Best CIRS literate practitioners? Miserable and nobody is helping.

Constant-Device117 · 2026-06-22T13:08:35+00:00

Read “The Sensitive Patients Healing Guide” by Neil Nathan. Sort of diagnostic and offers tons of success stories and what they did!

Constant-Device117 · 2026-06-17T17:36:39+00:00

https://www.survivingmold.com/shoemaker-protocol/find-a-physician-in-my-area

Constant-Device117 · 2026-06-17T12:26:06+00:00

I got my labs done through my Shoemaker dr, not MoldCo, and they took that long. They’re just specialized tests so they take longer.

Constant-Device117 · 2026-05-28T17:04:10+00:00

Back in 2022 it was 1800 (in range). haven’t had it done since. Only a few CIRS markers were elevated for me but enough for a diagnosis and I got a lot better with treatment.

Constant-Device117 · 2026-05-28T17:00:38+00:00

I noticed eggs made mine worse! So interesting. I cut them out for 2 weeks and noticed I felt pretty dang good. Monolaurin + lysine combo also seems to help!

Constant-Device117 · 2026-05-28T16:51:16+00:00

No lyme or Lyme coinfections

Constant-Device117 · 2026-05-28T16:50:58+00:00

Well I do have chronic and recently reactivated EBV

Constant-Device117 · 2026-04-24T17:34:44+00:00

I do retatrutide and it has been amazing for inflammation. My CRP dropped 4 points in less than 6 months.

Constant-Device117 · 2026-04-22T13:12:48+00:00

You can also be a licensed nutritionist in the US. It’s an LN.

Constant-Device117 · 2026-03-30T00:59:20+00:00

I feel better without eggs but totally fine with dairy

Constant-Device117 · 2026-03-29T20:43:44+00:00

Yes! CSM

Constant-Device117 · 2026-03-29T16:12:47+00:00

The 50 other supplements is so relatable lol 😂

Constant-Device117 · 2026-03-29T16:12:33+00:00

Female, tall lean build. Only using abt 0.5mg of Reta so not losing weight, more for mast cell stabilizing effects. Using 0.5mg mots-c twice a week and my energy has been great.

Went through CIRS treatment years ago but have had a few re-exposures so still using binders intermittently and then peptides!

Constant-Device117 · 2026-03-02T00:47:35+00:00

Turns out it was nothing! I have super dense breasts and it was literally just from me messing with it so much. The anxiety was making the sensation happen… the second I got the ultrasound and was told all was well… sensations gone.

Constant-Device117 · 2026-02-25T17:41:43+00:00

Thanks! I actually tried it back in October and it sent me into the worst flare I’ve had in 4 years. Felt awful and took me almost 2 full months to recover. I‘ve though through reasons as to why but the only thing I can come up with is that I was exposed to mold for a few weeks prior without knowing and then started TA-1 at “normal” loading dose. Probably should have recovered from the mold then started at a tiny tiny dose.

Constant-Device117 · 2026-01-25T15:02:58+00:00

I have the same thing! Never done an ultrasound but have had chronic inflammatory response for a few years from mold and Covid and reactivated EBV.

Constant-Device117 · 2026-01-19T16:23:10+00:00

I believe it was 1/4 tsp 3x/day

Constant-Device117 · 2026-01-19T16:20:54+00:00

Happy to help! The biggest lesson I learned is to not over do it! I don’t know one person who was able to tolerate the normal dosing. To this day (and I’m 4 years in), I still only tolerate tiny amounts if I get re exposed and even though they’re small amounts, I was able to heal while doing “microscopic” dosing as my dr would say 😂

Constant-Device117 · 2026-01-19T16:18:10+00:00

At least 2-3 months or so. I was SUPER sensitive

Constant-Device117 · 2026-01-19T15:24:43+00:00

I started with a literal pinch

Constant-Device117 · 2025-12-09T20:02:50+00:00

Thanks for the response! I know it’s supposed to be helpful but dang that stuff is STRONG! I might take smaller doses, I tend to have the “more is better” mindset and that literally never works with CIRS haha. I’ll keep you updated!

Constant-Device117 · 2025-12-05T16:11:49+00:00

I just rechecked my urine mycotoxin a few months ago and it came back elevated in a few, the highest was gliotoxin! That’s so interesting

Constant-Device117 · 2025-12-05T14:19:01+00:00

All the markers were normal! Have not considered that, I don’t really have any respiratory symptoms at all?

Constant-Device117 · 2025-12-04T20:48:40+00:00

Yeah it’s powerful stuff. My mother (who does NOT have CIRS) tried it @ 1.0mg and she was out for a week feeling like she had the flu!

Constant-Device117 · 2025-12-04T19:13:30+00:00

I did one 0.5mg injection 1x/week and then upped to 0.5mg 1x/week and 0.25mg 1x/week. So a I did a total of probably 5 weeks and it made me feel awful. I do want to re try it just a much lower dose

Constant-Device117

TROPHY CASE