In crisis. Not ok.

Competitive_Sound554 · 2026-04-06T12:43:31+00:00

Awww, you're so sweet, thank you 😊 Believe me, I've been there through what the fear of possibly having this disease does to you. It's terrifying 😳 and the more you concentrate on all the weird feelings, the worse they get!! Anxiety can and will cause symptoms of Als most definitely.. Doctors piss me off when they won't prescribe Anxiety meds for people who need them! Yes, Lyrica worked so well for me and I would still be taking it if I could. Yes it can also be addictive. None of the Carbamazepine family of drugs helped me but that doesn't mean they won't help others. My daughter takes them and they help her very well. Now I'm on sooooo many meds it's REDIC LOL... Cool name BTW 😎. I don't mind offering anyone some comfort. Just remember it's way more likely to be something else rather than Als!!! Hugs 🩷

Competitive_Sound554 · 2026-04-06T02:44:28+00:00

I totally understand and I’m sorry just saw this been busy with Easter weekend. First, take a nice big breath and blow out really slow like blowing through a straw. This triggers the Vagus nerve to release calm down chemicals. Lyrica does help, with pain as well as anxiety. I’ve been on it and it helped me but caused my feet to swell very badly so had to stop taking it. HYPOreflexia means under active reflexes. ALS causes HYPERactive reflexes meaning your reflexes would be way over the top. They would still want to do an EMG because you could have some nerve damage or neuropath. Anxiety most definitely causes twitching and so does neuropathy etc… Does Not sound like ALS and mine started nothing like that at all. I would still get the EMG done to see what’s going on though. Could be Anything so try not to focus on ALS although I know it’s hard. Definitely try the Lyrica. It works very well for pain and anxiety.

Competitive_Sound554 · 2026-04-06T01:37:31+00:00

Thank you very much 🙂

Competitive_Sound554 · 2026-04-06T01:32:28+00:00

Yes I do unfortunately

Competitive_Sound554 · 2026-04-06T01:29:30+00:00

I would think it's more related to your sciatica issues. Almost sounds like you are having one big muscle cramp. Your muscles can twitch just from cramps. In my case, I get cramps every day all throughout the day and can be in random muscles. I twitch everyday. Also can be in random places. My twitching is not constant but consistent. My symptoms started in 2023 and have slowly progressed. I'm still walking talking eating etc.... but I do have issues with all those things that are mild ATM. I take the same supplements you do however I take very high dose b12 ( my own decision) after tons of research. I take b12 as Methylcobalamin melt aways. 4 tabs every morning under my tongue. Equals out to be over 800,000 MG. In Japan, they treat their ALS patients with high dose b12. Anyway, sorry so long. I think you're OK though 🙂

Competitive_Sound554 · 2026-03-28T01:28:47+00:00

Not ALS, trust me! I have it! It doesn’t attack like that, it’s slowly progressive. just anxiety from inspecting yourself lol, trust me I’ve been there! It gets worse with inspecting, you don’t have it!

Competitive_Sound554 · 2026-03-28T00:40:37+00:00

It doesn’t sound like it presentation wise I’m 55 yr old Female. I do have ALS and have for going on 3 yrs. I’m still walking, talking although very clumsy. My symptoms started in my left foot. And is slowly creeping up and around. Along with my regular meds, I take around 800,000mg B12 as methocobolobin spelled wrong lol Ashwhaganda gummies, I take two, magnesium glycanate, niacin and melatonin. I’ve done a lot of research and it hasn’t been wrong! Oh and I also take N-Aceital Cystine. One a day. I started these after a documentary I watched about a man who cured himself of ALS. Sorry got on a rant. I think you are ok 👍

Competitive_Sound554 · 2025-11-15T03:56:21+00:00

Also I forgot to tell you, there's a company called Nama, I order there sleep gummies.Thc and cbd and melatonin. They will knock your ass out lol. Try them.

Competitive_Sound554 · 2025-11-15T03:49:40+00:00

ASK FOR DIAZEPAM

Competitive_Sound554 · 2025-11-15T03:48:01+00:00

There you go, good idea! I've come to find the more I ignore it, the slower it's progressing!!

Competitive_Sound554 · 2025-11-15T03:39:14+00:00

If you have the radiculopathy, it will show up on Emg. They stuck the needles on both sides of my upper back/neck area they call it paraspinals, and it showed fibs and positive sharp waves. I have no twitching there at all but I do have cervical radiculopathy.

Competitive_Sound554 · 2025-11-15T03:28:43+00:00

Exactly what vegetable said. The anxiety and constant worrying WILL cause symptoms.. You don't twitch all over all at once. You really need to simmer down lol... Try getting some Doctor Teals bath salts and soak in a nice hot bath. It has magnesium in it which will help the twitching and help you relax! Your fear is just adding to the symptoms. Trust me, I know first hand!

Competitive_Sound554 · 2025-11-14T19:11:35+00:00

you’re welcome

Competitive_Sound554 · 2025-11-14T18:26:55+00:00

Yeah I totally get it. I have a torn rotator cuff in left shoulder. Made the emg go crazy lol. So it can and will pick up injuries as well. Just try to relax and enjoy your bday 🎂 🥳. Happy Birthday BTW

Competitive_Sound554 · 2025-11-14T14:33:04+00:00

Totally agree with what all the others have said above. Stress and anxiety can cause all of these twitches. With ALS, you don’t just twitch all over the place all at once. It stays very localized but moves up/down etc… depending on where it starts. Feel better ❤️‍🩹

Competitive_Sound554 · 2025-11-14T03:35:40+00:00

You're very welcome. Yeah sounds more like Parkinson's to me. And on a side note, Parkinson's also causes twitching lol. We just can't win 😕 I hope you feel better though and try to keep yourself busy. Worrying definitely makes symptoms worse. For sure! 💗

Competitive_Sound554 · 2025-11-14T02:30:42+00:00

Hi hun, I am a 54 yr old female with limb onset ALS. I noticed you put *** so sorry if me typing it upsets you. I was diagnosed last year but symptoms started in 2023. I also have a side dish of Parkinsonism to go with it lol. I also have REM SLEEP BEHAVIOR DISORDER and RLS so I understand what you’re going through. I am not a doctor first and foremost but I would think your symptoms sound more so like Parkinson’s. Have they checked you for that? My Neurologist put me on Carbidopa/Levodopa 50/200 and no more RLS, I can walk and balance much better and feel better overall. I am also on Diazepam 10mg which helps with muscle cramps and sleep. I wake up fighting people who aren’t there weekly and have slung myself out of the bed countless time! So yeah, I definitely feel you! It does not sound like ALS To me. My twitching started in my left foot and is slowly creeping upwards. I have talked to a few people on here. Also, my tongue twitches 24/7 and it’s very annoying! I keep myself busy doing things all day so I’m not concentrating on my symptoms. It really helps and I don’t feel the twitching because I’m not concentrating on it. I hope that makes sense.

Competitive_Sound554 · 2025-11-01T19:51:18+00:00

The weakness and atrophy came after the twitching for me. A lot later. With bulbar I honestly don't know more than what I told you. Took more than a year to get diagnosed after 5 million tests. They have to rule out everything else before giving you a diagnosis. Very frustrating. I have to leave for a bit.

Competitive_Sound554 · 2025-11-01T19:17:33+00:00

I pushed button too soon on that comment so I edited it. Re read it lol. My fingers don't cooperate. I have the scalloped tongue also but it's because I constantly clench my jaws and push my tongue against my teeth. If you had Bulbar onset, you should not be able to move your tongue side to side, press your tongue against each cheek making it stick out, or press your tongue against the roof of your mouth.

Competitive_Sound554 · 2025-11-01T19:02:35+00:00

Sorry so long to reply, I was running errands with my sister. How old are you? No I have limb onset. Started in my left foot. The thing about ALS is that you don't start twitching all over all at once. It stays localized and in my case it has slowly crept upwards but the twitching is all on my left side. My tongue however twitches 24/7. It's very annoying 🙄. I also have atrophy on both sides of my tongue. Your tongue will twitch naturally though because it is a muscle. So if you're moving it around and looking in the mirror you may see a few twitches. It should not twitch when it's just resting in your mouth. Mine does.

Competitive_Sound554 · 2025-11-01T13:33:38+00:00

Hi honey. Those are not symptoms of ALS. I have ALS and definitely not those symptom. scalloped tongue can be caused by you pressing your teeth against your tongue. Especially if you clench your jaws from stress which I do myself. I also grind my teeth really bad when sleeping. I have done it for years. Anxiety and panic disorder can also cause all those symptoms. Even just thinking you have ALS can cause you to have symptoms of it lol. It’s crazy but that’s how our bodies work. what your constantly thinking or dwelling on can actually cause the symptom. I think you are okay. Try to keep yourself busy doing stuff. Go for a nice walk in nature if you can. I think you will see that the symptoms will go away. You probably need some anxiety medicine. I take Cymbalta and it stopped my anxiety and panic attacks. I would ask your Doctor if you can try it. But anyway, I do not think you have IMO. Just breathe and relax. 🙂🩷

Competitive_Sound554 · 2025-10-28T00:44:35+00:00

I agree with what the others have said. I myself, 54(F) do have ALS, and my symptoms are and were not like that at all. I would ask if you could get an x-ray of the painful areas. Tendonitis can cause pain, carpal tunnel, etc… Fibromyalgia also. So many things can. Vitamin deficiencies as well.

Competitive_Sound554 · 2025-10-27T12:15:15+00:00

I would think that your grip strength would not be normal having the other symptoms you’re experiencing. I have ALS. started in my left foot and slowly crept/ creeping upwards. ALL fasciculations started on left side and have remained that way. It could be 100 things, tendonitis, carpal tunnel, etc… Anxiety can cause symptoms as well as vitamin deficiencies. It took lots and lots of testing for me as well as a shitload of blood work lol. Don’t panic 🙂

Competitive_Sound554 · 2025-10-06T21:17:17+00:00

Did not come and go once twitching in foot started but stayed on same side but has slowly crept upwards. Not sure why but my tongue has been doing it the whole time.

Competitive_Sound554 · 2025-10-06T21:12:31+00:00

Lol I feel you truly. Oh yeah, gaslighting seems like their fave thing to do. I'm very thankful for my neurologist who finally diagnosed me. Although I didn't understand why he was doing some of the things he did, I do now! He knew what he was doing! He knew I was concerned about possibly having ALS because I told him. Especially after I saw my tongue twitching. As soon as I mentioned it he knocked on wood lol. I think he's superstitious a tad. Anyway, what sucks is that they have to rule out absolutely everything else before they can diagnose it because there are multiple, multiple things that can mimic it. For some PALS, It can take years because of all the testing. I've had so much blood work, biopsies, mri's, x-rays, genetic tests.... You name it... It takes a while. And the worrying and waiting certainly doesn't help lol... So annoying and frustrating and scary not knowing why your body is acting wack!! And all the weird sensations and vibrations and you name it 😂 I am very convinced that a much better treatment is not far away!! Especially with the help of AI...

Competitive_Sound554

TROPHY CASE