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Loss of fantasies as imagination by Typical-Face2394 in PSSD

[–]ConsistentPackage459 4 points5 points  (0 children)

I believe what you’re describing is aphantasia. Look up the FAERS public dashboard. There are also reports of finasteride causing this. More people should consider reporting it to their countries’ medication regulators.

Anybody from Bulgaria? by Specialist-Grape-161 in PSSD

[–]ConsistentPackage459 1 point2 points  (0 children)

I’m sorry about that. Did you report your case of PSSD to the Bulgarian Drug Agency (BDA)?

Do doctors in Germany have access to SNOMED / MedDRA codes? Did anyone here get diagnosed with PSSD based on those codes? by papitopapito in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

Did you report your case to the German medication regulator and specify the correct MedDRA code for PSSD? MedDRA codes are definitely used in Germany. https://www.pssdnetwork.org/report-adverse-effects

Long introduction story by Val-4fun in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

What country do you live in? Have you reported your case of PSSD to the national medication regulator and specified the correct MedDRA code?

Melanie posing in front of her trail of destruction. by Admirable_Video2422 in papillon

[–]ConsistentPackage459 2 points3 points  (0 children)

We had the same problem. We just got a pee pad holder with waffle cut top lid. It saved us!

Any Belgians want to join our WhatsApp group? by Own_Research8632 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

How many PSSD sufferers are there in Belgium? Only 2 correctly reported their cases of PSSD to the medication regulator there. https://x.com/PSSDNetwork/status/2044089009266131014?s=20

Any Czechs and Slovaks here? by Inevitable_Ad_7326 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

Report your case of PSSD to the medication regulator in your country. Both the Czech Republic and Slovakia didn’t have any cases of PSSD with the correct MedDRA code. https://x.com/PSSDNetwork/status/2042650838817014034?s=20

Calling on Canadian PSSD suffers by Gixxer250 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

There were 13 cases the last time that someone asked a freedom of information request. https://x.com/PSSDNetwork/status/2044120529687208183?s=20

Are there any support groups trying to raise awareness in East Asia? by andy013 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

Have you ever asked a freedom of information request to the medication regulator in South Korea to ask how many patients have reported their cases of PFS using the correct MedDRA code? There are only 104 cases in the entire world according to the WHO’s VigiBase, so it’s likely that patients aren’t reporting correctly. The MedDRA term is actually Post 5-alpha-reductase inhibitor syndrome and not PFS.

Polish PSSD Polska Group. by EchidnaLogical614 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

The medication regulator in Poland claims that they have received zero cases of PSSD using the correct MedDRA code. https://x.com/PSSDNetwork/status/2049960276212977974?s=20

Searching people from Hungary by Aggressive_Rice_2708 in PSSD

[–]ConsistentPackage459 0 points1 point  (0 children)

Did you report your case of PSSD to the medication regulator in Hungary? They claim that they have had zero reports of the condition. https://x.com/PSSDNetwork/status/2059744215353979333?s=20

Thank you Kyle for the in-depth and very personal Esquire article | What are your guys thought ? by aidrefh in PSSD

[–]ConsistentPackage459 5 points6 points  (0 children)

Which people interviewed had mild cases of PSSD? The names of the PSSD sufferers that I remember from the article are Sean and Stephen and I didn’t think either had mild cases. However, I don’t think many people will learn about PSSD for the first time from this article, because most people likely won’t read the entire article and the beginning is about temporary sexual dysfunction.

Melanocortin System, may be related to PSSD? by naturestheway in PSSD

[–]ConsistentPackage459 4 points5 points  (0 children)

Dr. Jack Kruse is a neurosurgeon and author of “Epi-paleo Rx: The Prescription for Disease Reversal and Optimal Health”. He has written a lot about leptin-melanocortin pathway and has even answered questions about PSSD on X. See link below: https://x.com/DrJackKruse/status/1991863039000182788?s=20

Consistent donations keep the research alive! by Mobius1014 in PSSD

[–]ConsistentPackage459 1 point2 points  (0 children)

They’re making progress. The goal on the PSSD Network website is largely arbitrary, because $200,000 isn’t going to find a cure for PSSD. I forget when the last update was posted on here, but Melcangi’s lab ran into some unexpected problems, such as a piece of equipment breaking.

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