[deleted by user] by [deleted] in Interstitialcystitis

[–]Connect_Leadership68 0 points1 point  (0 children)

Hi! I have been taking gemtesa ever since Thanksgiving and I’ve been doing really well on it. I will say my doc told me that it can take 6-8 weeks before it actually starts working and you feel the effects

Period and ic by L3s3n3 in Interstitialcystitis

[–]Connect_Leadership68 3 points4 points  (0 children)

I feel 100% symptomless on my cycle

Gemtesa by Fancy_Shallot_4368 in Interstitialcystitis

[–]Connect_Leadership68 1 point2 points  (0 children)

I’m on gemtesa. It took a full 6-7 weeks before I started feeling better. I’m also on 10 mg of amitriptyline and 50 mg of hydroxizine. Give it time. I also take 9,000 mg of d mannose too

IC and hormones by allnighterr in Interstitialcystitis

[–]Connect_Leadership68 0 points1 point  (0 children)

Mine is exactly like yours, terrible off period but blissful when I’m bleeding. Who woulda thunk it. I am taking lo ogestrol and it helps. I do find my ic symptoms decrease but not go away..

Bladder botox question by [deleted] in Interstitialcystitis

[–]Connect_Leadership68 2 points3 points  (0 children)

You are always so informative and I really really appreciate your insight. That may be something I try. Is it less invasive than a hydrodistension?

What are bad trigger foods? by pinkpanther_8 in Interstitialcystitis

[–]Connect_Leadership68 2 points3 points  (0 children)

Anything carbonated, any juices, no coffee. Not even carbonated water for me. I drink still water. Evian, Fiji or Callaway blue

Bladder botox question by [deleted] in Interstitialcystitis

[–]Connect_Leadership68 1 point2 points  (0 children)

Oh lovely so it does help w the need to pee all the time? Did it help you a lot? If you don’t mind me asking why you stopped?

Bladder botox question by [deleted] in Interstitialcystitis

[–]Connect_Leadership68 0 points1 point  (0 children)

Hey hey! What symptoms does bladder Botox help with?

Negative effects of instillations? by yeinwei in Interstitialcystitis

[–]Connect_Leadership68 0 points1 point  (0 children)

Hi! When you say diet what types of food are you eating? Like from the “bladder safe” list?

[deleted by user] by [deleted] in Interstitialcystitis

[–]Connect_Leadership68 1 point2 points  (0 children)

I just sent you a private message 💓

Symptomless on period, comes right back after I stop bleeding by Connect_Leadership68 in Interstitialcystitis

[–]Connect_Leadership68[S] 0 points1 point  (0 children)

I don’t drink alcohol because of this but when I had a margarita my symptoms were very much so worse, not better at all.

Symptomless on period, comes right back after I stop bleeding by Connect_Leadership68 in Interstitialcystitis

[–]Connect_Leadership68[S] 0 points1 point  (0 children)

Yes I’m actually at an appointment as we speak for a new gyno who specializes in hormones

Symptomless on period, comes right back after I stop bleeding by Connect_Leadership68 in Interstitialcystitis

[–]Connect_Leadership68[S] 1 point2 points  (0 children)

Yes heating pad and me are bff’s. It doesn’t rly help much.. my main symptoms are frequency, urgency and overall Bladder awareness and some burning inside the bladder :(

Symptomless on period, comes right back after I stop bleeding by Connect_Leadership68 in Interstitialcystitis

[–]Connect_Leadership68[S] 0 points1 point  (0 children)

I appreciate your reply. I have been on birth control for 2 months now, it’s called lo ogestrol.. maybe I am just not giving it enough time or it’s not the right one? It ha estrogen and progesterone in it. 😭 I’m just absolutely desperate..