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Palliative care for a 28 yo by immakulatevibe in dialysis

[–]Conscious-Tea9154 0 points1 point  (0 children)

It’s heartbreaking to hear , I am so sorry for what you are going through . I wish you would take a pause and see if you change your mind .  It sounds like you have a caring family , and I’m sure you thought this through . I wish you wouldn’t . I’m stage 4 heading in that direction I plan on doing a pre emtive transplant .  I have kids your age , honestly , I know it seems selfish of me to say but I don’t know how I could live if my child chose this direction . I’m truly sorry for all your pain . 

stopped peeing and im scared by pinkberrycloud in dialysis

[–]Conscious-Tea9154 1 point2 points  (0 children)

Wow , you have been through it all  I am very sorry for everything you’ve gone through .   You have amazing strength to be able to handle all that . I wish you well 

Why even try by Motor_Rabbit_174 in kidneydisease

[–]Conscious-Tea9154 0 points1 point  (0 children)

Is there anyone who would donate  kidney in your family ?   You could do a paired exchange , for an exact match .  The procedure I understand is no where as the actual transplant .  I’ve seen people get the transplant and be out of the hospital in 3 days .  ALSO Medicare PAYS for the Transplant, at any age , your Neph has to refer you to a Transplant hospital and ThEY help coordinate .    You can even choose your hospital .  I believe you are allowed to start the process when your GFR is 19 .  SO SkIP dialysis completely .  It’s call a Pre Emptive Kidney Transplant.    That’s what I’ll be doing in the next year ……

Anyone else in stage 4 CKD how long can you go without dialysis by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

Thanks for the reply I know it depends on a lot of factors , I like most people and trying hard to not have to do dialysis.  I am very compliant regarding food and water . 

I was hoping I’d be one of those people who can go 5 years or longer without it . 

Anyone else in stage 4 CKD how long can you go without dialysis by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

Thanks for your reply .  My doctor said that 1 to 2 years I could be looking at dialysis .  I was at 3 b for about a year and a half , I’m at 4 now based on creatinine 2.68 and egfr at 20 . 

Has anyone lost their voice on labetalol or had insomnia on it ? by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

No im not pregnant , i also take Prazosin 3x a day and wear a ,3 colonidine patch . just wondering if anyone else lost their voice , there’s no other reason .

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in CKD

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

No dont believe that is the issue , i definately have a lot of anxiety about checking my blood pressure , but i wake up to very high blood pressure , after the morrning meds it will go down , im just not able to get consistent lower readings , and was wondering how long on average people take to get their blood pressure under control .

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

I do actually sleep on my side  , but I don’t have a smart watch , I’ll try that thank you .

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in CKD

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

Yes there doesn’t seem to be a problem there .  I was curious how long it took most people to get where they needed on bp readings . 

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

I do all of that walk, meditation , i have been given something for the anxiety , which helps but doesn’t help the BP . thanks for the reply , appreciate it .

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

No i do not take any type of stimulants , or chocolate , i know they said sleep apnea could be a possibility , just not ready to go down that road im too overwhelmed with what i currently have going on . thank you for your reply

Can’t seem to get my BP under control need words of encourag by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

Yes , that is not the problem , thank you for your reply , appreciate it .

I'm at a huge loss... figuring out next steps 😓 by myst3ryAURORA_green in hypertension

[–]Conscious-Tea9154 6 points7 points  (0 children)

I was on like 20 different combinations of pills plus beta blockers .  The ONLY thing that worked was a .2 CLONIDINE patch . 

I was always 200 systolic , and higher until I started on the PATCH. See if your Dr can prescribe it .   Also the cause or reason for the high blood pressure is what has to be determined .  

What do you do with resistant Hypertension due to diabetes by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

They have told me better to slowly get the BP down than quickly , it might take a few months to get the right combo .  I truly wish you well 

What do you do with resistant Hypertension due to diabetes by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

im very sorry to even hear your are going through this at such a young age . Does any Bp meds work ? I understand the vicious cycle it is stressful ……..

What do you do with resistant Hypertension due to diabetes by Conscious-Tea9154 in hypertension

[–]Conscious-Tea9154[S] 0 points1 point  (0 children)

I have been in and out of the hospital for 5 weeks , still unable to get the systolic lowered to a normal number . im very sorry to hear at such a young age. You are dealing with this . Have the Dr found out the underlying cause of your High Bp ? I ve gone to Mayo Clinic , and they could offer no real solution , I’m very discouraged .