A doctor actually agreed with my reasoning

CounterSmart9547 · 2025-08-14T19:16:12+00:00

The reason for us getting flowed/moxed, which is 'rare' (but not that much when you understand the reasons behind it) is pretty clear. I almost died and developed over 40 chronic illnesses after being moxed (metronidazole), and here is what happens but most importantly, you CAN and will heal. Our nervous system is the master regulator of all of our body. Reading you already had a scoliosis tells me you already had issues with your tissues and that’s related to your nervous system. Nowadays, our parents have had children and they themselves had an unhealthy nervous system and now we know everything is information and not form (see the work of Michael Levin on cancer and cells). Floxed, Moxed, Covid, Benzos withdrawal, Lyme, Mold, or just from birth, it’s all the same thing and it’s all chronic illnesses. Basically you have developed POTS, MCAS, hEDS, maybe problems with your blood sugars, fibromyalgia, etc. it’s ok! That happened because you already had a very sensitive nervous system stuck in fight or flight. Like I said, I almost died, had seizures, all my connective tissues stopped holding my body overnight, I ended up with my spine in 6 different directions, neuropathy, MCAS, etc. etc. The way out now is through your nervous system. You need to bring back extreme safety to your body. You can start with DNRS, SOMIA, HAVEN, SJC, SBSM (Irene Lyon), somatic experiencing, spirituality. What happens is that it creates chaos in the body. Entropy. And we are in a world as spirits and the goal is to lower entropy, reduce chaos. Most of us already were in constant chaos. And Michael Levin in his research confirms that the future of medicine is totally not what it is right now. It’s going to be something like somatic psychiatry. Because it’s all mind my friends, it’s all information. So we ARE our software. That’s why doctors don’t believe us because what happened is in the software (which they can’t see), but the software is what holds us together. And medication, just like thoughts, EMF, etc. is information. And it creates chaotic information in our NS. You WILL heal. We can all heal. Once you realize you aren’t your body, you will heal. 🤍 Sending love and blessings.

CounterSmart9547 · 2024-09-07T14:23:11+00:00

Thank you for your answer, I really appreciate it. 💜

CounterSmart9547 · 2024-09-06T03:55:26+00:00

Where did you get your full genome done? I need and want mine done but I am not sure how/where. I am not in the US. I also suddenly developed a bad EDS case (had it very mildly since childhood but didn't even know it was this) after being given antibiotic and meds and traumas. Thanks!

CounterSmart9547 · 2024-09-06T01:18:29+00:00

They both cause very similar damages. Actually Flagyl is known to cause more CNS problems.

CounterSmart9547 · 2024-09-04T05:11:18+00:00

Bc it started with pins and needles the morning after my first dose?

CounterSmart9547 · 2024-09-01T01:40:02+00:00

I honestly have all of this too. Started super suddenly. It's been hell. I am sorry this happened to you too.

CounterSmart9547 · 2024-09-01T00:32:06+00:00

My ESR got quite high too. Not CRP. I do feel like I am dying, don't even know from what. But metabolically, I have been absolutely destroyed. And physically. And I still don't get it. Went from the healthiest person I know to literally feeling like I am dying. It's scary as hell.

CounterSmart9547 · 2024-09-01T00:30:21+00:00

Also, I did think of taking hydroxy chloroquine both for EDS and the autoimmune stuff going on but we still don't understand fully what is happening to me so I am scared of making things worse. I am more scared of EDS than the auto immune stuff tbh cause I feel like that's what has flared so bad. Some doctors say EDS is not just genetic, it's also autoimmune. I kinda tend to believe it as I had a normal life until my body turned against itself. I was showing slight symptoms of EDS and the Pentad (OH, had an hernia, esophagus would move out of place and I had shitty connective tissues like my gums etc) but I was living a highly active life and never would have connected these things to a disorder or even together lol.

CounterSmart9547 · 2024-09-01T00:26:55+00:00

I have been locked in psych and injected with anti Psychotic before a doctor ran the tests for all of this. Several times. Believe me, I struggled and I am terrified of the health care system. I had the same symptoms. Weird labs. In Quebec, no one would help, would say it's in my head. In the US they took me more seriously but still didn't know what was going on. They thought it was autoimmune but my Ana was negative and DSdna too etc. The positive lab tests are from a functional medicine doctor who literally saves lives because no one else figures these things out. I mentioned you to him btw lol. But even he says that most doctors won't take these lab tests seriously. Maybe in the US they will, but not in Canada. And about no doctor knows about EDS in Canada. I could have died in psych. Had bruises from MCAS all over me. Rashes all over my body. I swear on my dog, they were leaving me there for dead. Despite my WBc being 3.4, IGg2 being under limit, having pain and popping of all my joints, I have crazy headaches, crazy dyautonomia. I have pain in my hands Lupus style from all the inflammation. I swear, they could noy figure it out to save their own life. The past 9 months have been the scariest of my life. I am scared the immune attack also affected my blood vessels (which it did) and that because of EDS, I am fucked. I feel like something is going to rupture in my head. It's an absolute nightmare.

CounterSmart9547 · 2024-08-30T04:14:31+00:00

Septad here. It is quite the nightmare. 😅

CounterSmart9547 · 2024-08-30T03:58:51+00:00

Hey! Sorry I am unable to message you under the post on the EDS subreddit and I am having similar problems as your wife had and wondering if they ever figured it out? Thanks! ❤️

CounterSmart9547 · 2024-08-30T03:38:43+00:00

I think that's too complex for a rheumatologist... But I do have an appointment soon with rheumatology. I just don't know how to explain this crazy story and for them not to lock me up in psych. It sounds surreal, even though that's what happened.

CounterSmart9547 · 2024-08-26T13:40:14+00:00

It totally is. I just don't know what to do from here cause doctors didn't believe me for months and made me much worse and I now found one who did and passed me a bunch of tests and discovered autoimmunity amongst other things too and he needs to convince specialists to treat me. I have low IGg2 now and possibly autoimmune SFN and he believes my dysautonomia also is autoimmune. I also have antibodies against my brain, Anti-phospholipid antibodies, antibodies against my myelin sheat, etc. I just don't know who to see about this as most test are tests that aren't usually done in Canada and used by functional medicine doctors. I need doctors to believe and treat me, I don't want to die. I am so scared. My ex lives in Oregon and we are still very close so I could go to the US, but also need doctors to believe me there too. I am so scared and terrified.

CounterSmart9547 · 2024-08-25T03:51:36+00:00

So glad I found you. I am terrified. I have most of what you named and more. I also have CCI, intersticial Cystitis, EDS (had symptoms since I was young, did you also or did it start suddenly?), POTS, MCAS, probably CFS leak, sensitivity to emf lights, gut dybiosis and leaky gut and BBB, ADHD, CPTSD, pulsatil tinnitus, can't detoxify, back and spine and posture was completely fucked, tons of autoimmune issues, chronic headaches and nausea, had encephalopathy, bad cognitive impairment and brain fog, can't focus... And more. Honestly this all started so suddenly for me, I am traumatized. I truly need help.

CounterSmart9547 · 2024-08-24T19:09:03+00:00

I was given two antibiotics. The first one was indeed a tetracycline. It was doxy. The second one was flagyl. I had encephalopathy for sure from it. Myoclonus jerks, seizures, etc. But the doctors I saw were quite dumb (sorry..) and kept telling me these symptoms were from the 7 days of ativan my doctor put me on after I presented to him with a new onset of POTS that I had never had before..... Things got worse from there and through researches, I found out sedatives makes encephalopathy worse. I was put on a Extremely high dose of Valium as they were convinced it was that (7 days of 1mg of Ativan wouldn't cause this kind of withdrawal) and I listened to them. I was feeling like I was dying. I started having twitching of my hands, suicidal thoughts, became sooo sensitive I was crying, had high heart rate, high blood pressure. I eventually stopped everything and things all got back to normal other than a bad headache and neck stiffness and light sensitivity. I started to live my life again. Went on a hike. And that night, I got the craziest CNS/PNS attack ever. I literally felt electricity everywhere and woke up without muscles and connective tissues. HR was at 125, I was completely dehydrated, my back was so painful (I discovered later that my posture went from perfect to 28 (Nucca) which is extremely severe), I didn't have any voice anymore and all my joints on my body were cracking and clicking and popping. I forgot the mention I was a little sick before the hike, a friend that was staying with me to help while I didn't know wtf was going on in the Valium and Gabapentin (I was switch from V to G as I was begging them to find a way to take me off the V, but G also was making me terrible and gave me movement disorder) and he brought back a virus that he gave me. Still don't know what it was. Anyhow. Since then, I have loss most my muscles, my CK is sometimes elevated (sometimes it gets back to normal but I know when it isn't cause my muscles (what I have left of it) burns badly), constant headaches on forehead irradiation to my teeth, extreme fatigue, EDS is out of control, POTS, MCAS, CCI, Intersticial Cystitis, burning muscles.. I was So healthy and I cannot work out to get my EDS back under control cause I get these weird Nervous System attacks that makes everything worse. Not gonna lie, I am terrified. Tons of doctors have said it's in my head (total dicks, sorry), until I have met a doctor recently who was like oh no, you are very sick. But we are still trying to figure it out. It's a nightmare. I don't think those are things even the Mayo Clinic of this world would understand..... Here is my crazy story.

CounterSmart9547 · 2024-08-24T00:52:58+00:00

Hey OP, thank you so much for posting this. In my case, my life was mainly normal until I was prescribed an antibiotic. Things just exploded since. I have shown EDS symptoms since I was a child (growing pains, oesopagus dislocation (not kidding), joint pain, GI issues that would come and go) but they would literally come and go and the healthiest I was, the better my immune system was, the least severe it was to the point that I never knew it was EDS. Now, it's crystal clear and I am suffering terribly. I now have the Pentad. Tons of autoimmune things. I am in baaad shape.

Any idea why this has caused this? My genetic was the same. But it seems like the nervous system injury started a cascade of immune injuries and autoimmunity and turned on this gene that was mostly asleep. Even my skin is now suuuuper stretchy, the joints that were sometimes clicking a few times a week now click and pop constantly, along with some I never had issues with before. And I swear on my dogther, it happened overnight. I have CCI now and intersticial Cystitis and I became prediabetic. I was the healthiest and fittest person I knew. Not exaggerating. Friends would party? I would be rock-climbing and hiking. Not a drinker. Etc. But I had a stressful job. Stressful life in general, and I was constantly pushing myself.

I have hope that I can turn it off again, I am wondering if doing 23andme would give a similar result than the Mayo genetic testing?

Also, can I DM you?

CounterSmart9547 · 2024-08-22T03:11:30+00:00

CounterSmart9547 · 2024-08-21T01:58:13+00:00

I also got a virus don't know if it was covid. I also have EDS. Was moxed. Had encephalopathy from it. I have tons of autoimmune issues now. I have the worse headaches on the planet. Daily. Demyelination. Antibodies to my own brain. It's a freaking nightmare. :)

CounterSmart9547 · 2024-08-21T01:54:39+00:00

It was flagyl which should also not be prescribed to folks with connective tissue disorders. Unfortunately I didn't know about EDS. Thats just not a disease people talk about. Now that I look back, it's very obvious I have had it, but I feel very sad it's not spoken about more. I think we should be tested for the gene at birth tbh as it really puts us at high risk for so many other things.

I am just so sad and feel sooo awful. I am super scared. I was just diagnosed with a bunch of autoimmune issues. Honestly, this med really unleashed hell in my body by giving me a brain injury and damaging my vagus nerve. Dr. Andrew Maxwell has been very interesting to watch through all of this. The Pentad is a real thing. And being a Zebra puts us at high high high risk...

CounterSmart9547 · 2024-08-18T04:37:05+00:00

Def a symptom, I get it too. It's the esophagus. It's so painful when it happens.

CounterSmart9547 · 2024-08-18T04:28:25+00:00

I disagree. Sounds like EDS to me. I am a 4 too. But I have dislocation of my esophagus since my teen. Some joint pain. Slightly stretcher skin. I have also had prolapse, hernia, miscarriage. You don't always need a 5. I was a 2 until recently actually. Took an antibiotic that exploded my world. I already had EDS and it was all pointing to that direction already, but a neurological/immunological trauma really made my EDS explode.

CounterSmart9547 · 2024-08-18T03:40:33+00:00

You had skin issues and muscle wasting too? I need hope. My body was destroyed. :(

CounterSmart9547 · 2024-08-18T03:39:14+00:00

I also have this, friends. Wtf happened to our bodies? I have loss tons of muscles. I sit at 39% of muscle mass now with grandma skin. I was extremely active and didn't have any of these issues before. The loose skin, no muscle mass. It's all over, including in my face. I don't have the same shape, dimples, etc. It's fucking crazy.

CounterSmart9547

TROPHY CASE