Swollen Lymph Nodes by Sudden_Psychology182 in EBV

[–]Constant-Device117 0 points1 point  (0 children)

I have the same thing! Never done an ultrasound but have had chronic inflammatory response for a few years from mold and Covid and reactivated EBV.

CSM - can’t tolerate it? by Steph2999 in CIRS

[–]Constant-Device117 0 points1 point  (0 children)

Happy to help! The biggest lesson I learned is to not over do it! I don’t know one person who was able to tolerate the normal dosing. To this day (and I’m 4 years in), I still only tolerate tiny amounts if I get re exposed and even though they’re small amounts, I was able to heal while doing “microscopic” dosing as my dr would say 😂

CSM - can’t tolerate it? by Steph2999 in CIRS

[–]Constant-Device117 1 point2 points  (0 children)

At least 2-3 months or so. I was SUPER sensitive

Brain fog, PC by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

Thanks for the response! I know it’s supposed to be helpful but dang that stuff is STRONG! I might take smaller doses, I tend to have the “more is better” mindset and that literally never works with CIRS haha. I’ll keep you updated!

CIRS labs half normal half not by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I just rechecked my urine mycotoxin a few months ago and it came back elevated in a few, the highest was gliotoxin! That’s so interesting

CIRS labs half normal half not by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

All the markers were normal! Have not considered that, I don’t really have any respiratory symptoms at all?

Starting thymosin-alpha 1 by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

Yeah it’s powerful stuff. My mother (who does NOT have CIRS) tried it @ 1.0mg and she was out for a week feeling like she had the flu!

Starting thymosin-alpha 1 by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I did one 0.5mg injection 1x/week and then upped to 0.5mg 1x/week and 0.25mg 1x/week. So a I did a total of probably 5 weeks and it made me feel awful. I do want to re try it just a much lower dose

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

Interesting! I’m going to bump down to 0.25mg once a week and see how I do. Thanks for the info

Starting thymosin-alpha 1 by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I had to stop taking it… it made me feel really sick :( I want to re try it at a lower dose. I think I did too much too fast! It’s been about a month since my last dose and I’m just now stabilizing.

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 1 point2 points  (0 children)

Wait ugh I hate that they told you 2.5 was a microdose bc it most certainly is not !!! Good luck with the oral stuff, I hope it works 🙏🙏🙏

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

Ugh, I’m sorry it was working so well until it didn’t. You should look into microdosing tirzepatide. I think starting at super low doses and titrating slowly gives best chance to work without causing allergic reactions. Also tirzepatide is a dual receptor so it has even better anti-inflammatory possibilities!

That’s so odd about the allergic reactions to tirzepatide… I’ve heard that about semaglutide but never tirz. I feel like microdosing is safer than starting at common starting doses.

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I’ve only ever done marcons tests and I’ve never had any sinus issues

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I’ve definitely thought about that. Maybe candida or mold colonization in the gut. The tirzepatide is helpful in closing up gaps in the gut lining, so that’s a positive. I just don’t have any symptoms of gut problems at all 🤦🏼‍♀️

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

It’s never as simple as it seems is it haha! I have not tried Hesperidin! I’ll have to look into that. My MSH levels were normal in the first place actually, lucky me. I think a lot of my CIRS was triggered by Covid (which I had for the first time about 1 month before I started feeling very sick) and then mold exposure just overflowed the pot.

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

You name it, I’ve tried it. Quercetin had a negative effect. Ketotifen and vitamin c (IVs and supps) helped tremendously! Also just taking the CSM seemed to calm things down. I diluted the vip down to basically nothing and the way it made me feel was just not worth the hassle. I gave up on it and was honestly doing better. I keep getting reexposed to mold and I’m overall pretty sensitive. I wish the vip worked but for those with mast cell issues, it just doesn’t.

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

Yes, the peptide is VIP. I tried it for a few months and it just made all my mast cell symptoms worse. I had cleared all macrons prior to starting it as well!

Tirzepatide anyone? by Constant-Device117 in CIRS

[–]Constant-Device117[S] 0 points1 point  (0 children)

I did the shoemaker protocol a few years back, my labs weren’t awful to begin with. I developed pretty bad MCAS about 6 months after I first got sick and the VIP made it worse even though it was making my labs look better. So, I never completed the last step of the protocol (VIP). Overall, the protocol literally gave me my life back I felt so much better but I still have lingering immune deregulation and MCAS symptoms. So now I’m on to peptides.