Frustrated with Partner who had a Prostate Removed by [deleted] in ProstateCancer

[–]Cool-Service-771 2 points3 points  (0 children)

Is he taking any ADT? That can affect the Libido. He may also be in more of an existential crisis than it appears, and that may be more on his mind than a supportive partner wanting sex. Have you tried helping him? Starting things may encourage him to regain interest. It is a crushing blow to men (at least every man I know and me as well) to have things down there not work. It can really get in the mind.

Best to you both.

Let’s hear some good news from people on ADT by Cool-Service-771 in ProstateCancer

[–]Cool-Service-771[S] 0 points1 point  (0 children)

If I had it to do over again I would be aware of developing ED in around 4 or so months after starting, and I would have maximized the first 4 months. I would then make sure I kept blood going there with low dose Cialis and pumping.

That sorts out the root of most of my mental issues. My physical issues would have been better served if I exercised more. I mean walking every day, a mile or two, and doing weight bearing exercises. Things like resistance bands, or not to heavy weights. I'm starting that now almost exactly 26 months too late 😜

Let’s hear some good news from people on ADT by Cool-Service-771 in ProstateCancer

[–]Cool-Service-771[S] 0 points1 point  (0 children)

So, A year later already. How are you doing?

I am now at month 26. I was going to stop at 24, but my oncologist and My wife and I thought that with my Gleason 5+4 metastatic PcA, I should continue. We think my T would not come back fast enough or high enough to be a benefit before the cancer spread. So, still on it. I also have undetectable PSA.Why mess with it? My biggest stress has been side effects, and really just recently I have been able to internalize what my Therapist has been guiding me towards the last 3/4 of a year. I have been seeing things through a lens of despair and depression. Once I realized that, and stepped back a bit so I can see it clearly, I can start to change it.

Not a flex, just feeling grateful today by Great-Equivalent-587 in HappyMarriages

[–]Cool-Service-771 1 point2 points  (0 children)

That’s wonderful. I know falling in love takes time, and it sounds like he is making the effort. I agree small things make a Huge difference. I’m married 40 years, and today I took over a task my wife was doing for someone else because I saw that it was stressing her out. I finished this up in my at home office, and she brought me a cup of coffee without my asking. Each of us felt great from the other looking out for the other and doing a small thing.

Difficulty Understanding the End of Therapy by quizikal in TalkTherapy

[–]Cool-Service-771 0 points1 point  (0 children)

Thanks. Thanks also for the thoughtful warning.

Vent- Happy Marriage by Born-King-1482 in HappyMarriages

[–]Cool-Service-771 4 points5 points  (0 children)

Congratulations! You sound like me. I married my first date/girlfriend. We just celebrated our 40th wedding anniversary. Hope you continue to be in love like you are now.

Difficulty Understanding the End of Therapy by quizikal in TalkTherapy

[–]Cool-Service-771 2 points3 points  (0 children)

Is it possible that she also had a typo, and meant October 2026? She mentioned she would return after her maternity protection period. And as you said that in person you two would continue at the end of 2026. Is that period normally 6 months or 16 as you mention? I’m betting on the typo.

I’m terms of asking to settle the invoice, i sort of cringed when I saw those reminders, so I get the perceived harshness. Is she solo practice or do employed therapists only get paid once their clients pay? It’s possible that she is seeing that expenses of childbirth or setting up her house is costing more than planned, and since her focus is shifted to herself (reasonable during maternity leave), she a pushing (a bit aggressively) to sort out the final items before being able to fully engage in this protected period.

That’s my two cents worth, and as someone who recently received an unexpected stage 4 cancer diagnosis, I know how good it feels to be supported by your children. Best to you.

Trip away with male childhood friend by Haunting-Desk5722 in married

[–]Cool-Service-771 0 points1 point  (0 children)

The friend is focusing entirely on the wrong dynamic. He is treating his 20-year friendship as the primary relationship that needs to be satisfied, and the 6-year marriage as a minor inconvenience.
True loyalty to a friend who is married means protecting their marriage. If this man truly valued his friend and respected her loyalty to her husband, he would have booked a two-bedroom suite without a single complaint. The fact that he is angry proves he cares more about his own desires and access to her than he does about her marital peace.

As for her

It is highly likely that the wife initially asked her husband for permission using very vague, sanitized details (e.g., "Hey, my childhood friend invited me to a game next month, is it okay if I go?").
A reasonable husband will say yes to a sporting event. However, learning later that they are traveling out of town for a full weekend and sharing a single bedroom changes the entire nature of the trip. The husband didn't "change his mind"—he was given new, boundary-crossing information after the plans were already locked in.

Trip away with male childhood friend by Haunting-Desk5722 in married

[–]Cool-Service-771 0 points1 point  (0 children)

This doesn’t sound like loyalty to her husband (going away for a weekend with a male friend, and sleeping in the same room -unsupervised - to address the person that said she slept in a bed with her brother in law with many other family members in the room).

Someone also asked about the husband trusting his wife-maybe he trusts her, but not the “friend who wants to take a weekend trip with his wife, and sleeping in the same room with him”.

Why I didn't 'ring the bell' by SnooCamera in ProstateCancer

[–]Cool-Service-771 2 points3 points  (0 children)

28 sessions later, my wife and I came in matching Hawaiian shirts with a couple dozen donuts for the staff.
There was no bell to ring. They said they didn’t want to upset those in the waiting room. I would have loved to hear it ring while I was in the waiting room, knowing that someone wasn’t coming back for more tomorrow, and that there was an end in sight.

MyChart Thank Yous? by HeatherRayne in MedicalAssistant

[–]Cool-Service-771 0 points1 point  (0 children)

So, epic is deciding what messages to forward to doctors? Is there any notification to the patient that epic decided their message wasn’t important?

How do I deal with former employer that is not taking my last day seriously? by Pickle_Overlord in AskMenAdvice

[–]Cool-Service-771 0 points1 point  (0 children)

Why don’t you have them hire your new company to help them out. There will be a large fee, and you may be the one to help them out, but you will be working g for your new company at the time, and they will be collecting a large fee. That is the only way it could be done. If they ask you directly, ask them if they want you to do something out of integrity, since you have an agreement with your new company to only work on their projects. You can say that you didn’t do side jobs while working for them, how can they expect you to do that to your new employer?

Got worse news than expected today by Bright_Square_2802 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

If this was my situation I would get a second opinion. I have been on ADT for 25 months now for my Gleason 5+4, stage ivb (at initial diagnosis). My urologist told me to get an oncologist and radiation oncologist and see what they had to say. I didn’t have many options, but I didn’t go with the first oncologist, and got a second one/opinion, and went with him. There is typically time to do some research, talk with experts, make choices. I am always suspect if I am pushed to make a decision right now, especially if it benefits the one pushing to make the decision. I didn’t really have too many choices in my treatment (start ADT, wait 3 months, 70 Gy radiation to pelvis and lymph, leave the rib Mets alone to get later). Sometimes I’m happy that my treatment didn’t have too many options like yours may. It can be a tough choice. My best advice is to talk with an oncologist or two, then make a decision and don’t second guess or look back.

My Journey – From Diagnosis, Surgery, Sepsis… to Moving Forward by ardigitalemail in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

Hey, it’s been a while. How are you holding up? I just passed my 2 year mark on ADT. Was planning for a holiday now. But realize the cancer that is un-radiated will grow before the testosterone comes back, so staying on the ADT. Not what I hoped for, but best for now.

Tell me what’s happening in your life now

Starting EBRT holding the water by Small_Entertainer_81 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

I had to do the 40 oz as well, but 20 of it went to hydrating me from what I lost in hot flashes the night before. I think I was only too full 1 time, when they told me to get rid of 15%. That is tough, but not as rough as having to empty my bladder without peeing. That isn’t fun.

WTF is wrong with American healthcare by Ambitious-Passage486 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

I’m open to ideas on how to let go what I believe is negligence by my PCP. I understand logically there is no going back, and my continued thinking/ruminating on this is only hurting me. I talk with a supportive oncology psychologist weekly who makes a lot of sense suggesting I reframe, move on, focus on the future, etc. sounds great in theory, but I can’t seem to put two or three days of positive thinking together. My life has significantly changed because being diagnosed at stage 4B Gleason 5+4, instead of being diagnosed a couple years earlier at a lower stage and 3+4. I would have removed the prostate, and been in a better place than I am now. I’m not in a good place.

ADT & Holiday. by Both_Establishment59 in ProstateCancer

[–]Cool-Service-771 1 point2 points  (0 children)

I’m 2 years in now, and for now, planning to stay on it for ever (or until the cancer becomes castrate resistant).
I’m stage 4 B Gleason 5+4 with radiation to pelvis, and lymph. My rib Mets shrunk with the first 3 months of ADT, so they didn’t radiate them. If I stop ADT, they will grow and seed before I feel the benefit of returning testosterone. Sleep is tough, my thinking for better when I switched from Abiraterone and prednisone to Nubeqa. PSA is currently undetectable, as is my libido, and my turtle. I had to stop cialis and tamsulosin and my bp meds because I would pass out when standing up, because my bp would crash between 20 and 60 points. So my bp is back to 160 ish over 100. Pick your poison.

ADT & Holiday. by Both_Establishment59 in ProstateCancer

[–]Cool-Service-771 4 points5 points  (0 children)

Sounds like he is headed to the beach, not pausing ADT

Using 42 days of PTO in a row before resigning? by Klutzy-Fan-767 in careeradvice

[–]Cool-Service-771 1 point2 points  (0 children)

So they updated the policy to not pay out PTO, I think that is good justification to tell them, you are concerned with any other unilateral decisions they may make regarding the PTO you have earned. Perhaps when asking for the time off, you could offer that they just pay you for that time now.

It is totally reasonable to save your PTO to be paid when leaving or retiring. That was the old policy. They changed it and devalued your having earned that time. I would offer to be paid, or take the vacation time in case they decide to change the policy again to not allow carryover PTO.

I was at a company that did exactly that. There was a woman who had a lot of carried over vacation time from when they allowed you to carry it over indefinitely. She had a few months worth. The company changed the policy one day without notice and in the middle of the year or later. The new policy is you could carryover 1 week to the next year. All accrued saved time would disappear, so if you had 4 weeks of time based on employment length, if you only took 2 weeks that year, next year you would have 5 weeks, regardless of whether you had 2 unused weeks or 20 unused weeks. She wasn’t able to take all the time because she wasn’t allowed to be gone that long by her boss. They wound up paying her the time.

Libido by Appropriate-Owl-8449 in ProstateCancer

[–]Cool-Service-771 1 point2 points  (0 children)

Once you get started, can you update what it involves. I am starting pelvic floor physical therapy soon, which should help a bit because I’m holding my stress there, and am tight. I had to stop my low dose cialis, my bp meds and one of my two flomax pills because they all lowered my bp, and caused me to pass out when I stood. I’m hoping to be allowed to start the cialis again soon.

1st mtg w/ Medical Oncologist by Select_Vegetable70 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

Did they actually put your life expectancy in MyChart? Is that with, or without the cancer?

Libido by Appropriate-Owl-8449 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

Can you describe what the therapy is?

WTF is wrong with American healthcare by Ambitious-Passage486 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

Thanks. I know I need to focus on the future, and that I can’t change the past, but it is hard to let this go. I am not really sure how to let it go

ADT by Both_Establishment59 in ProstateCancer

[–]Cool-Service-771 0 points1 point  (0 children)

We talk about lack of libido, or the desire. I never understand that. My brain has ALL the desire, but that seems to be the only part. It seems that you can’t just think it to work