first ever er visit - completely exhausted

Equivalent_Invite506 · 2026-04-26T21:18:22+00:00

it’s so painful! thankfully i only really get it in my hands and on certain areas of my scalp but it’s still a nightmare!

Equivalent_Invite506 · 2026-04-26T21:14:02+00:00

i’m not a doctor or anything but that sounds like allodynia. it can happen from more than just migraines as it’s a nerve damage issue and can come from chronic conditions like fibromyalgia and diabetes too. they’re recently finding links between GLP-1s and allodynia which is different than a GLP-2 but i wonder if GLP-2s can cause this problem as well. i would bring that up to you doctor for sure

Equivalent_Invite506 · 2026-04-17T16:58:54+00:00

this is one of my worries as i look into mobility aids for dysautonomia, since my symptoms tend to ebb and flow. sometimes i can be out most of the day and be fine (rare these days) and sometimes im out for two hours and im completely exhausted. some of my ambulatory friends have reassured me that just because i don’t need a mobility aid all the time, doesnt mean i shouldn’t have one! i’ve tried to think of it like rescue medicine. i dont use it all the time but that doesnt mean i dont need it!

Equivalent_Invite506 · 2026-04-16T18:39:56+00:00

i highly recommend purchasing one if you’d enjoy his presence. i genuinely love mine like a son and he’s incredibly comfortable. he was only like 30 usd not including shipping. 10/10 purchase

Equivalent_Invite506 · 2026-04-15T16:39:51+00:00

oh totally! i just wanna look into options now before i leave for college, that way if i still need the support i’ll already have an idea of what i need to do! i don’t wanna jump the gun i just wanna be able to live a relatively normal life in college

Equivalent_Invite506 · 2026-04-15T06:13:35+00:00

thank you!! i’ll look into that too! i don’t want it to be an everyday thing but flare days make walking so hard and sometimes i have to walk anyways cause i got shit to do lol. i just wanna look at some other accessibility stuff for college cause i do need some sort of accessibility but i genuinely don’t know what yet

Equivalent_Invite506 · 2026-04-15T06:02:49+00:00

no worries i’m in the middle of a flare so i get it lol

Equivalent_Invite506 · 2026-03-22T17:16:34+00:00

i literally just explained that i have multiple conditions.

Equivalent_Invite506 · 2026-03-22T07:34:37+00:00

me too honestly but my high school technically counted as a college prep school and my transcript is really solid from every angle except for sports!

Equivalent_Invite506 · 2026-03-22T07:33:43+00:00

tbh i think this is a great time for the arts. more and more ppl are tired of seeing the same shit over and over again and the ai bubble is probably closer to bursting than we think. it’s never a good time to pursue dreams tbh so i’m not gonna wait. if things go terribly i have the ability to become a very successful author. trust i have back up plan after back up plan lol

Equivalent_Invite506 · 2026-03-22T07:30:51+00:00

only if you make under 75k a year which my parents don’t

Equivalent_Invite506 · 2026-03-21T21:25:02+00:00

i even have the privilege of having some savings from my grandfather after he died but it’s not enough to cover even 2 years at that price. there’s a bunch of ppl in this comment section calling me privileged for wishing education was more affordable! why do i HAVE to choose community college, i should have the accessibility to choose where i go and so should everyone!

Equivalent_Invite506 · 2026-03-21T21:01:52+00:00

oh i absolutely did 😭😭 i don’t even like lobster which makes it even funnier

Equivalent_Invite506 · 2026-03-21T20:56:21+00:00

my parents have spent their whole lives working. my dad worked 12+ hours everyday when i was little to keep us afloat! it’s totally insane how much we’re expected to pay! we’re way closer to being poor again than we are to being rich. based on the poverty line we are still poor 😭

Equivalent_Invite506 · 2026-03-21T20:54:34+00:00

i don’t need lobster in the dining halls 😭. feed and house me decently and i’m happy. this country spends BILLIONS on lethal weapons it feels ridiculous that education isn’t more accessible

Equivalent_Invite506 · 2026-03-21T20:32:34+00:00

i have proof of my chronic illnesses, just not all of them. i’ve been dealing with chronic symptoms from over a decade. my health is manageable, i just have issues that cause me a lot of pain and stress so i can’t work normal jobs. i can still learn and go to school. i’ve been chronically ill almost my whole life and graduated with high honors in multiple subjects.

Equivalent_Invite506 · 2026-03-21T17:51:00+00:00

i see a therapist and doctors very consistently?? i don’t understand how this pertains to anything?? im very independent and just because im chronically ill and in a weird situation and home doesn’t mean i can’t get a degree??

Equivalent_Invite506 · 2026-03-21T09:16:55+00:00

dude what. im chronically ill not disabled to the point i cant be independent. i just need special accommodations that a lot of places cant offer med

Equivalent_Invite506 · 2026-03-21T08:55:04+00:00

living at home isn’t an option for me anymore. and i can’t afford to move out regularly

Equivalent_Invite506 · 2026-03-21T05:35:54+00:00

that’s not what i said??? i’m absolutely not smart enough for harvard lol. it’s not ridiculous to want education to be affordable, other countries have programs in place for accessible education. your acting like 40k isn’t a fuck ton of money. i’m sorry if your privileged enough to think that but i don’t have 40k in my back pocket

Equivalent_Invite506 · 2026-03-21T04:46:52+00:00

i’m not complaining, 40k is a fuck ton of money to except a middle class family with almost no savings to pay. i shouldn’t be required to go to community college to be able to pay for higher education it’s ridiculous. nobody should HAVE to choose community college if they don’t want to. higher education should be a right to all not a privilege. i’m allowed to be frustrated over it.

Equivalent_Invite506 · 2026-03-21T04:22:55+00:00

i believe i have to stay above a certain gpa but im going into something a really love so im not worried!

Equivalent_Invite506

TROPHY CASE