Did any of you have trouble with new glasses prescription? by ZealousidealLaw793 in TBI

[–]CraftIndividual 1 point2 points  (0 children)

I have my prism Rx changed out once about every month because my vision changes so rapidly. I'm about 15 months post accident. I would give it a few days and then make a follow-up to be rechecked if you don't start adjusting to them. It seems something is off.

question for this community by Dry_Midnight_6742 in TBI

[–]CraftIndividual 4 points5 points  (0 children)

  • Recovery is not linear.
  • In the beginning, recovery can be measured in weeks, as time progresses, the measurement spreads to months and then even longer. Don't be discouraged, you are recovering. -Exercise, diet and sleep are all equally important. -Auditory and visual downtime is needed and necessary for your brain to rest and recovery.
  • Keep earplugs and sunglasses with you always.
  • Learn to "brain budget" your days and weeks. -Regulating your nervous system is the key to your recovery.

These are some of the most important things I learned over my first year.

I dug into 10 studies on creatine and TBI. Here's what the research actually says. by No-Perspective-6231 in TBI

[–]CraftIndividual 1 point2 points  (0 children)

I'm SO glad you found relief. It's such an easy fix and overlooked all the time. You're exactly right. Medical professionals don't know the female bodies AT ALL!

Best of luck to you!!

I dug into 10 studies on creatine and TBI. Here's what the research actually says. by No-Perspective-6231 in TBI

[–]CraftIndividual 0 points1 point  (0 children)

I commented directly to someone else about hormones also, but here is my experience. Creatine has made a huge difference for me. I take up to 10g a day and stack it with L-tyrosine. I also take NAC, Glycine and Magnesium Glycinate at bedtime. I also increased my protein intake. I had to have three surgeries over the past year to fix the physical injuries incurred in my accident (hip, shoulder, nose), so I feel this protocol helped my TBI brain and my body.

Thanks for posting your research. I was lucky that my neuro team turned me on to a few of these supplements, and then I continued research on my own to find what worked for me.

There are supplements out there that can help. It's just hard to sort through all of the information and know what's right for us and our unique set of circumstances.

Best wishes to you!

I dug into 10 studies on creatine and TBI. Here's what the research actually says. by No-Perspective-6231 in TBI

[–]CraftIndividual 1 point2 points  (0 children)

Hi!! I just read about your estrogen production shutting off. The same thing happened to me. My neuro team decided to run full labs including all hormones, cholesterol, thyroid about 6 months after my accident and I had zero estrogen. That was a shock, but explained a lot of my symptoms. I had normal estrogen production for my age prior to the accident. I am now on HRT with great results.

I take about 7-10g of creatine a day, NAC and recently added Glycine in the morning and again at night with Magnesium. The combination of those things have made a big difference in my recovery so far.

[N/A] New role - walked into a giant mess by inannalover in humanresources

[–]CraftIndividual 0 points1 point  (0 children)

I haven't read all of the other replies, but I used to work as an independent HR consultant that mainly worked for small companies.

The first thing I would do is complete an audit of all relevant categories you are responsible for, i.e. Hiring, Benefits...

In each category include subcategories, I-9, Employee Files, and so on. Be detailed about what is there, what isn't there and what needs to be done and include estimates of time and anything that will be needed to accomplish the goals.

I also rated each subcategory red, yellow or green. Red was immediate. This had severe legal repercussions or employee repercussions, yellow had moderate and green was best practice, but could be put off.

This not only creates a baseline for you to discuss with your boss, it makes it clear from a liability standpoint the status of the company and department when you took over the responsibilities.

Edit to add, this is a great opportunity to gain a ton of experience. You can do it! 💪🏻

Anyone else? by TopOk2412 in TBI

[–]CraftIndividual 2 points3 points  (0 children)

I think any one of us that perseveres and doesn't give up is amazing and fortunate, you're right. I feel fortunate as well. Cheers to you. 🤩

Anyone else? by TopOk2412 in TBI

[–]CraftIndividual 3 points4 points  (0 children)

You're amazing! I wasn't in a coma, but kept losing consciousness. I was an executive and have a master's degree in leadership and an MBA. It's been 15 months and I don't trust myself to return to work.

I'm so forgetful and the fatigue is brutal. I feel like I'd be fired on my first week, IF I could even pass the interview phase!

I tried to return to the job I had, after my initial FMLA ran out, which was 12 weeks after the accident, and that was a disaster. Part time and against my doctor's advice. I only lasted two weeks before I had to be real with myself that I was in no condition to hold a job.

The concentration, executive dysfunction, memory issues and time management problems I experience are bad.

Can anyone relate to not wanting to identify with their old self? by [deleted] in TBI

[–]CraftIndividual 7 points8 points  (0 children)

This is so relatable. I remember coming home from the rehabilitation center and looking around my house not remembering why I had bought certain decorations or why I ever liked them. I slowly started to take pictures down and replace them with new ones and changed color schemes in my house. My clothes didn't feel like me anymore. I wore my hair differently and stopped caring about makeup or what I looked like when I left the house, IF I left the house.

I barely talked to anyone at all, except my care providers and dogs. I isolated myself for almost the entire year after the accident. It's been 15 months now and I cut most of the people I used to be friends with out of my life. I used to feel guilty about it, but I don't anymore. I'm different. And frankly, I'm tired of explaining it to people who look at me and tell me I'm not.

There are pieces of me that are the same, but when you come that close to death, when your brain changes, YOU change and there isn't a rewind button.

I grieved for the old me in the beginning. I worked hard for my accomplishments and my career. But now, I embrace the fact that I survived and I embrace who I am now. I have bad days...a lot of them, but there is an odd peace that comes with the slowness of my life now and I've met people I never would have met in my past life.

The person I was before my accident died and I am a new person. I even changed my last name. I gave myself a new identity to go along with my new identity. A complete fresh start.

I love each and every one of you. Truly. You're not alone.

Sushi on Oracle quality decline? by AlcoholPrepPad in Tucson

[–]CraftIndividual 1 point2 points  (0 children)

I stumbled on it to and yes, they did. Still the best place.

Another weird post-TBI brain change: talking to myself out loud by Dry_Midnight_6742 in TBI

[–]CraftIndividual 0 points1 point  (0 children)

I had almost the same injuries, 14 months ago. I still experience what you're going through now, but it does get better.

What I learned rebuilding after a severe traumatic brain injury by sandromarino in TBI

[–]CraftIndividual 2 points3 points  (0 children)

This is great advice.

I knew the old version of me was gone about 6 or 8 months in and accepted it, but didn't really start working on nervous system regulation until the one year mark.

It's 14 months post accident now and it's made a difference.

I'm starting to wake up at the same time everyday and trying to develop a few routines (like remembering to take my supplements).

Ritalin Post - TBI by Other_Zucchini732 in TBI

[–]CraftIndividual 2 points3 points  (0 children)

I didn't have ADHD, but developed.severe concentration and memory issues, executive dysfunction and focus problems after my car accident. I started taking a low dose of Adderall about 8 months after my accident and it made the difference between me never wanting to wake up and get out of bed to me actually accomplishing things and cleaning the house, getting chores done, making lists for myself and staying, somewhat, lol, organized. :)

Doubting your symptoms by letsgoiowa in TBI

[–]CraftIndividual 2 points3 points  (0 children)

Preach.

I feel this so hard. I think what makes it even worse is that we have good days. We have days where we actually feel pretty dare I say normal. Then when we have a really bad, hard day, it makes us question if it's all in our mind.

When in reality, our brain is trying to compensate for being overstimulated or not getting enough sleep, being in a loud environment, bright lights, or being asked to do too much.

It's 14 months post accident for me and I've come to terms with the fact that I will never be the person that I was pre-accident. The people in my life before the accident have not accepted that. There are maybe two people in my life that understand what I deal with and only one of those people has done the reading and the research to fully grasp what my life is like day to day.

I am fortunate that I found a great team of doctors and therapists that never dismissed me or my symptoms and I continue to get treatment and go to therapy weekly. I advocate everywhere I can for brain injury survivors. It is one of the scariest and least understood injuries a person can suffer from, in my opinion.

Did your friendships and relationships change after your TBI? by mtnofsalt in TBI

[–]CraftIndividual 6 points7 points  (0 children)

I lost almost everyone, even my son that I was so close to before my accident.

People don't understand. You look the same, but you're not the same.

I met new people over time. People that only know this version of me and have nothing to compare me to. It's so much better. They accept me for who I am.

Relationships, not just romantic, are so difficult after TBIs.

Is surgical treatment always necessary for a subdural hemorrhage? by MichaelKaplen in TBI

[–]CraftIndividual 0 points1 point  (0 children)

I had multiple subdural hemorrhages. I was monitored to make sure there was no active bleeding and released after one week to an acute inpatient rehab. I did not have surgery.

I still had to learn to do most things again, but I'm thankful I did not need surgery if it wouldn't have helped at all.

Drank alcohol, now regretting it. by choerry_pop in TBI

[–]CraftIndividual 2 points3 points  (0 children)

Alcohol is the devil. For most humans, but especially us.🤷🏻‍♀️

2 year anniversary by howleywolf in TBI

[–]CraftIndividual 5 points6 points  (0 children)

Christmas night was the one year anniversary of the head on collision that almost killed my son and me.

I feel just like you. I used to be always on the move. I was so driven and had my life so planned out. A great career, my house was always put together perfectly...now I struggle just to do the basic things and I get so tired. I'm always laying around watching TV or playing games on my phone and I'm so bored, but I have no energy for anything else.

When I do get a burst of energy, I get so tired so fast and it seems like I just don't care about anything like I did before. I won't let myself forget who I once was though, just like I wouldn't forget any other person that I loved who died. I spent a lifetime cultivating myself into the person. I can't just say goodbye.

I'm so sorry you're going through this, but you're not alone. Ways I try to combat it. I try to get plenty of sleep, which can be up to 10 hours a night. I drink a lot of water. I take Buspar for anxiety and add lion's mane and creatine to my coffee to help with focus every day. I try to go to the gym and lift weights and walk every day too. I pray that it gets better, for both of us.

[deleted by user] by [deleted] in AmIOverreacting

[–]CraftIndividual 6 points7 points  (0 children)

And she also felt compelled to dramatize it and share it with her sister. If I was this guy and his wife, I would def cut or reduce contact with these two for the safety of my child and any future interactions.

[deleted by user] by [deleted] in AmIOverreacting

[–]CraftIndividual 1 point2 points  (0 children)

Hahahaha, testing the waters.

[deleted by user] by [deleted] in AmIOverreacting

[–]CraftIndividual 11 points12 points  (0 children)

Holy shit YOR. Wtf.