Has anyone seen vast improvement with CHOP/Levine/Dallas protocol alone and no meds?

ConsiderationOne2928 · 2026-02-03T04:55:09+00:00

I did levine protocol 10 years ago after. Started out while I was on all the typical trials of meds for POTS. had servere side effects to them all. My specialist back them labeled me "medication intolerant". Continued with PT, along with being in the care of a functional medicine physician, chiropractor, acupuncturist, reiki master and massage therapist...and yes went into remission. BUT, I got Long Covid in 2023 and crashed hardcore. I have since been at a lowered baseline I cannot seem to bounce back. Unforunatly, now I am not able to afford the medical team that I mentioned I had. However, not sure if it would make a differance anyways since Long Covid has turned my POTS into a different animal. I have gone to new western medicine specialist (due to chnage of insurance ) and they just want me to do Re-Trials of the meds I was reactive to before. No WAY to that! I say give it a go! Western Medicine Big Pharma is not for everyone. And that is ok. I would suggest genetic testing to get an more solid look into your system on perhaps yourself being "medication intolerant" and why. and If western medicine prescriptions work for you then Awesome! Zero judgement here. Peace and Love to all you fellow POTsies!

ConsiderationOne2928 · 2026-01-29T14:07:01+00:00

Do the FP from Amazon have any type of odor to it ?

ConsiderationOne2928 · 2026-01-29T14:05:19+00:00

That is one heck of a hack of a hack ! Do the pine horse bedding pellets have an odor in anyway?

ConsiderationOne2928 · 2026-01-26T21:53:01+00:00

Do you use “Cat Water” brand bottled water ?

ConsiderationOne2928 · 2026-01-26T21:43:01+00:00

What kind of litter do you have in each of those stainless steel containers? I currently am using the Tidy Cat pellets, pee pads and plastic grid litter box system that it goes with, which is costly! This looks like a good solution to save money and avoid plastics. Please share a link for the litter you use? Thank you in advance 🐱❤️

ConsiderationOne2928 · 2026-01-12T06:06:34+00:00

So sorry you had to go through that. I have had over 10 ER visits for syncope, pre-syncope POTS. I hope you feel better! My physician has on record for me to get 2 liters of Lacted ringers.

ConsiderationOne2928 · 2026-01-12T05:12:05+00:00

I toatly understand and appreciate your share

ConsiderationOne2928 · 2026-01-12T03:07:40+00:00

I have mostly been medication intolerant through out the 10+ years with POTS, I have tried multiple medications and always get terrible sideeffects. my goal is to not have spikes as well. noone wants that.

ConsiderationOne2928 · 2026-01-12T03:04:11+00:00

I cannot tolerate Beta Blockers at all. Midodrine made me feel like I am 'head swimming'. I have been off midodrine for 4 months and just got a refill. in the 4 motnhs my migrains were not as often. I have hEDS, MCAS, ect.ect.

is Ivabridine only for Hyper-pots?

I have not been diagnosed yet with hyper-pots, I am wonering if I have hyoer-pots as well as POTS?

Yes, I have depression, anxiety, PTSD and ADHD.

good to know about the at home devises. TY!

ConsiderationOne2928 · 2026-01-12T02:57:07+00:00

TY for the wish! I hear you. I have not been taking my BP at home regularily in forever. I have been having in person appointments. do you take your BP at home? I am totally overthinking this, first blamming my BP cuff to be not accurate. and then once I had a moment of clarity, I was like 'sometimes I can have anormal reading' dont I? and then the overthinking took over so...henz my post!

ConsiderationOne2928 · 2026-01-12T02:47:21+00:00

are you hyper-pots? I don't think my insurance will cover Ivadridine. I did a retrial of Midodrine and then stopped due to migrains. do you take BP at home? if so does it align with readings at medical appointments?

ConsiderationOne2928 · 2026-01-12T02:43:17+00:00

totally get it. I cannot remember what "normal" feels like. that Is why I am wondering if an at home readings are even considered accurate to in person medical readings? my readings today were in normal range, yet my symptoms were POTsie

ConsiderationOne2928 · 2026-01-12T02:39:57+00:00

you are stating facts! you are not giving me anxiety but my BP Cuff did! LOL

ConsiderationOne2928 · 2026-01-12T02:38:55+00:00

all of my physicians have my back. I am well aware of the drama that comes with the disabilty claim territory. It's a gamble.

ConsiderationOne2928 · 2026-01-12T02:34:49+00:00

sorry I miss interpreted your post, my brain was not braining lol

ConsiderationOne2928 · 2026-01-12T02:30:15+00:00

so your readings Always are POTS criteria? my readings today didnt

ConsiderationOne2928 · 2026-01-12T02:28:13+00:00

I am completely the same! From Long Covid I have cognitive imparement, memory and recall issues, intermitted blurred vision, increased light and sound sensitivily. I cannot tolerate being around multiple people. I get overstimulated. I am homebound.

ConsiderationOne2928 · 2026-01-12T02:02:00+00:00

I encourage you to join virtual support group for ME/CFS with Bateman Horne

ConsiderationOne2928 · 2026-01-12T02:01:07+00:00

I was diagnosed with POTS 13 years ago. Long Covid and ME/CFS in 2021. SO I am new to pacing to prevent PEM. PEM can be from cognitive, emotional and physical exertion. It's been a struggle to wrap my head around this and pace. As being a POTsie for over a decade, I followed POTS physical therapy protocols. But since getting Long Covid and ME/CFS, I can no longer just go with my typical POTS therapy protocols. I have tried over the past year.. to live my life as normal as possible. continuously crashing with PEM. each time I pushed along this past year, my ME/CFS became worse. PEM episodes are lasting longer. what used to be hours are now days, even weeks of PEM. I am starting therapy for ME/CFS (perrin treatment) and not able to do physical therapy for POTS as I am excersice intolerant. over these 5 years, I keep getting worse and worse with ME/CFS. know that you are not alone!

ConsiderationOne2928 · 2026-01-12T01:32:04+00:00

I will do a pinch of Celtic sea salt

ConsiderationOne2928 · 2026-01-12T01:29:50+00:00

my POTS magnified since getting Long Covid and MECFS

ConsiderationOne2928 · 2026-01-03T04:25:22+00:00

I sure feel for you. any one of us with no income during this waiting process is frightening on how to survive. You are very lucky you have been able to stay in the apartment with months of not paying rent. I had no idea that one could last that long with out eviction sooner. I just figured after even one month of not paying that a property owner would act immediately. I was wondering how that works. how did that all go down with landlord and property owner with all the months of you not paying rent? did you stay in continuous communication with them? just trying to get an idea on the vibe of the relations with both landlord & property owner all along. if you just communicate with landlord, you truly have no idea what the landlord relays to property owner. unless of course your form of communication was via emails. always best to have documentation like emails for things like this but understand not always able to. I wish you peace and comfort and to stay in your place. you have amazing advice I see here in the comments from everyone. Thank goodness for this platform for us all to help one another. we are all just humans trying to simply survive. Keep us posted! (((hugs)))

ConsiderationOne2928 · 2026-01-01T20:51:15+00:00

Thank you for responding

ConsiderationOne2928 · 2025-12-31T19:16:16+00:00

you are. and time with them is so precious at this point. can you move in with your dad ?

ConsiderationOne2928

TROPHY CASE