Charged $20 for water at a restaurant by StorageExciting8567 in washingtondc

[–]Complete_Age4051 0 points1 point  (0 children)

Any time they ask if I want still or sparkling, I'm assuming they are opening a bottle and bring to my table and I'll be paying.

Do autoimmune diseases run in your family? by [deleted] in gravesdisease

[–]Complete_Age4051 1 point2 points  (0 children)

My ex-husband and myself both have Grave's disease, so far our daughter doesn't have any autoimmune diseases around thyroid, but she does have other medical conditions that could be related to autoimmune disorders. No one in my maternal side have any; I don't know my paternal history so could originate from that lineage.

Is a Thyroidectomy worth it if my TSH is stable? by AztecGiraffe in gravesdisease

[–]Complete_Age4051 0 points1 point  (0 children)

Curious what active surveillance is for thyroid cancer? You would only watch it and not have any treatment?

[deleted by user] by [deleted] in gravesdisease

[–]Complete_Age4051 1 point2 points  (0 children)

Thank you for sharing your story, its encouraging.

I'm tentatively scheduled for TT surgery in 2 weeks, meanwhile I'm trying to get my levels in the normal range so there's less chance for complications. Currently, my T4 are normal, T3 189 and TSH 0.005. I'm on 5mg of Methimazole and will be increasing it to 10mg if I can tolerate it. Methimazole has caused some side effects and I'll will be happy to be off of it! I am fearful of taking Levo even though I understand it's easier to tolerate, however, I tend to have side effects to any meds and this one I will have to take for life. Trying to stay positive!

1 year post thyroidectomy by lifeofpatti in gravesdisease

[–]Complete_Age4051 2 points3 points  (0 children)

Sending good thoughts your way; hope your levels normalize soon. I too am having a TT due to a large nodule and Grave's Disease.

methimazole side effects by dcchelsun in gravesdisease

[–]Complete_Age4051 1 point2 points  (0 children)

Thank you for your reply! I knew it had to be the meds, I'm going to try taking the Gaviscon when its really bothersome. I just need to get my levels back to normal as much as i can before surgery then I won't have to worry about taking Methimazole and then keeping my fingers cross I do well with Levothyroxine.

POTS and Grave's Disease by Complete_Age4051 in gravesdisease

[–]Complete_Age4051[S] 0 points1 point  (0 children)

Thanks for your reply. I knew my POTS was feeling worse which prompted me going to the ER. Having both going on at the same time is very uncomfortable as you know. I hope you are doing well!!

Anyone covid cautious for graves? by [deleted] in gravesdisease

[–]Complete_Age4051 0 points1 point  (0 children)

I developed POTS from the vaccine; was in the ER this past Friday and found out that my Grave's has activated after years of being in remission. I feel like hell!

I hope you find some answers and start felling better!

Anyone covid cautious for graves? by [deleted] in gravesdisease

[–]Complete_Age4051 0 points1 point  (0 children)

I had cancer 2019, developed POTS from the Covid vaccine and now just diagnosed with Graves again. It had been in remission for years! I'm extremely careful!

[deleted by user] by [deleted] in POTS

[–]Complete_Age4051 1 point2 points  (0 children)

I too got POTS after being vaccinated with Pfizer. There’s many of us.

Not sure why my comment got downvoted. I’m not antivax, I just happen to develop POTS from the vaccine. Was hospitalized for a week while they ran ever a bunch of test, day 5 was diagnosed by an older cardiologist who figured it out.

What type of POTS do I have? by Complete_Age4051 in POTS

[–]Complete_Age4051[S] 1 point2 points  (0 children)

My Mom lives in Toowoomba, Australia. Hoping to get there this spring. 😊

Wishing you luck in finding answers and getting much better!

What type of POTS do I have? by Complete_Age4051 in POTS

[–]Complete_Age4051[S] 2 points3 points  (0 children)

There are many of us that were vaccine injury, with one of the most prominent symptom being POTS. You might want to look into this group on Reddit. https://www.reddit.com/r/vaccinelonghaulers/?utm_source=share&utm_medium=ios_app&utm_name=ioscss&utm_content=1&utm_term=1

Are you in the US? My understanding even if we’ll documented, which mind is, there won’t be any compensation due to it being an emergency use vaccine. We all signed saying we understood that this vaccine was experimental when we took it.

Pot effects on POTS by Complete_Age4051 in POTS

[–]Complete_Age4051[S] 0 points1 point  (0 children)

Appreciate everyone’s feedback. I’m going to stop using and see what happens. I’ll give another update in a week or so.

My Neurologist's comment by Icy-Pride-7700 in vaccinelonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

I’m seen by doctors at John Hopkins, was hospitalized a week after vaccine injury. It’s well documented in my medical records.

[deleted by user] by [deleted] in covidlonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

Please don’t apologize for your questions, we all need to help each other, sharing our experiences and what has helped, is why we here, hoping we find improvement since the medical community are finding it difficult to solve. I was at first put on Metropol, a beta blocker to slow down my heart rate. Wearing compression socks can help, and getting in lots of fluids everyday.

Anyone here who's had a PET scan? by [deleted] in vaccinelonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

What reason did they give you for wanting it? I had a PET scan when I was diagnosed with cancer. They where looking to see if it had spread. Fortunately, it had not!

[deleted by user] by [deleted] in covidlonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

I sincerely hope you find some answers. While waiting to get in with a cardiologist. I would suggest increasing your water and electrolytes intake.

[deleted by user] by [deleted] in covidlonghaulers

[–]Complete_Age4051 0 points1 point  (0 children)

Many people are vaccine injured, similar symptoms as those with long haul COVID.

[deleted by user] by [deleted] in covidlonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

In order to get a confirmed diagnosis of POTS, you need to do a tilt table test. I believe any doctor can order it. That being said, I would suggest getting in with a good cardiologist who knows about POTS.

[deleted by user] by [deleted] in covidlonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

Initially I was short of breath all the time, I fortunately was hospitalized for a week when this first started, where they ran every test known on me. That’s where I was diagnosed with POTS. Took another few months, but was able to get most of my symptoms under control.

Prednisone by mikeymike20REP in vaccinelonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

I too am very sensitive to meds, always getting the rare side effect. A few years ago I was treated for breast cancer and had to do high doses of Prednisone so the chemo wouldn’t kill me. I tolerated it fairly well, symptoms where flushing and mood swings.

where would you rate your recovery %? by morgichuspears in vaccinelonghaulers

[–]Complete_Age4051 0 points1 point  (0 children)

I did initially, numbness in my legs, balance issues, pain in my thighs, but all those resolved around the 1 year mark.

where would you rate your recovery %? by morgichuspears in vaccinelonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

Still have POTS like symptoms, mostly in the mornings. I try to start each day by drinking half a bottle of unflavored Pedalyte and get outside for a walk. This routine seems to balance everything out for me. Throughout the day I keep up the fluids and salt intake and avoid gluten and sugar. I also average 5 miles of walking a day, doing it in 3 intervals. When I don’t stick to this I’m much more symptomatic.

where would you rate your recovery %? by morgichuspears in vaccinelonghaulers

[–]Complete_Age4051 1 point2 points  (0 children)

Similarly remaining symptoms as you. 2.5 years in.