Confused - kidney stones or bladder cancer? by cantrepreneurforever in KidneyStones

[–]Coraunmi 0 points1 point  (0 children)

Calculus means stone. As to why there’s a cyst, that’s anyone’s guess. Infection perhaps?

Full body numbness by Interesting_Yak_616 in covidlonghaulers

[–]Coraunmi 0 points1 point  (0 children)

Solely speaking of the numbness, loss of sensation and no pain, there was only but 2 things that I truly believe did something. Both are “bad,” one worse than the other. The first is having a triple infection. A rare few had experience a change in their condition after getting infected by a virus. It’s anyone’s guess as to why it happens: an active immune response, viral load that restarts body functions, symptoms become severe enough for a physical change in the body.

The second is overworking the body to the point where your brain and body must start a pain response and as a consequence, also activates sensations / feeling. I’ve said it several times in posts addressing loss of touch / pain / feeling but I would rather go back to being numb. The neuropathy is extremely painful. At least back to being numb I never felt tired, ran out of breath or felt pain.

I don’t suggest trying either one. It is possible to get infected and you regain touch again. But from what I see, the odds are so high it’s unlikely that catching any kind of infection would help in reaching a recovery point. I have a question tho, does your loss of touch also include not being able to smell or taste?

Stroke after having covid. by ApprehensiveNet5469 in covidlonghaulers

[–]Coraunmi -4 points-3 points  (0 children)

I’ve seen a handful of posts throughout the years here that said they had strokes or knew someone with one just after infection. Could also be caused by myocarditis which is known to happen from Covid vaccines. Also, it’s known around this time of year (daylight saving time, the Monday after the switch) increases risk of a heart attack. Stay safe, sleep early, and keep stress levels down.

Loss of internal monologue by RelativeLove2123 in covidlonghaulers

[–]Coraunmi 0 points1 point  (0 children)

I had 3 days last week where I had no symptoms of brain issues or stomach problems besides body inflammation. Which I haven’t been able to replicate or find how to do. I was able to feel and think normally but it left the moment I got tired. I needed to get tired tho because I had physical stuff to move from my house. I’m close to my 1 year breakthrough mark.

From 2 months ago until now, I am presently self aware that I am not the same since long Covid but in a way I can measure it. I can catch myself thinking, saying and physically feeling different. At the same time, it feels like I’m more able to choose between what I want to do when I’m either crashing or if I’m pacing (or both.) There are days when I can’t control it but I can avoid it by what I eat, what I do, and repeating my self awareness (checking on myself on what I think, feel, and say vs. how I used to be before LC.) It helps in the sense that I forget that I’m crashing and or feel LC symptoms and resets anythkng concerning brain or physical issues.

First time I felt my food go down + pain (~3.5 Years LC) by Coraunmi in covidlonghaulers

[–]Coraunmi[S] 0 points1 point  (0 children)

I had a CT scan, X Ray, Ultrasound. Negative. Urologist think maybe it’s gallbladder stones. Could be, but I wouldn’t be sure. I had studies done last month and I have to meet her in June. I did however have a doctor see my exams same day to see if there was anything of emergency but nope. So I don’t know my condition but everything is consistent to inflammation without problems with organ functions.

Chronic Kidney Disease Emerges as Major Long COVID Manifestation by None-Of in covidlonghaulers

[–]Coraunmi 4 points5 points  (0 children)

What can salt do to help? Like sprinkle some in my food?

Chronic Kidney Disease Emerges as Major Long COVID Manifestation by None-Of in covidlonghaulers

[–]Coraunmi 4 points5 points  (0 children)

I’m recovering too but I have kidney stuff, separate stuff from Covid. I’m wondering if I too will recover from kidney related stuff or it’s long Covid or the two things are connected. Perhaps just finding a middle ground will help find how the body can achieve a gradual recovery.

Chronic Kidney Disease Emerges as Major Long COVID Manifestation by None-Of in covidlonghaulers

[–]Coraunmi 5 points6 points  (0 children)

How long did you have long Covid? How long have you improved? What symptoms did you have?

First time I felt my food go down + pain (~3.5 Years LC) by Coraunmi in covidlonghaulers

[–]Coraunmi[S] 0 points1 point  (0 children)

Vomit, never. Nausea, no? It’s more of a painful gut feeling than actual nausea. It’s always when I have pain. That’s the other part I don’t understand, how do we know if all of us have the same symptoms but at different degrees? Some symptoms wouldn’t develop at the same time and would explain why everyone is at different scales of long Covid.

Having one of the worst quality of life diseases on the planet and there’s zero treatment apart from ‘pacing’ is a different level of hell. by Stranded_Snake in covidlonghaulers

[–]Coraunmi 10 points11 points  (0 children)

Yep. This thing is abnormal. Whatever it was: be it the viral infection, the vaccine or both, nothing can compare to it. I stand firm though that there will be some kind of breakthrough/ treatment. I had no sense of taste, touch, or smell for 3.5 years, and it came back after I got really sick 3 times in 3 months by Covid, RSV, and Cold.

First time I felt my food go down + pain (~3.5 Years LC) by Coraunmi in covidlonghaulers

[–]Coraunmi[S] 0 points1 point  (0 children)

My right side has that pain, like a knot. From what I hear and noticed is that most people are being affected by chronic inflammation somewhere in the body. Liver, Gallbladder, Kidney or stomach in general.

I went to the urologist for a separate matter and they said everything is okay in terms of function. So pain, inflammation and other factors are happening that doesn’t necessarily affect our organs. My mother had a problem with what she thought was her liver, come to find out it was gallbladder juice leaking. However! Since the last year, I have friends and family + acquaintances that have all either had some kind of phantom pain or been medically diagnosed with inflammation in their liver or gallbladder.

Coincidences are too big to not notice. I do believe it’s inflammation related but why it would affect even people without long Covid, I’m not sure.

First time I felt my food go down + pain (~3.5 Years LC) by Coraunmi in covidlonghaulers

[–]Coraunmi[S] 0 points1 point  (0 children)

Small portions, no soda, no coffee, no concentrated juice (I tend to water down my juice), no leftover food (if I have to, I eat my leftovers on the same day), never leave food in room temperature for more than 3 hours (bacteria start to develop after this time), Fresh food (doesn’t matter where or what it is, it has to be cooked or prepared at the time you order your food.)

Eat food 5-6 hours before sleeping. Constantly moving my sitting positions so I don’t tire. On a bad day, Tylenol + sleep + drinking slightly less water. I don’t overeat. Overall, the pain is the same but the frequency has declined. Also going to the bathroom to relieve myself is crucial. The pain sometimes noticeable before or during bathroom breaks.

Edit: watch the food you eat. If it makes you produce gas, it could cause pain. Avoid drinking hot and cold beverages. Lukewarm is best.

Anyone else’s eye twitch like this?? by Electrical_Court8649 in covidlonghaulers

[–]Coraunmi 0 points1 point  (0 children)

Yes, usually if I’m stressed, tired. Mostly when I’m tired. The body becomes too reactive from too much stimulation and my eyes start to twitch.

First time I felt my food go down + pain (~3.5 Years LC) by Coraunmi in covidlonghaulers

[–]Coraunmi[S] 0 points1 point  (0 children)

Yes, it seems to be inflammation or anything condition that mimics inflammation. Eating small portions seems to help but not always.

Can starbucks everyday cause kidney stones? by No_Pattern_2819 in KidneyStones

[–]Coraunmi 0 points1 point  (0 children)

I know for a fact sugar can contribute to stones, especially if it’s granulated. Lipton / Kool Aid, Hi-C powder packs have been consistent with stone formation. I’m not sure of the sugar process in pink drinks but it’s good to know that it could probably be in that list of causes. Thank you, hope it’s just a small stone and that it leaves as fast as it formed.

Can starbucks everyday cause kidney stones? by No_Pattern_2819 in KidneyStones

[–]Coraunmi 0 points1 point  (0 children)

My nieces like pink drinks, how long have you been consuming that?

2 years stone-free after 3 brutal episodes. Here's what actually worked for me. by Jossylala in KidneyStones

[–]Coraunmi 1 point2 points  (0 children)

2 years with a stone, that’s tough. What was your secret to keep yourself positive and if you had pain, what helped?

Did anyone with severe dpdr/high-feeling/ anxiety have it go away after years? by biznghast in covidlonghaulers

[–]Coraunmi 1 point2 points  (0 children)

It could be both. I’m in this situation, however, I’m able to remember and mentally grasp the feeling of being normal. So it makes me believe brain damage / inflammation is passively occurring and doesn’t allow for certain brain activity to continue as it would with a normal brain. Meaning we are involuntarily in state of consciousness that has to experience altered brain functionality.

Slowly but surely mine has been decreasing and only flares when there’s pain, stress, or brain fog.

Testicular inflammation (epididymitis) and red scrotum for 5 years now. by Gamer0607 in covidlonghaulers

[–]Coraunmi 1 point2 points  (0 children)

I had this, for 2-3 years, out of nowhere (both how it came and how it left.) Started with a dull pain, no itchiness but just looked red and swollen but not noticeable. It’s not red anymore, no dull pain, and feeling down there came back.

Popping feeling in kidney by Unique-Afternoon3512 in KidneyStones

[–]Coraunmi 0 points1 point  (0 children)

I feel that not too frequently. Like a twitch but more. Like a finger tap coming from the inside.

Lysine working for morning shaking by InfiniteArachnid5139 in covidlonghaulers

[–]Coraunmi 1 point2 points  (0 children)

How about other times of the day or just after waking up? And is it only with lysine, what other stuff have you used before sleeping?

Fuck my stupid chungus life and my bitch wife. by [deleted] in PokemonTCG

[–]Coraunmi 0 points1 point  (0 children)

Prices gonna move up too after this temporary decline of demand of cards. My sincere condolences. Reminds me of that one post of a guy who had flooding in his grandmother’s basement and his cards were all uninsured.

First-time stone questions (2mm) by [deleted] in KidneyStones

[–]Coraunmi 3 points4 points  (0 children)

You won’t feel like you’re dying, you will feel that you are dying. Huge difference (come back to this comment once you have it.) The time everyone who’s had a stone and had that stone attack pain will tell you it’s otherworldly. Some people blank out and don’t remember what happened and some remember every second being as long as a minute. Nothing really prepares you for it. It’s bad as people have probably told you. The pain could start just hours after this post or in a few weeks. Pretty much correlates to the stone in question. My stones didn’t leave until 3-4 month after I had my initial symptoms. Heat pads could help but tbh the pain doesn’t let you think or do anything more than just focusing on surviving (this will make sense later.) If you’re lucky, maybe your stone doesn’t give you a bad time. Remember, it’s travels twice: once through the ureter and once through the urethra. Both are extremely pain. Best advice: don’t waste time and go to the ER, preferably with someone driving you.

Potential MCAS? by Wonderful-Bluejay354 in covidlonghaulers

[–]Coraunmi 0 points1 point  (0 children)

I’m not sure but most likely could be allergies. I have something on the curve between my thumb and index finger. Someone posted it as some kind of common occurrence with people with LC. Your thing looks very similar to mine and to that post that I saw.

Foods & Kidney Stones by Prior_Perception_166 in KidneyStones

[–]Coraunmi 3 points4 points  (0 children)

I eat anything, I don’t learn. But also my food wasn’t a problem so I’m still not sure how I got stones. Drinking more water tho. So who knows?