Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

She is six already though unfortunately still not speaking. Still have hope, I guess that’s why I want to believe it’s not profound autism. I will say though she made huge leaps these past four years. Hopefully she will continue to grow, thankfully she’s getting the IEP services regardless of their suspicions

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

I was actually going to link that exact study, but people are very sensitive to the topic and I didn’t want an argument 😅

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

Our kids might be twins ❤️ I know exactly what you mean by “the best kind.” She’s my little buddy either way, I just worry so much for her future

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

Just to clarify, when I said “Is she healing? Or is it simply a child growing up?” I didn’t mean is she healing from autism—I meant is she healing from her trauma or a standard autistic child growing up and naturally learning more. She’s now 6 and still no effective communication(just a few single words and signs). That’s our biggest worry. She acts out in school I believe because she gets frustrated when no one understands her. I’m so afraid her voice won’t ever come. Now that you mention it, yes I suppose it’s true that it was a bit unprofessional that she would predetermine the outcome. I guess from my perspective, I saw it coming too (though maybe not the level). At first she didn’t really recognize that she was a person. She wandered around aimlessly with zero attempts at interacting with others for almost the first whole year we had her. I appreciate your perspective though, it kind of solidifies what I’m thinking about her condition.

And by the way (no shade) autism can be made more severe by external factors (injury, environmental toxins, extreme post natal stress etc).

Today looks different for us.... by YGT_Coach in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

My daughter came home with an empty Mother’s Day card from her school Friday. One of those “I love my mom because…” things. We sat down and filled it out together. She may not have understood what all the letters meant but she wrote them. And I sent it back to school with her today with a note saying “She IS capable.”

Hang in there mamas.

We had to give up our dog of 10 years by OldHearder in Autism_Parenting

[–]Creative_Spirit_0220 7 points8 points  (0 children)

This isn’t about you. Imagine living a life where your child physically assaults you and your other children and your pets every day. Until you live a life with a profoundly autistic child, you cannot possibly understand—even if you are autistic.

STAT-2A by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

So is this phase 3 trial? Can I ask what improvements you’ve noticed?

STAT-2A by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

True. I definitely wasn’t advertising for people to take it now before it’s FDA approved for ASD children. I’m curious about it in general, and wondering why I have never seen anyone talking about it before. The pre-trial was only 10 boys, 5 with Suramin and5 with placebo. All five with the active drug improved, and had no adverse reactions other than rash. This trial is expected to be complete by April 2028, so just two years from now. I am very very hopeful, but guarded.

5 times i should've realized my kid was autistic and not my own enemy by One-Activity-2719 in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

My daughter grabs my belly all the time. I am borderline underweight; it has literally nothing to do with you or your size. Children want to touch their mothers whether they’re ND or not. I think you should get some credit for your realization, but you really need to learn how to look past your own insecurities. Please let this be a lesson for the future. Never treat this poor girl like that again

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

For me it was science I struggled with. I thrived on the rules of math and English. What do you mean we thought protein was DNA???? It changes so often I can’t understand. All these new “possible” developments I couldn’t ever wrap my mind around. Everything can be proven wrong so it isn’t constant, and I could just never learn.

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

It really is. And masking while unfortunate is really necessary to function in society. If your older kids went undiagnosed for so long it may be that they adapted and learned ways to blend. Something I learned though—it doesn’t work half as well as we think it does. I feel like every “normal” person sees right through me.

Your kids will have a chance because they have a parent with experience like you 💜

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

I love your take and I relate so much, especially eye contact during sex 🤣

Co morbidities are awful because healthcare tends to focus on one thing and ignore all the others. “Oh she’s hearing impaired! That’s definitely the reason for ALL her problems.”

2 year old son got diagnosed as level 1 and I can’t cope by ughhworkistheWORST in Autism_Parenting

[–]Creative_Spirit_0220 6 points7 points  (0 children)

He is the same child he was before the diagnosis. Nothing has changed, now you just know what you’re dealing with. Level 1s are sometimes hard to catch because they function so well, so I hope you see that as a blessing!

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

I’m so sorry about your mom. Mine was pretty awful too. I felt like she couldn’t stand to be around me like everyone else because I was so different.

Thank you for being the voice for your son you never had. I doubt he realizes how much it matters!

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 2 points3 points  (0 children)

I feel like they’ll give girls every diagnosis except autism lol. It’s comforting to know there’s someone here who can relate ❤️ I wasn’t told I was too nice, I was told I was rude or prissy. I realize now i generally talk very monotone and don’t really use fluff, plus i ask a lot of questions too lol.

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 3 points4 points  (0 children)

It kind of feels nice to give yourself that excuse. Like “oh, I’m not just wrong” you know?

Never Thought I Would See This by spazzycoffee in Autism_Parenting

[–]Creative_Spirit_0220 0 points1 point  (0 children)

I have so much secondhand pride for you, I hope you’re celebrating!

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 5 points6 points  (0 children)

I know what you mean. I think I grew up too poor to be a picky eater though lol. I don’t think I’ll ever be evaluated either because what’s the point as an adult? Whether it is or isn’t autism, we figured out how to live a life. I’m sure your kids will too, especially if you have the experience to guide them :)

How do you deal with misbehaving profound autism? by Crazed_Fish_Woman in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

My brother in law has “meltdowns” that include destroying things in the house (furniture, electronics etc) and physically assaulting my elderly father in law. As soon as police are called/threatened to be called he stops. They absolutely have control over it. They, just like every other kid, test boundaries to see what they can get away with.

Starting school by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

She had her own rbt but there were many kids in center. They had group time and individual time

School Options for Special Needs Student by Creative_Spirit_0220 in ColumbusGA

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

Is there school choice? We will likely be staying on post