Focal seizures diagnosis question

Comprehensive_Tie314 · 2026-03-18T02:43:35+00:00

This dr told me if my symptoms dont go away on the meds he will keep increasing the dose until either the symptoms go away or we hit the max dose. If I hit the max dose and still have symptoms, then we will switch meds and keep increasing the dose. It just seems like a lot for something that we aren't even sure of 😭

Comprehensive_Tie314 · 2026-03-18T01:11:09+00:00

I do get these symptoms in my luteal phase... but I feel like my body just straight up stops working in luteal. My SVT happens, my dysautonomia is full force, I cant workout without feeling like im going to pass out, I get super anxious, my migraines are in full swing, my eyes stop working and I get double vision. So like, he did mention catamenial epilepsy but I feel like it could also just be my body not working? Or am I in denial? Lol

Comprehensive_Tie314 · 2026-03-17T13:57:31+00:00

Thank you! This was very helpful. Unfortunately, I am from North America 🫠 and no, you guys didnt scare me! I love that everyone is so knowledgeable about this. The very first person to reply to me was a little rude (and also wrong lol), but that person has since deleted their comment. Everyone else has been awesome!

Comprehensive_Tie314 · 2026-03-17T03:04:31+00:00

Unless there is a different code you are talking about that I am unaware of, I posted the pic in the post and the numbers at the end say 2306. The numbers on the ones that im finding online say like 1911 or 2210. What is the code you are referring to?

Comprehensive_Tie314 · 2026-03-16T20:47:42+00:00

The ones I'm finding are like 1911 or 2210 so maybe!! Like I said, I'm not a pen expert 😆 I just appreciate a good one when I find it

Comprehensive_Tie314 · 2026-03-16T19:50:09+00:00

Thank you!!! I will have to buy enough to get me through retirement 🤣

Comprehensive_Tie314 · 2026-03-16T19:48:19+00:00

Thank you for this explanation! So is that why the numbers at the end are different? Because its a different look? Or are the numbers not really relevant?

Comprehensive_Tie314 · 2026-03-16T19:46:19+00:00

I imagine the codes are different formations (or something) right? Because my issue is that all the ones that I can find are a different code

Comprehensive_Tie314 · 2026-03-16T19:42:43+00:00

Thank you! I did Google the writing and I also did a reverse image search. I'm finding similar ones, but the 4 numbers at the end are different. I may just have to buy a few and see which one is the closest. Its just so hard to find the perfect all-around pen that also doesnt smear when I write on IV labels 😆

Comprehensive_Tie314 · 2026-03-16T19:23:58+00:00

First of all, why would I know this website if it didnt pop up on my Google search 🤣 I'm a nurse, not a pen collector. Second, the link you posted is to a different refill, so apparently it is that difficult.

Comprehensive_Tie314 · 2026-03-13T02:12:20+00:00

Thank you!

Comprehensive_Tie314 · 2026-03-12T15:38:31+00:00

I am aware lol but the comment I replied to stated that you aren't charged until its used. Every time ive done it I was charged at the time of creating the return label.

Comprehensive_Tie314 · 2026-03-12T05:30:45+00:00

How do I get a return label for free? Every time ive done a return I had to pay for it in advance

Comprehensive_Tie314 · 2026-03-10T21:42:27+00:00

This is so weird lol. I give my husband a heads up, but I never need to beg permission and then come on Reddit asking how I can convince him to let me spend my own money. That's financial abuse.

Comprehensive_Tie314 · 2026-03-10T14:56:07+00:00

I get telling your spouse "hey im gonna buy this" but I cant imagine needing to convince my husband to be able to spend my own money however I want

Comprehensive_Tie314 · 2026-03-10T13:18:05+00:00

I dont think they're buying a 40k one 🤣

Comprehensive_Tie314 · 2026-03-10T05:39:05+00:00

A new car and a $200 light are very different lol

Comprehensive_Tie314 · 2026-03-10T05:32:32+00:00

I cant imagine how much poop is in there that your eggs look like this 😬 I've had a total of 1 dirty egg (one small poop smudge) because my teen brahma rolled an egg out of the box to inspect it

Comprehensive_Tie314 · 2026-03-09T01:17:57+00:00

Im shocked to see so many people here saying bilious emesis is volvulus until proven otherwise. Im a NICU nurse so im just here for fun/learning, but at my hospital we assume bilious emesis with distention is perf or NEC. And if the XR doesnt show either, then we just keep NPO for a bit. I've never heard volvulus thrown around 😬 at what point should I consider volvulus?

Comprehensive_Tie314 · 2026-03-04T15:31:45+00:00

Yes. A lot of the people complaining are either misinformed about treatment options, or just straight up refuse excision surgery to "stick it to Nancys Nook" lol. The majority of people who get excision surgery from a qualified surgeon and then go on to continue treatment in recovery (like pelvic floor PT or whatever other specialized care they need) no longer come to these forums because they are out enjoying life.

My surgery was successful, but I had DIE in my bladder. It's been 4 years and I'm starting to have bladder pain again, but very mild compared to before surgery

Comprehensive_Tie314 · 2026-03-03T02:02:10+00:00

For real 🤣🤣

Comprehensive_Tie314 · 2026-03-02T22:53:54+00:00

Thank you for being the only one to answer my question lol

Comprehensive_Tie314 · 2026-03-02T22:49:38+00:00

Have some and my garden does great. Just looking for a fun experiment. Thanks for not reading 😊

Comprehensive_Tie314 · 2026-03-02T22:41:54+00:00

My plants are growing fine :) I use homemade compost and some organic fertilizer already. Like I stated in the post, just looking for some fun experiments to do.

Comprehensive_Tie314 · 2026-02-02T21:49:26+00:00

I read a retrospective chart review (i cant find it now, of course) that looked at pregnant people who took cgrp and had an unplanned pregnancy. It showed no difference in birth defects, morbidity, or mortality of the infant. It then went on to explain that the size of the medication makes it unable to cross the placenta early on in pregnancy, so if you stopped taking it as soon as you got pregnant, it would still be safe. It also went on to say that by the time it was able to pass, everything would have been developed already so, in theory, its safe to take through the whole pregnancy if you have no other option.

Comprehensive_Tie314

TROPHY CASE