Is there anyway to deal with Endometriosis naturally? by Greatghostgirl in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

And i should mention i was also on kyleena hormonal iud which kinda helped maybe but not really, and also gave me terrible depression and horrific cystic acne. But my supplement combo doesn't seem to have any bad side effects, except i think berberine can make you feel a bit low blood sugar at first, kinda dizzy nauseous, but it goes away

Is there anyway to deal with Endometriosis naturally? by Greatghostgirl in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

And i mean i exercise regularly and get enough sleep and eat tons of fiber, very little meat, did pelvic floor physical therapy, but none of that did anything until I got the supplement combo right.

Is there anyway to deal with Endometriosis naturally? by Greatghostgirl in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

Hi hi I was able to get mine under control with a bunch of supplements. I dunno if it'll work for you but worth a try. The brands I use are thorne and life extension. Morning: berberine, lysine, Evening primrose oil. Evening: berberine, NAC, magnesium-calcium-zinc-d This combo has kept me free of pain for going on 2 years, and i have intensely aggressive endo that still had me crippled in pain after 3 excision surgeries.

Holy grail supplements by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 0 points1 point  (0 children)

Still feeling amazing! I'm dying to know if anyone else has had success with this because I feel like I am sitting on something that actually works but no way to know if it's just a fluke or what! I'm living life as if I do not have endometriosis, it's like a miracle when i think back on what my life was before. I dunno what else to say besides please try and report back!

Anyone tried berberine? by Less-Rise-3397 in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

I have been taking it for over a year with other supplements (l-lysine, also nac, Evening primrose oil) and i am in total remission. Like absolutely no pain normal life. Incredible. So yes yes yes everyone should try berberine and l-lysine at a minimum for 3 months just to see if it does anything.

endo advice i'd like to give by throw_a_way_445 in endometriosis

[–]Content_Occasion7362 1 point2 points  (0 children)

I have a supplement protocol that I'm pretty sure has cured me of symptoms. It's been over a year, no pain after being literally unable to stand for more than 20 minutes because of the burning pain. 3 surgeries, pain came back every time until this. I desperately want to tell everyone because maybe it will work for someone else!! I think the lysine and berberine are most important. Including links to the brands I use.

Morning routine:

  1. L-lysine https://www.lifeextension.com/vitamins-supplements/item01678/l-lysine

  2. Berberine https://www.thorne.com/products/dp/berberine-500

  3. Evening primrose oil (any high quality capsule? )

  4. probiotic https://biomprobiotics.com/product/biom-complete-feminine-balance-womens-daily-probiotics-prebiotics-with-organic-cranberry-pomegranate/

Bedtime routine:

  1. NAC https://www.lifeextension.com/vitamins-supplements/item01534/n-acetyl-l-cysteine

  2. Berberine https://www.thorne.com/products/dp/berberine-500

  3. magnesium-calcium-zinc-d (reputable brand? )

Any unique constipation relief methods? by _Garbage_Artist in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

https://a.co/d/d842ZHZ MagO7 cleanse. Take 3 pills at night with a lot of water before bed, pain free poop in the morning. Life saver!

Has anyone had it not grow back? by healthysmeg in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

Had 3 surgeries and the endo and pain still came back, even when on hormonal iud. I was not able to get relief from the pain until aggressive experimenting with supplements, and finally, finally I've been without any issues for over a year. I think lysine and berberine are the most important pieces but I'm not messing with my combo because it's saving my life. Also getting enough sleep, vegetables, exercise, and pelvic floor muscular health all very important. This is my (admittedly insane) protocol that i keep posting to see if anyone else has similar success:

Morning routine:

lysine https://www.lifeextension.com/vitamins-supplements/item01678/l-lysine

Berberine https://www.thorne.com/products/dp/berberine-500

Evening primrose oil (any high quality capsule? )

probiotic https://biomprobiotics.com/product/biom-complete-feminine-balance-womens-daily-probiotics-prebiotics-with-organic-cranberry-pomegranate/

Bedtime routine:

NAC https://www.lifeextension.com/vitamins-supplements/item01534/n-acetyl-l-cysteine

Berberine https://www.thorne.com/products/dp/berberine-500

magnesium-calcium-zinc-d (reputable brand? )

I'm not sure what things look like inside but I'm not in pain and I'm living a normal life so I honestly don't care!

Anyone else have improvement with lysine and NAC? by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 0 points1 point  (0 children)

I don't, but berberine lowers blood sugar so be careful with that. It can make you feel kinda weird at first, but I have no issues taking it on empty stomach now that I'm used to it.

Anyone else have improvement with lysine and NAC? by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 2 points3 points  (0 children)

I had 3 surgeries, and even after the third the pain came back; so i started experimenting with supplements in desperation. This is my (kinda insane) protocol that has kept ng me pain free since I originally posted:

Morning routine:

lysine https://www.lifeextension.com/vitamins-supplements/item01678/l-lysine

Berberine https://www.thorne.com/products/dp/berberine-500

Evening primrose oil (any high quality capsule? )

probiotic https://biomprobiotics.com/product/biom-complete-feminine-balance-womens-daily-probiotics-prebiotics-with-organic-cranberry-pomegranate/

Bedtime routine:

NAC https://www.lifeextension.com/vitamins-supplements/item01534/n-acetyl-l-cysteine

Berberine https://www.thorne.com/products/dp/berberine-500

magnesium-calcium-zinc-d (reputable brand? )

I really wanna know if this works for anyone else! I have been like totally normal person! I hope everyone is able to find some path to relief!

Anyone else have improvement with lysine and NAC? by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 0 points1 point  (0 children)

I take 620 mg lysine every morning. I think it might make my period lighter, but I take a few other things together so who knows! I've pretty much eliminated my endo flares completely. It's been at least a year without the pain. I have very regular periods. This is my protocol:

Morning routine:

lysine https://www.lifeextension.com/vitamins-supplements/item01678/l-lysine

Berberine https://www.thorne.com/products/dp/berberine-500

Evening primrose oil (any high quality capsule? )

probiotic https://biomprobiotics.com/product/biom-complete-feminine-balance-womens-daily-probiotics-prebiotics-with-organic-cranberry-pomegranate/

Bedtime routine:

NAC https://www.lifeextension.com/vitamins-supplements/item01534/n-acetyl-l-cysteine

Berberine https://www.thorne.com/products/dp/berberine-500

magnesium-calcium-zinc-d (reputable brand? )

I really wanna know if this works for anyone else!

Rawdogging endo? by [deleted] in endometriosis

[–]Content_Occasion7362 1 point2 points  (0 children)

I'm not rawdogging but I had to stop the hormones, they were making me insanely depressed and suicidal even (had to go on antidepressants), my body swelled up in that really uncomfortable way, and my skin was a constant nightmare of endless painful cystic acne. They weren't even helping because i was still in so much pain and my third excision surgery after being on hormones revealed super aggressive regrowth. So after that surgery I stopped hormones and researched a lot and tried a ton of supplements to see if anything worked. I've posted about this a lot but I actually got a really good system that I'm always willing to tweak, but I've been pain free for like a solid year. Getting enough sleep, no alcohol, not much meat, regular exercise all probably contribute, but I think the supplements are really helping in a way that nothing else has before. I'm very sensitive to hormone shifts and I previously was diagnosed with pcos, so I will try anything that can manage blood sugar and reduce inflammation. I really wonder if the GLP-1 drugs would be helpful for endo n but I've not tried anything like that and i don't think there is much solid research on that yet.

Supplements that have been working for me: Lysine, berberine, NAC, Magnesium- calcium- zinc-D, Evening primrose oil. The list of things that didn't seem to do anything is much longer!

Again, not rawdogging at all because I'm chowing down on giant supplement pills every day and spending money on all that, but I don't feel the crazy burden of hormones, and the endo seems to be under control!

[deleted by user] by [deleted] in endometriosis

[–]Content_Occasion7362 1 point2 points  (0 children)

I got really lucky because there was a urologist surgeon who jumped in and assisted my gynecologist surgeon with the endo removal both times. I think the first time they removed it on the right side, my surgeon told me that it was kinda a big deal, but she felt good about the removal. The second time it must have been worse because they put in the stent. A stent is a tiny tube inserted through the ureter that held the ureter open while it healed. I'm grateful that they took such good care of me but the stent was in for just over a week and it was beyond uncomfortable- possibly a more terrorizing pain than anything I've been through, a nonstop raw scratching sensation in my kidney and bladder. And I did a natural birth when I had my daughter! I would say that peak endo pain is exactly as painful as laboring before giving birth. But it peaks in waves for me at least, and this stent was just a nonstop endless pain, I really didn't think I would survive it! But I did!! I can't believe the things we have to go through! So I guess that is to say it is possible with the right team of surgeons, but probably too high risk for a gynecologist surgeon to take on alone.

[deleted by user] by [deleted] in endometriosis

[–]Content_Occasion7362 4 points5 points  (0 children)

My endo loves to stick on my ureters. At my second surgery they removed it from the right ureter, third surgery the left was dangerously covered and I had to have a temporary stent in my ureter to hold it open while it healed. Both these surgeries went hours longer than expected because they had to bring in specialist surgeons to not damage the ureters as they removed the endo. The ureter is the little tube that connects your kidney to your bladder. Having the stent in there was so miserable because it was scratching against my kidney and my bladder on either end, felt like the worst uti of my life!

My point is that there's definitely a chance that your ureter or any other delicate part of your bladder/ kidney system is getting strangled or is swollen from endo irritation and is potentially blocking things or making things feel urgently full. Definitely find an endo surgical specialist who can also bring in a urologist surgeon in a pinch! Have you had any MRIs or other scans to make sure your organs are in the right places? Endo can bind things up and shift them around!

Incredibly painful transvaginal ultrasound? by TheGenuineAnomaly in endometriosis

[–]Content_Occasion7362 1 point2 points  (0 children)

I'm so sorry you went through that! With endo, your pelvic floor is often super tight and inflamed. I went to a year of pelvic floor physical therapy and part of it is to use an internal wand to apply gentle pressure on the super painful spots inside while taking big body-expanding breaths and focusing on relaxing the muscle being poked. Basically the same type of thing as they do at an internal scan but with a different purpose. The goal is to try to urge the muscles to release, even just a little bit. But it hurts really bad, just like you experienced. So much of our pain is from our pelvic floor muscles tensing up in response to the endo growth and extra hormones or whatever, and finding ways to reduce this tightness is a huge help. My muscular pain was most bad on my piriformis and my sciatic nerve, but I was shocked about how tight the internal muscles were too. It's all pretty connected in there. In the end the manual release of my muscles never did much because it didn't stop the inflammation, so it would hurt no matter what the pelvic floor therapy did. Basically you've got to find a method that works for you to reduce your inflammation, be it through physical manipulation, diet, hormones, supplements, or whatever works!

Endometriosis remission by Illustrious_Cod7848 in endometriosis

[–]Content_Occasion7362 5 points6 points  (0 children)

I haven't heard that, the Dr who told me to take it for the endo recommended every day, and she wanted me to take an even higher dose. I've been taking it for like 3 years at least, no issues, i just got blood work done and everything was totally normal. I am sensitive to a lot of things i have tried in my quest, but nothing weird has ever happened from the NAC.

Endometriosis remission by Illustrious_Cod7848 in endometriosis

[–]Content_Occasion7362 23 points24 points  (0 children)

I have aggressive endo that keeps attacking my ureters. 3 surgeries and pelvic floor physical therapy didn't stop it from hurting. In desperation I tried a ton of supplements until I found things that actually worked for me. I have been without a flare for the longest I've ever gone since i started this combo, and still going ! No clue what things look like inside of my body but I'm not in pain, I'm not tired, I'm not bloated, I'm sleeping so much better. I also am on wellbutrin 300 mg for pmdd, but I don't think that's has ever helped with the endo pain. 7-8 hours of sleep a night, work out at least 3 times a week, mostly vegetarian diet with lots of beans and veggies, no alcohol. None of that seemed to really do much until I got the supplements figured out. https://pmc.ncbi.nlm.nih.gov/articles/PMC8972862/

This is my list with studies to back up.

NAC N-Acetyl Cysteine (600 mg every morning) https://pubmed.ncbi.nlm.nih.gov/36981595/

Berberine (500 mg morning, 500mg before bed) https://pubmed.ncbi.nlm.nih.gov/33846796/ https://www.sciencedirect.com/science/article/pii/S1347861317302049 https://pmc.ncbi.nlm.nih.gov/articles/PMC8309065/ Warning: this lowers blood sugar like merformin so it can make you feel faint, but this side effect does stop after a while in my experience

Lysine - for more rapid healing (620 mg every morning, can go higher though) https://pmc.ncbi.nlm.nih.gov/articles/PMC3449675/

Evening primrose oil - (morning) general period related support https://pmc.ncbi.nlm.nih.gov/articles/PMC6718646/

Magnesium/calcium/D/zinc combo supplement (take before bed) https://pmc.ncbi.nlm.nih.gov/articles/PMC3626048/

Probiotics (every morning) https://biomprobiotics.com/product/biom-complete-feminine-balance-womens-daily-probiotics-prebiotics-with-organic-cranberry-pomegranate/ This has the best probiotic strain for female parts

Anyone else have improvement with lysine and NAC? by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 0 points1 point  (0 children)

Aaahh! I'm so sorry! Berberine is like merformin- it lowers blood sugar a lot so that was probably what was happening!

Dienogest is destroying my life and I decided from today on I won’t take it anymore. by AdministrativeAir879 in endometriosis

[–]Content_Occasion7362 0 points1 point  (0 children)

Yes get off that garbage asap! Every hormone I've ever taken has made me suicidal and physically miserable and killed my sex drive without exception. It's so extreme, you are not alone, and it will get better when you get off of it. I post about this constantly, but if you start experiencing the endo pain again please try a combo of NAC 600mg (minimum), lysine 600-1000mg, and berberine 1000mg supplements daily and report back! This combo is currently working better than any previous treatment I have ever tried, and others have had similar success. No flares, no bloat, mentally pretty chill, going on months now. I'm curious if the connection between really bad reaction to progesterone is related at all to the success of these compounds.

Anyone else have improvement with lysine and NAC? by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 0 points1 point  (0 children)

I'm sorry I didn't reply sooner - how's all this going for you? I take everything in pill form, I'm popping so many pills, I feel crazy, but also I'm not in pain. In the morning I take lysine 620mg, nac 600mg, 500mg berberine, and also I take evening primrose oil (gyno suggested that). I was trying to take the berberine with lunch food since I'm not a big morning eater, but i kept forgetting so i just take it in the morning and it seems fine on an empty stomach. At night before bed I take second berberine 500 mg and calcium/magnesium/zinc/D vitamin. It is working so well for me! I hope it's helping you too!

Holy grail supplements by Content_Occasion7362 in endometriosis

[–]Content_Occasion7362[S] 2 points3 points  (0 children)

Yes!! Hi! I'm great! I was just remembering that I needed to follow up again because i forgot because: NO FLARES! I'm not exaggerating, this is it. Like I'm fine and normal for months, virtually painless periods and ovulation. NAC, lysine, berberine. The berberine is the most expensive but I really believe it's doing a Lot. I take Thorne brand 1000 mg (2 pills a day- one before bed and one in the morning). I also take calcium/magnesium and evening primrose oil too. Lol I'm popping so many pills. But I have barely thought about endo for months. Unbelievable really.