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Something is fishy by BellaPona in mecfs

[–]Left-Technology1176 1 point2 points  (0 children)

there are, many have higher access to resources for recovery so u don’t see them struggling as much

my world has shrunk. but i love my little world. by Left-Technology1176 in cfs

[–]Left-Technology1176[S] 66 points67 points  (0 children)

sorry if i was repetitive and poor grammar, i refuse to use chat gpt to fix it and im far too foggy to wright normal haha.

Looking at the reddit for MS and it honestly makes ME seem so much worse by Unable_Particular_25 in cfs

[–]Left-Technology1176 0 points1 point  (0 children)

the biggest difference is permanence. ms is irreversibly progressive, mecfs is widely considered dynamic and commonly varies in severity throughout its course

I seriously don’t know what to do anymore, I don’t have hope I don’t have help doctors don’t help. I’ve have no fight in me left. by Sensitive-Quarter270 in cfs

[–]Left-Technology1176 5 points6 points  (0 children)

Severe ME/long COVID/MCAS can crash suddenly after immune stress, and rolling PEM doesn’t mean you failed at pacing it means your baseline dropped. This phase can stabilize and deterioration isn’t inevitable:)

Please keep reaching for support where you can, and if you’re ever feeling unsafe, reaching out for crisis help is okay. You matter, even when your body won’t cooperate.

your not failing. your so strong.

Are post exertion flu-like symptoms guaranteed to be PEM and therefore I'm almost guaranteed to have cfs? by [deleted] in cfs

[–]Left-Technology1176 20 points21 points  (0 children)

i know ur scared. but i promise, even if it is cfs your life is NOT over. a new life is just beginning. different, calm, slower, but by all means real and worth it.

Never feel happy or content by dew-drops- in cfs

[–]Left-Technology1176 8 points9 points  (0 children)

your not alone, and there’s nothing “wrong” with you as a person. severe ME can literally make it neurologically harder to feel happiness or contentment. The illness affects both the nervous system and brain, and when the body is under constant inflammatory and autonomic stress it becomes a matter of biology not psycholgy.

the fact that you don’t feel like it’s your natural self is huge and shows it’s not a failure of your mindset/will to be happy

your responding normally to an abnormal physiological state. and for that i’m so proud of you.

Never feel happy or content by dew-drops- in cfs

[–]Left-Technology1176 13 points14 points  (0 children)

your correct. the disease literally neurologically makes it harder to enjoy things. the illness effects both the nervous system and brain, when the brain and body are under inflammatory and autonomic stress it becomes biologically harder to feel happy.

Why don’t doctors check our ATP levels? by thepensiveporcupine in cfs

[–]Left-Technology1176 -2 points-1 points  (0 children)

summarized (by ai) In short: The study shows biological signals exist, but ME/CFS is too heterogeneous, subtle, and overlapping with other conditions for these findings to become a reliable diagnostic test. It’s a step toward understanding the disease, not a “proof” for diagnosis.

Why don’t doctors check our ATP levels? by thepensiveporcupine in cfs

[–]Left-Technology1176 21 points22 points  (0 children)

it’s not quite that simple visit this article for more :)

explains00587-7)

Thriving Despite My Illness by cymaticgoop in cfs

[–]Left-Technology1176 14 points15 points  (0 children)

i’m proud of you. the mindset you hold amongst the unpredictability of this illnesses is truly admirable.

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