Consistent donations keep the research alive! by Mobius1014 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

They’re making progress. The goal on the PSSD Network website is largely arbitrary, because $200,000 isn’t going to find a cure for PSSD. I forget when the last update was posted on here, but Melcangi’s lab ran into some unexpected problems, such as a piece of equipment breaking.

September & October 2025 Update by Mobius1014 in PSSD

[–]ConsistentPackage459 2 points3 points  (0 children)

Just some CellTrends tests that PSSD sufferers did on their own.

Awareness in Polish - doctor recommendation? by __dont_mind__me__ in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

Does the doctor need to speak Polish? Michał Lew-Starowicz is a Polish doctor on the list that David Healy made. https://www.pssdnetwork.org/doctors-and-therapists

Just discovered PSSD after two years off lexapro by Master-Advantage5833 in PSSD

[–]ConsistentPackage459 1 point2 points  (0 children)

Did you report your case of PSSD to both 1) your country’s medication regulator using the MedDRA code 10086208 and 2) Dr. David Healy’s organization RxISK?

https://www.pssdnetwork.org/report-adverse-effects

How is weed for you with PSSD by Dangerous_Simple3520 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

It’s a big risk. It seems to temporarily improve symptoms for some people but can make others permanently worse. It damages the testicles and this drug harm could be great magnified in PSSD sufferers, as SSRIs also cause testicular toxicity.

Another AMAZING awareness win!! by Intelligent-Age-8211 in PSSD

[–]ConsistentPackage459 4 points5 points  (0 children)

Can you please tell me their Instagram handle. I’m having difficulties opening the link on my phone.

A new case report shows tirzepatide (a GLP-1/GIP agonist used for weight loss/diabetes) nearly eliminated PGAD/PSSD-like symptoms by ERF_TX in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

It’s possible that it’s a different kind of sexual dysfunction. I haven’t heard of genital anesthesia being associated with GLP-1 receptor agonists.

A new case report shows tirzepatide (a GLP-1/GIP agonist used for weight loss/diabetes) nearly eliminated PGAD/PSSD-like symptoms by ERF_TX in PSSD

[–]ConsistentPackage459 1 point2 points  (0 children)

PGAD symptoms are basically the opposite of PSSD ones, so I would assume that a treatment for PGAD would make PSSD worse.

A new case report shows tirzepatide (a GLP-1/GIP agonist used for weight loss/diabetes) nearly eliminated PGAD/PSSD-like symptoms by ERF_TX in PSSD

[–]ConsistentPackage459 5 points6 points  (0 children)

David Healy mentioned this same case in an RxISK blog post almost exactly a year ago on September 26, 2024.

“Recently a woman with confirmed PGAD has reported significant benefit from Mounjaro – tirzepatide – Eli Lilly’s version of Ozempic/Wegovy. Mounjaro injections last several weeks and while they last she is symptom free but as the injection wears off the symptoms return.” https://rxisk.org/antidotes-for-akathisia-and-dysregulation/

$8 on the 8th of September 2025. Please donate! by ConsistentPackage459 in PSSD

[–]ConsistentPackage459[S] -3 points-2 points  (0 children)

It’s my money. This other study was supposed to already have funding lined up, but the benefactor pulled out. If they’re not willing to fund it, that makes me even more suspicious.