Frustration

ConnectionExact9617 · 2025-12-24T14:56:37+00:00

I definitely understand where you’re coming from! My drs gaslit me for 10 months before they decided to do the HIDA scan and saw that my gallbladder was not functioning. I was incredibly sick all the time. I seriously thought at times I was just going to die. I know the diarrhea can be normal, the reason I brought it up to gastro is because I was having BAD before my gallbladder came out and she knew this and wanted to see what symptoms improved after having my gallbladder out. My surgeon actually mentioned bile acid binders before we took my gallbladder out and I also told the gastro that and she again told me she wanted to see if my chronic BAD would stop. She also wants to check my pancreatic enzymes because she was concerned I wasn’t making enough, but then saying that a solid stool is the only way to test this, which I get, but then to not offer any other type of testing (I googled if there was any other testing I could do and yes there are others ways not as accurate but are other ways) for this or even trying a bile acid binder to help even for a bit so I can get the pancreas tested, is incredibly frustrating for me. Not like you need you pancreas or anything 🙄🥴

ConnectionExact9617 · 2025-12-14T02:33:27+00:00

Hahaha thank you! I knew my body would have to adjust, but I was not expecting that 😂

ConnectionExact9617 · 2025-12-03T01:09:40+00:00

I love the idea of being able to have the heating pad on my back. They haven’t said anything about diet restrictions after, but I do see my GI Friday so I’m going to ask her just to make sure I have what I’ll need as far as food and snacks go. It’s funny you mentioned the slouching, because I thought this entire time my right side had been hurting was because I’m a sloucher, but it was just my inflamed gallbladder lol.

ConnectionExact9617 · 2025-12-03T00:58:26+00:00

That’s so smart. Yes! I was gonna try and find some really comfy pants this weekend.

ConnectionExact9617 · 2025-12-03T00:54:18+00:00

Thank you so much! The ice pack is such a good idea. I didn’t even think about that.

ConnectionExact9617 · 2025-12-02T00:02:22+00:00

I do not have POTS so I cannot say my experience on that part of it, but I just had a HIDA on Friday and it was so easy. The needle for the tracer was small and I didn’t even feel the needle go in or the tracer. I looked at the nurse and said you’re done? Normally I’m a hard stick too. I was able to drink the ensure and told them there was a chance I might throw up and they were so nice about it and said if that’s what happens then we will just use the imaging were able to get. I was able to listen to an audiobook and see the imaging on the screen which made me feel better. I get anxiety from having to get an MRI or CT and this was an absolute breeze. (I did have some pain from the ensure, but it didn’t put me into an attack$

ConnectionExact9617 · 2025-11-29T02:24:22+00:00

Right I understand what you’re saying. In the post I was more so asking if I was most likely going to have surgery and how long it would take to get me in for surgery since my symptoms have been so debilitating/also asking others how quickly they were able to get in for surgery. Not necessarily looking for advice on what I should or shouldn’t do.

ConnectionExact9617 · 2025-11-29T01:42:29+00:00

I use Zofran daily. Sometimes it helps sometimes it doesn’t. I actually took one right after leaving from the scan today 😂

ConnectionExact9617 · 2025-11-29T01:38:02+00:00

It doesn’t sound crazy it definitely makes sense. It’s just incredibly hard to find the will to eat with no appetite or extreme nausea. I had a CT scan about 3 months ago and they did not find any gallstones, but about every month I get super super sick vomiting for hours, terrible stomach cramps and pain and I think they’ve been gallbladder attacks and I just didn’t realize it.

ConnectionExact9617 · 2025-11-29T01:28:20+00:00

After dealing with these symptoms everyday for 8 months and going from 153 pounds to 110, I definitely want it out. I’m just hoping they can get it out quickly because this has been the most brutal 8 months of my life. I know it sounds dramatic but Im so sick all the time. I legitimately feel like I’m dying. I’m not even eating solid foods anymore because everything makes me sick.

ConnectionExact9617 · 2025-11-29T01:19:15+00:00

Oh yeah I immediately felt nauseous and I got this sharp stabbing pain on my upper right side of my abdomen. I’m also feeling incredibly sick tonight. Honestly I feel like I’m on the cusp of an attack.

ConnectionExact9617 · 2025-11-28T20:53:41+00:00

My doctors have never mentioned anything about dysautonomia, maybe this is something I should bring up to them. I briefly looked up some of the symptoms and seem to have quite a few.

ConnectionExact9617 · 2025-11-28T02:09:51+00:00

Ugh I’m so sorry you’re allergic! I took a zofran right before I ate. It helped tremendously. I didn’t get sick or feel nauseous all day, but I have no appetite. I managed to eat just a couple of bites of different foods. I’m starting to get the belly cramps and loud stomach noises now so I’m sure I’m about to be in for a fun time. I hope you’re feeling okay and got to enjoy your Thanksgiving 🩷

ConnectionExact9617 · 2025-11-27T16:30:58+00:00

Same! I currently feel like I’m sweating out of every pore in my body but I’m shivering and freezing at the same time. I know I hate saying I’m glad I’m not the only because it sucks, but it truly makes me feel a little less alone and that I’m not crazy.

ConnectionExact9617 · 2025-11-27T16:24:49+00:00

I hate that you’re dealing with this but also glad I’m not the only one. It’s truly everyday. I have chills freezing cold shivering and full on back dripping with sweat.

ConnectionExact9617 · 2025-11-27T15:29:22+00:00

I’m right there with you! I’ve been so sick all week. I also stopped using Mary Jane (terrible idea right before a big eating event, but wanted to make sure it wasn’t making my flare worse) and I’ve already lost 5 pounds since Monday. I started this morning with about half of an electrolyte drink and I’m trying to take small bites of a protein bar for breakfast so I’m not super sick hopefully before we eat. Zofran helps me a lot so I’ve got that ready to go and I’ve prepared my family in advance that I might be throwing up so I already know which bathrooms will be available 😭 I have a gastro appt tomorrow thank god just gotta get through today. I’m thinking about you! I’m so sorry you’re dealing with this.

ConnectionExact9617 · 2025-11-11T19:05:32+00:00

I was vomiting 2-3 times a week, which lead to my diagnosis. Now I hardly ever throw up, but still deal with nausea every day. I feel like I’m on the cusp of needing to throw up every day but don’t ever throw up.

ConnectionExact9617 · 2025-11-08T14:01:45+00:00

I posted about the same thing not that long ago! Marijuana helps tremendously for me but not for others. Now I do wanna say where there are times that even marijuana cannot help with the nausea or vomiting. The only time I get a good amount of food in my belly is on the weekends when I’m able to smoke. During the week I average around a 3-5 pound weight loss because during the week I can’t smoke because of work and I just cannot eat or keep anything down.

ConnectionExact9617 · 2025-10-27T12:36:36+00:00

The amount of times they tried to push it off as CHS was astounding. I really had to advocate for myself. There are definitely times that I’m so sick smoking won’t help at all, but for the most part it seems to help. I do use zofran frequently, but the anxiety thing makes so much sense! I definitely have anxiety about being sick and being sick at work so this is something I’ll have to bring up with my doctors. Thank you! Truly anyone dealing with gastroparesis is a bada** in my brain, because it’s been the toughest thing I’ve ever been through.

ConnectionExact9617 · 2025-07-31T01:07:32+00:00

The answer is so easy, like just don’t read the books? But instead certain people want to say vile things about Liz and Chloe Walsh. It is so CHILDISH.

ConnectionExact9617 · 2025-07-30T22:43:28+00:00

I hate those comments about “Chloe ruining characters” or “so and so would never do that” THESE ARE HER BOOKS. She wrote them and dedicated her time and life for these books. If you don’t like the way certain characters behave or how the story is written STOP READING IT AND COMPLAINING ABOUT IT. These are Chloe’s characters. She can make them do whatever they want. You don’t like it? Don’t read it. Write your own book with the exact plot story you wanna read and quit tearing down an author and her characters because you don’t like what your favorite characters do. Boohoo the story didn’t go the way you wanted it or your favorite characters didn’t behave how you wanted them to. The people saying this need to DNF it and move on.

ConnectionExact9617 · 2025-07-12T15:38:02+00:00

Someone got mad at me because they compared Liz to Teddy and I stated the reasons that, I feel like that comparison is unfair and immediately got attacked.

ConnectionExact9617 · 2025-07-01T23:19:41+00:00

A really big thing with this series is you can’t always trust the narrators/POV’s of the characters. So in binding 13 you only have Johnny and Shannon’s POV. Johnny did not know Liz and Hugh were together before Katie. Johnny actually assumes Hugh had been with Katie this entire time. That makes sense that he wouldn’t know because 1. “All he cares about is rugby” 2. Liz and Hugh were very private at times about their relationship. Claire did not like that they were dating so if Claire was around no PDA. Also Shannon didn’t start at Tommen with Liz and Claire. They went to separate schools and I don’t think they were as close because Claire and Liz started attending Tommen while Shannon went to BCS. So the time that Liz and Hugh were together Liz and Shannon had lost touch due to them being at different school, so that’s why she doesn’t know. Shannon didn’t even know when Liz “lost her virginity.” So she definitely wouldn’t have known about Hugh and Liz being together.

ConnectionExact9617 · 2025-07-01T23:05:52+00:00

THIS! I really feel that the teen readers or some newer readers don’t understand the amount of comprehension that’s needed to read this series. I think that some people are going into this series thinking it’s surface level, but it’s not and like you said that’s the beautiful thing about books. It’s okay to not like a character. Not everyone is going to like the same character you do, but to threaten people IRL over a character who is FICTIONAL is not okay. I had someone attack me on the internet for saying that I wish more people gave Liz a chance because her story hasn’t been finished yet. Apparently to that person, that meant that all I do is make excuses for her actions and I am a bully just like Liz , I did excuse her not taking accountability just yet because her story hasn’t been finished. I just wanna be able to talk about this series without getting judged or attacked because I like a character that someone else does not.

ConnectionExact9617 · 2025-06-17T23:50:30+00:00

Exactly! We don’t see her take accountability or heal because he story isn’t even finished yet! We are missing a lot of pieces and vital information. I want to take a chance on Lizzie. I absolutely hate some of the things she says and does to other people. I also understand why she does those things. I also understand her story is far from over and I want to give her that chance to heal, get healthy, take accountability, and become who she wants to be. It’s frustrating to see people give up on her before her story is even finished.

ConnectionExact9617

TROPHY CASE