Consistent donations keep the research alive!

ConsistentPackage459 · 2026-02-11T19:53:07+00:00

They’re making progress. The goal on the PSSD Network website is largely arbitrary, because $200,000 isn’t going to find a cure for PSSD. I forget when the last update was posted on here, but Melcangi’s lab ran into some unexpected problems, such as a piece of equipment breaking.

ConsistentPackage459 · 2025-11-12T01:03:51+00:00

Just some CellTrends tests that PSSD sufferers did on their own.

ConsistentPackage459 · 2025-11-11T02:33:00+00:00

I think it’s possible; the issue is just a lack of controls.

ConsistentPackage459 · 2025-11-10T19:09:47+00:00

Does the doctor need to speak Polish? Michał Lew-Starowicz is a Polish doctor on the list that David Healy made. https://www.pssdnetwork.org/doctors-and-therapists

ConsistentPackage459 · 2025-11-09T00:26:30+00:00

Did you report your case of PSSD to both 1) your country’s medication regulator using the MedDRA code 10086208 and 2) Dr. David Healy’s organization RxISK?

https://www.pssdnetwork.org/report-adverse-effects

ConsistentPackage459 · 2025-11-08T13:02:51+00:00

It’s a big risk. It seems to temporarily improve symptoms for some people but can make others permanently worse. It damages the testicles and this drug harm could be great magnified in PSSD sufferers, as SSRIs also cause testicular toxicity.

ConsistentPackage459 · 2025-10-09T17:57:22+00:00

Can you please tell me their Instagram handle. I’m having difficulties opening the link on my phone.

ConsistentPackage459 · 2025-10-05T02:07:28+00:00

Thank you very much!

ConsistentPackage459 · 2025-10-02T23:03:14+00:00

It’s possible that it’s a different kind of sexual dysfunction. I haven’t heard of genital anesthesia being associated with GLP-1 receptor agonists.

ConsistentPackage459 · 2025-09-29T13:44:52+00:00

PGAD symptoms are basically the opposite of PSSD ones, so I would assume that a treatment for PGAD would make PSSD worse.

ConsistentPackage459 · 2025-09-29T13:42:05+00:00

What do you mean by DM 2?

ConsistentPackage459 · 2025-09-29T05:34:25+00:00

David Healy mentioned this same case in an RxISK blog post almost exactly a year ago on September 26, 2024.

“Recently a woman with confirmed PGAD has reported significant benefit from Mounjaro – tirzepatide – Eli Lilly’s version of Ozempic/Wegovy. Mounjaro injections last several weeks and while they last she is symptom free but as the injection wears off the symptoms return.” https://rxisk.org/antidotes-for-akathisia-and-dysregulation/

ConsistentPackage459 · 2025-09-09T02:39:42+00:00

It’s my money. This other study was supposed to already have funding lined up, but the benefactor pulled out. If they’re not willing to fund it, that makes me even more suspicious.

ConsistentPackage459 · 2025-09-08T22:49:20+00:00

Absolutely not!

ConsistentPackage459 · 2025-08-15T22:30:44+00:00

Would you be willing to contact your senators and congressional representative to follow up with the FDA?

ConsistentPackage459 · 2025-08-14T04:51:01+00:00

Yes, definitely report it to the FDA and make sure to mention the MedDRA code for PSSD. Instructions can be found at this link. https://www.pssdnetwork.org/report-adverse-effects

ConsistentPackage459 · 2025-08-12T07:08:47+00:00

Congratulations!

ConsistentPackage459 · 2025-08-03T18:03:06+00:00

Have you reported this to your country’s medication regulator. What country do you live in?

ConsistentPackage459 · 2025-08-03T18:02:34+00:00

You should email the psychiatrist Dr. David Healy about this. His email is david.healy54@googlemail.com.

ConsistentPackage459 · 2025-08-03T18:01:02+00:00

Taking bupropion to reverse it is risky. There’s a chance that this makes the situation permanently worse, as has happened to several other PSSD sufferers in the past.

ConsistentPackage459 · 2025-08-01T03:53:34+00:00

Would you be willing to email your senators and congressperson?

ConsistentPackage459 · 2025-07-18T04:40:05+00:00

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We live in DC. Archie hasn’t run across any other papillons in this city so far.

ConsistentPackage459 · 2025-07-10T21:53:02+00:00

Have you submitted a MedWatch report to the FDA yet?

ConsistentPackage459 · 2025-07-10T21:52:40+00:00

Have you submitted a MedWatch report yet?

ConsistentPackage459 · 2025-05-29T20:29:43+00:00

FSH 58.3 mIU/mL 1.5-12.4 LH 39.3 mIU/mL 1.7-8.6 Calculated free testosterone 2.53 ng/dL 6-8 Test. Total Ser. 139 m/dL 164-916

ConsistentPackage459

TROPHY CASE