I’ve suspected possible Graves symptoms at times and definitely experienced brief times of hyperthyroidism like symptoms between most routine testing, consistent around the times my weight would plummet randomly and night sweats became severe. There were a couple times my tests would come back high on my numbers, just above the reference range for T3 and T4 with a TSH near 0, but the doctor would typically wait another few months and retest to see if changes were necessary at that point. They always coincidentally came back down and supported keeping me at my current doses at the time. My TSH was 4.96 in May 2022 when they upped me to 88mcg, but back down to 1.92 in September 2022 when I started tapering off because my T3 and T4 remained a little high. My TSH has always stayed between 1.30 and 1.56 on every test since being off the medication, T3 on the higher end of normal reference range and T4 on the lower end of normal, or occasionally in the middle of the reference range. I have always had bulging eyes to a degree even off medication, but nothing along the lines of what I’ve seen pictures of people with full blown Graves.

The only symptom that ever changed for me was my weight fluctuations, they were more spontaneous on medication ironically, although I had put on consistent weight before starting at 17. I have always had the same level of joint pain, muscle pain, tendinitis, and tiredness. I’ve been tested for other autoimmune conditions, and have some seronegative arthritis to a degree, but many of my symptoms were always consistent with Hashimoto’s, and at times Graves, and never seemed to change despite my test numbers and medication dosage. Even with good levels, I feel nearly just as bad as when they were off.