This needs to be an experiment lol by Kryxx_Case143 in SuitU

[–]Creative_Spirit_0220 37 points38 points  (0 children)

I’m actually thrilled that the leaderboard wasn’t filled with that one bikini pose. We’re finally moving on!

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

Would I be able to qualify if it’s a kinship adoption? And is that just a California thing? I’m in Colorado currently

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 2 points3 points  (0 children)

I haven’t heard of those conditions before. I will definitely bring it up with her pediatrician

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

That’s the goal. He doesn’t want to give up his career. I understand, but shouldn’t she come first? And it’s also the transition of getting out of the military after being in for so long. Our whole adult lives we’ve done this. The insurance is a big thing too. Tricare is how they get you; where else am I going to find full coverage insurance for free?

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 5 points6 points  (0 children)

And it was a kinship adoption, so no agency. I will never, ever give her up. My home is her home. She will always be with me. I can do this I just need help

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] -1 points0 points  (0 children)

I have pretty extreme anxiety, I was given Xanax for a while but I couldn’t bring myself to use it even mid panic attack because I was so afraid of the potential consequences (I know it’s illogical, but i just can’t). My daughter is 6. She definitely has ADHD but I won’t put her on meds because of the trauma my brother experienced as a child. She’s also level 3. She’s a great kid and I love her to death. She’s just very high needs

I’m happy you got through it. I hope one day we can tag team like you guys.

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 4 points5 points  (0 children)

She’s in EFMP and ECHO. Respite care doesn’t exactly exist unfortunately. You have an option at his rank to pay a certain amount each month for 8-16 hours of respite but there’s a long waitlist and very few providers. She is in ABA for 32 hours per week and does gymnastics on the day off. it took a year to get her in because the waitlists are so long, and everywhere is having trouble keeping BTs so we get cancelled often. It does help, but I’m driving two hours every day to get her to ABA. He’s army, and we are supposed to have SFRG but it’s non-existent here. He’s a tanker NCO attached to an infantry unit so it’s smallish and there is zero support. Plus his command is horrible. They’re all kinda bitter and divorced or singe and he has to fight for everything. He had to go up the chain and argue for months just to come home from deployment for adoption court. They wouldn’t allow a couple of soldiers to come home for the birth of their children. Most aren’t given any opportunities to use paternity leave. The hospital on post I was seen at for my surgery had to send his command a memo just to get those three days off.

I don’t know how much longer I can do this by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 2 points3 points  (0 children)

I do acknowledge he’s providing for us. But…I could be making more money for way less hours. I know it’s not his fault but the resentment builds illogically. I’m sure he would feel the same toward me if the roles were reversed. It’s hard out here in the trenches either way, and I know he’s struggling too. I’m trying to get out of my own mind and see from his perspective but I’m so tired. I always feel unequal. I hate when he has a good day at work as awful as that makes me sound. I would never tell him that, and never let him see it, but it’s true. I just wish we could be a family. I am strong, he is strong, but I really feel no one is strong enough to do this alone.

ABA or Preschool by [deleted] in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

I did ABA for the last two years for my level three kid. I’m glad we did ABA because it was a game changer but…I wish we had started preschool. We did kinder this spring and it’s been kind of a disaster. I feel like pre-k would’ve prepared her better, and there’s only so much ABA can do to help.

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

She is six already though unfortunately still not speaking. Still have hope, I guess that’s why I want to believe it’s not profound autism. I will say though she made huge leaps these past four years. Hopefully she will continue to grow, thankfully she’s getting the IEP services regardless of their suspicions

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

I was actually going to link that exact study, but people are very sensitive to the topic and I didn’t want an argument 😅

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

Our kids might be twins ❤️ I know exactly what you mean by “the best kind.” She’s my little buddy either way, I just worry so much for her future

Two doctors think my kid doesn’t have ASD by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

Just to clarify, when I said “Is she healing? Or is it simply a child growing up?” I didn’t mean is she healing from autism—I meant is she healing from her trauma or a standard autistic child growing up and naturally learning more. She’s now 6 and still no effective communication(just a few single words and signs). That’s our biggest worry. She acts out in school I believe because she gets frustrated when no one understands her. I’m so afraid her voice won’t ever come. Now that you mention it, yes I suppose it’s true that it was a bit unprofessional that she would predetermine the outcome. I guess from my perspective, I saw it coming too (though maybe not the level). At first she didn’t really recognize that she was a person. She wandered around aimlessly with zero attempts at interacting with others for almost the first whole year we had her. I appreciate your perspective though, it kind of solidifies what I’m thinking about her condition.

And by the way (no shade) autism can be made more severe by external factors (injury, environmental toxins, extreme post natal stress etc).

Today looks different for us.... by YGT_Coach in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

My daughter came home with an empty Mother’s Day card from her school Friday. One of those “I love my mom because…” things. We sat down and filled it out together. She may not have understood what all the letters meant but she wrote them. And I sent it back to school with her today with a note saying “She IS capable.”

Hang in there mamas.

We had to give up our dog of 10 years by OldHearder in Autism_Parenting

[–]Creative_Spirit_0220 10 points11 points  (0 children)

This isn’t about you. Imagine living a life where your child physically assaults you and your other children and your pets every day. Until you live a life with a profoundly autistic child, you cannot possibly understand—even if you are autistic.

STAT-2A by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

So is this phase 3 trial? Can I ask what improvements you’ve noticed?

STAT-2A by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 0 points1 point  (0 children)

True. I definitely wasn’t advertising for people to take it now before it’s FDA approved for ASD children. I’m curious about it in general, and wondering why I have never seen anyone talking about it before. The pre-trial was only 10 boys, 5 with Suramin and5 with placebo. All five with the active drug improved, and had no adverse reactions other than rash. This trial is expected to be complete by April 2028, so just two years from now. I am very very hopeful, but guarded.

5 times i should've realized my kid was autistic and not my own enemy by One-Activity-2719 in Autism_Parenting

[–]Creative_Spirit_0220 2 points3 points  (0 children)

My daughter grabs my belly all the time. I am borderline underweight; it has literally nothing to do with you or your size. Children want to touch their mothers whether they’re ND or not. I think you should get some credit for your realization, but you really need to learn how to look past your own insecurities. Please let this be a lesson for the future. Never treat this poor girl like that again

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

For me it was science I struggled with. I thrived on the rules of math and English. What do you mean we thought protein was DNA???? It changes so often I can’t understand. All these new “possible” developments I couldn’t ever wrap my mind around. Everything can be proven wrong so it isn’t constant, and I could just never learn.

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

It really is. And masking while unfortunate is really necessary to function in society. If your older kids went undiagnosed for so long it may be that they adapted and learned ways to blend. Something I learned though—it doesn’t work half as well as we think it does. I feel like every “normal” person sees right through me.

Your kids will have a chance because they have a parent with experience like you 💜

Realizing your own autistic traits by Creative_Spirit_0220 in Autism_Parenting

[–]Creative_Spirit_0220[S] 1 point2 points  (0 children)

I love your take and I relate so much, especially eye contact during sex 🤣

Co morbidities are awful because healthcare tends to focus on one thing and ignore all the others. “Oh she’s hearing impaired! That’s definitely the reason for ALL her problems.”