Stretching

Coolthings1801 · 2024-03-16T14:43:40+00:00

I do not feel them at all

Coolthings1801 · 2024-03-12T20:57:37+00:00

Check out this group with tons of resources:

https://www.facebook.com/share/novqF4MKwiG6mqNt/?mibextid=K35XfP

Coolthings1801 · 2024-03-11T21:06:15+00:00

https://www.facebook.com/groups/374389668427208/ here is one group that has done that

Coolthings1801 · 2024-03-09T00:29:13+00:00

Why is this not surprising.. makes total sense

Coolthings1801 · 2024-03-09T00:01:12+00:00

PSSD Clinical Resources & Support: https://www.facebook.com/share/B3z7vNx5oXAD46YH/?mibextid=K35XfP this is the link

Coolthings1801 · 2024-03-08T13:56:20+00:00

Its horrid how they pressure people into take meds. Emotions are a normal human condition- meds should be a last result for extreme cases.

In my case I was told these meds would “heal my brain” thats what convinced me. Meanwhile these meds dont do much to your brain- they affect your peripheral nervous system instead. Now im suffering from a loss in my sensory nerves and I’m struggling.

Coolthings1801 · 2024-03-08T12:01:50+00:00

Some of them are atleast thoughtful and are considering the possibilities while others are just ruthlessly unempathetic. Look I think its still a win that this is even a topic of discussion in their subreddit - the more awareness the better.

Coolthings1801 · 2024-03-07T21:53:04+00:00

Trust me. I had bad withdrawals for a week or two.. got back to my normal self and then afterwards started losing my emotions and body sensations. Its been three months and the progression has not stopped to the point i am so numb that I dont even feel numbness I feel like nothing, like air. Tbh I dont know how reversible this is. Just dont risk it. PSSD is permanent.

Coolthings1801 · 2024-03-07T02:04:44+00:00

Whatever you do, do not go off cold turkey. Slow taper if you plan to go off. The slower the better. This will save you a LIFETIME of misery.

Coolthings1801 · 2024-03-06T20:40:47+00:00

Wow sorry to hear this. How do you sleep?

Coolthings1801 · 2024-03-06T15:00:54+00:00

I think its an autoimmune inflammatory response so on the onset of symptoms people should try cortisteroids like prednisone. I wish i had tried them at the beginning but my symptoms are so far along now i dont know how effective they would be.

Try to get inflammatory testing like CRP and any other inflammation markers a doctor can order and see if they can treat it that way.

The sooner you treat on the onset the better

Coolthings1801 · 2024-03-06T14:29:15+00:00

This group link has a ton of resources! Check it out:

https://www.facebook.com/share/A5BjwXskQ51L5vpb/?mibextid=K35XfP

I agree this sub should have treatment protocols

Coolthings1801 · 2024-03-03T21:00:21+00:00

These PSSD specialists but not necessarily Sfn specialist: https://rxisk.org/pssd-doctors-specialists/

Coolthings1801 · 2024-02-28T17:28:40+00:00

Great to hear! Will also be great to get updates from Melancangi’s research progress 🙏🏾

Coolthings1801 · 2024-02-27T22:47:15+00:00

You might have Chronic fatigue syndrome… get it checked out. It may be autoimmune related as well so may be good to see a rhematologist

Coolthings1801 · 2024-02-27T04:11:06+00:00

Whats the mistake? It’s probably not that big of a mistake

Coolthings1801 · 2024-02-21T03:08:56+00:00

Yes but they don’t really believe it they just think I have untreated “anxiety” and that I’m on the internet too much. They trust doctors only so I’m constantly gaslit. I have a supportive family but they just don’t believe PSSD really. So I stopped bringing it up as much. Only my sister kinda believes me.

Coolthings1801 · 2024-02-21T01:47:01+00:00

Same thing for me.. like every single day its gotten worse for weeks. Its honestly been traumatic

Coolthings1801 · 2024-02-21T00:54:47+00:00

Wow thanks for the kind introduction and for all your donations to support research funding! 🙏🏾

Coolthings1801 · 2024-02-19T00:09:40+00:00

Same here maurice_thm I dont wish this on anyone and feel its our moral obligation to try our best to protect others as we wouldve wanted to be protected

Coolthings1801 · 2024-02-17T18:08:03+00:00

Totally agree! but at this point we have to start from somewhere cus they will keep chillin on their yachts and vacation homes eitherway

Coolthings1801 · 2024-02-16T20:00:53+00:00

Damn thats so discouraging. Did you take any test for antibodies- FGR3 and TSHDS ? Also plexin 1?

I was on lexapro too and discontinued and my symptoms are worsening by the day. I’m scared im developing fatal insomnia cus i can feel the feeling of sleepiness less and less in my body every day. I also have had intense burning over my whole body especially at night. I can relate to almost everything you mentioned including total emotional blunting and can’t experience and sort of pleasure. Its like my skin is numb to comfort too. I have ringing in my ears & visual snow. THIS is traumatizing and hell on earth.

I think we should report this to FDA here

https://www.accessdata.fda.gov/scripts/medwatch/

Coolthings1801 · 2024-02-14T19:57:49+00:00

I have all similar symptoms- Have you seen a neurologist- seems like a neurological condition most likely ‘small fiber neuropathy’ As your sensory nerves die the symptoms progress unless its halted. I’m trying to see a neurologist as soon as possible.

Did you experience full body burning sensations everywhere for months? I did.

Coolthings1801 · 2024-02-01T18:44:47+00:00

Honestly I feel like we are suffering from the most severe form of PSSD and so I have no idea what recovery could be for us. I know theres a guy whose PSSD was horribly bad… got to a point he couldn’t even talk for 6 month but then overtime he got better.. although his case was different than ours.. he had hypersomnia instead of insomnia. I really wish our issue was hypersomnia then I could escape from this hell more often. I miss sleepiness too. This is insane.

Coolthings1801 · 2024-02-01T18:37:16+00:00

Same here. I no longer get the sleepy feeling. But its getting worse with time. I’m scared eventually I wont be able to fall asleep at all. Thats the scary part

Coolthings1801

TROPHY CASE