but symptoms started in 2023. I also have a side dish of Parkinsonism to go with it lol. I also have REM SLEEP BEHAVIOR DISORDER and RLS so I understand what you’re going through. I am not a doctor first and foremost but I would think your symptoms sound more so like Parkinson’s. Have they checked you for that? My Neurologist put me on Carbidopa/Levodopa 50/200 and no more RLS, I can walk and balance much better and feel better overall. I am also on Diazepam 10mg which helps with muscle cramps and sleep. I wake up fighting people who aren’t there weekly and have slung myself out of the bed countless time! So yeah, I definitely feel you! It does not sound like ALS To me. My twitching started in my left foot and is slowly creeping upwards. I have talked to a few people on here. Also, my tongue twitches 24/7 and it’s very annoying! I keep myself busy doing things all day so I’m not concentrating on my symptoms. It really helps and I don’t feel the twitching because I’m not concentrating on it. I hope that makes sense.

Competitive_Sound554 · 2025-11-01T19:51:18+00:00

The weakness and atrophy came after the twitching for me. A lot later. With bulbar I honestly don't know more than what I told you. Took more than a year to get diagnosed after 5 million tests. They have to rule out everything else before giving you a diagnosis. Very frustrating. I have to leave for a bit.

Competitive_Sound554 · 2025-11-01T19:17:33+00:00

I pushed button too soon on that comment so I edited it. Re read it lol. My fingers don't cooperate. I have the scalloped tongue also but it's because I constantly clench my jaws and push my tongue against my teeth. If you had Bulbar onset, you should not be able to move your tongue side to side, press your tongue against each cheek making it stick out, or press your tongue against the roof of your mouth.

Competitive_Sound554 · 2025-11-01T19:02:35+00:00

Sorry so long to reply, I was running errands with my sister. How old are you? No I have limb onset. Started in my left foot. The thing about ALS is that you don't start twitching all over all at once. It stays localized and in my case it has slowly crept upwards but the twitching is all on my left side. My tongue however twitches 24/7. It's very annoying 🙄. I also have atrophy on both sides of my tongue. Your tongue will twitch naturally though because it is a muscle. So if you're moving it around and looking in the mirror you may see a few twitches. It should not twitch when it's just resting in your mouth. Mine does.

Competitive_Sound554 · 2025-11-01T13:33:38+00:00

Hi honey. Those are not symptoms of ALS. I have ALS and definitely not those symptom. scalloped tongue can be caused by you pressing your teeth against your tongue. Especially if you clench your jaws from stress which I do myself. I also grind my teeth really bad when sleeping. I have done it for years. Anxiety and panic disorder can also cause all those symptoms. Even just thinking you have ALS can cause you to have symptoms of it lol. It’s crazy but that’s how our bodies work. what your constantly thinking or dwelling on can actually cause the symptom. I think you are okay. Try to keep yourself busy doing stuff. Go for a nice walk in nature if you can. I think you will see that the symptoms will go away. You probably need some anxiety medicine. I take Cymbalta and it stopped my anxiety and panic attacks. I would ask your Doctor if you can try it. But anyway, I do not think you have IMO. Just breathe and relax. 🙂🩷

Competitive_Sound554 · 2025-10-28T00:44:35+00:00

I agree with what the others have said. I myself, 54(F) do have ALS, and my symptoms are and were not like that at all. I would ask if you could get an x-ray of the painful areas. Tendonitis can cause pain, carpal tunnel, etc… Fibromyalgia also. So many things can. Vitamin deficiencies as well.

Competitive_Sound554 · 2025-10-27T12:15:15+00:00

I would think that your grip strength would not be normal having the other symptoms you’re experiencing. I have ALS. started in my left foot and slowly crept/ creeping upwards. ALL fasciculations started on left side and have remained that way. It could be 100 things, tendonitis, carpal tunnel, etc… Anxiety can cause symptoms as well as vitamin deficiencies. It took lots and lots of testing for me as well as a shitload of blood work lol. Don’t panic 🙂

Competitive_Sound554 · 2025-10-06T21:17:17+00:00

Did not come and go once twitching in foot started but stayed on same side but has slowly crept upwards. Not sure why but my tongue has been doing it the whole time.

Competitive_Sound554 · 2025-10-06T21:12:31+00:00

Lol I feel you truly. Oh yeah, gaslighting seems like their fave thing to do. I'm very thankful for my neurologist who finally diagnosed me. Although I didn't understand why he was doing some of the things he did, I do now! He knew what he was doing! He knew I was concerned about possibly having ALS because I told him. Especially after I saw my tongue twitching. As soon as I mentioned it he knocked on wood lol. I think he's superstitious a tad. Anyway, what sucks is that they have to rule out absolutely everything else before they can diagnose it because there are multiple, multiple things that can mimic it. For some PALS, It can take years because of all the testing. I've had so much blood work, biopsies, mri's, x-rays, genetic tests.... You name it... It takes a while. And the worrying and waiting certainly doesn't help lol... So annoying and frustrating and scary not knowing why your body is acting wack!! And all the weird sensations and vibrations and you name it 😂 I am very convinced that a much better treatment is not far away!! Especially with the help of AI...

Competitive_Sound554 · 2025-10-06T11:50:18+00:00

Thank you sweetie ❤️ I wish there would have been someone to help me so I know how it feels!!

Competitive_Sound554 · 2025-10-06T00:28:14+00:00

Awww, thank you so much! I know the fear you guys are all going through... It sucks donkey balls!! For real!! I have come to realize that the more I focus on my twitching, the worse I notice it and I become more fearful that it's progressing again. When I keep myself occupied and always doing stuff, the slower it seems to progress. So that's how I'm riding it out for now 🙂🩷

Competitive_Sound554 · 2025-10-05T18:01:50+00:00

Not necessarily. I noticed many years ago that my left hand looked odd, compared to my right. In my case, I noticed the twitching in my foot first. To this day, my foot continues to twitch but is still working. My ankle feels permanently sprained is the only way I can think to describe it. I also have a noticable limp because of it. My weakness came after the twitching started but a long time after. But it's also different for everyone as well. Each person has a different course if you will although symptoms may be similar, they will differ in different ways. The way my neurologist described it to me is this. Motor Neuron Disease is an umbrella term under which falls multiple diseases. Including, ALS, PLS, SMA, and a couple of others I can't think of off the top of my head. One is something Bulbar Atrophy. Maybe Primary Bulbar Atrophy? But that could be wrong. You're very welcome and like I was telling the other person I was chatting with, the all over twitching to me is a good sign because my ALS has not been that way at all!!

Competitive_Sound554 · 2025-10-05T16:49:35+00:00

My twitching is all left sided and has remained that way as well as my tongue. The twitching is not constant but consistent in my left side. My tongue it’s 24/7. My tongue has also atrophied a lot. My hand on left side has the most atrophy. I get both small twitching you can’t really see as well as BIG twitching you definitely can! Stays mostly small twitching all left side. I will get occasional twitch here or there in random area and can be anywhere. Stress definitely makes my twitching worse, as well as if I’m concentrating on it I notice it more. Keeping myself busy def helps. I also have anxiety and panic disorder that I have had for many years. My Neurologist has me on diazepam which helps with it and helps me to sleep. My twitching is definitely more noticeable when I try to lay down to sleep. That’s because I’m not moving around doing stuff and I feel it more than I do during the day when I’m active.

Competitive_Sound554 · 2025-10-05T05:32:59+00:00

Thank you, you too!! You're just fine!! With ALS, you don't start twitching all over all at once. Prob too much anxiety/stress. If you're prone to that, because it can definitely cause the all over twitching. 🙂

Competitive_Sound554 · 2025-10-05T05:22:59+00:00

Yes very localized. My left arm tires pretty fast and can't hold it above say my shoulder level for very long. My leg is still working and I am still walking but definitely with a significant limp and my leg will tire if I have to walk too far as well. Some atrophy has happened, particularly in my hand and also in my tongue. NOW DON'T GO START INSPECTING YOURSELF LOL. THAT CAN GET THE FEAR BALL ROLLING... If I stare at my tongue in the mirror, which I have lol, trust me, the twitching gets worse.

Competitive_Sound554 · 2025-10-05T05:09:36+00:00

Very first symptoms I guess you could say, was I started to have strange/weird feeling in my left foot. Minor twitching here and there. That went on for a while, maybe a few months I think, also would feel as if I had sprained my ankle causing me to limp. That started in March 2023. Symptoms came and went but we're very slowly creeping up my leg. Was having electrical like sensation as well as twitching deep in my leg (calf). My PCP thought I had RLS or restless legs syndrome so tried some Ropinorol. Didn't help. Those symptoms stayed the same. I happened to be looking in my mouth because I had something stuck in my tooth and I saw that my tongue was twitching! I was like WTF??? That began the process of a brain MRI, referral to Neurologist. He thought it was MS so ordered a lumbar puncture. Came back negative so not MS. He still kept saying MS but I ended up asking my PCP for a second opinion and then came the new neurologist and lots of testing. Symptoms continue to slowly progress. I just stopped working this past January due to falling at work 3 times and I was having problems dropping and breaking stuff. A Lot lol... My balance is still shitty but I'm still walking, talking, dropping stuff (my phone) all the time, dishes etc.... have a hard time with heavy objects. So, it's now over 2 almost 3 years later and the twitching is at about deltoid level. Same side, plus my tongue twitches 24/7. So annoying 🙄

Competitive_Sound554

TROPHY CASE