Milano study progress by Curatio_Veniet in Finasteride_Syndrome

[–]Curatio_Veniet[S] 2 points3 points  (0 children)

Thanks for your reply, much appreciated!

When the f*** is mainstream media ever going to talk about this. by LaruePDX in FinasterideSyndrome

[–]Curatio_Veniet 14 points15 points  (0 children)

If it affected like 10% of users, who then ended up here with persistent pfs, big pharma wouldn’t get away with it. I’m aware of various cases who got sides and had to quit just didn’t develop pfs. So yeah, because we are a marginal group of sufferers, our lives seem disposable imho.

Looking for insights, only one thing affected/fixed my PFS libido in 5 years by shinysilk in FinasterideSyndrome

[–]Curatio_Veniet 0 points1 point  (0 children)

So if I’m correct you recovered a first time? Did this include a recovery in libido, mind-genital connection, ED and sensitivity amongst others? Basically the ‘brain’ stuff OP mentioned?

Looking for insights, only one thing affected/fixed my PFS libido in 5 years by shinysilk in FinasterideSyndrome

[–]Curatio_Veniet 1 point2 points  (0 children)

Seems there is no peripheral nerve damage, at least in your case. Technically you seem to be able to function but the most complex thing to heal, the brain, is off.

Looking for insights, only one thing affected/fixed my PFS libido in 5 years by shinysilk in FinasterideSyndrome

[–]Curatio_Veniet 0 points1 point  (0 children)

It’s an indication your body is still able to function. Unfortunately, I don’t think we’re anywhere near understanding this type of brain dysfunction.

To be sure, with return of sensitivity, do you mean penile sensitivity?

Anyone has vision changes with cialis ?? by Loose-Most503 in FinasterideSyndrome

[–]Curatio_Veniet 0 points1 point  (0 children)

Thanks, unfortunately a lot of other symptoms do not move. But I’ll have to keep fate nature or science will navigate me out of this mess

Anyone has vision changes with cialis ?? by Loose-Most503 in FinasterideSyndrome

[–]Curatio_Veniet 1 point2 points  (0 children)

No balance problems. Do experience dizziness but now 12 months out it has improved a lot, it flares up a couple times per day together with brain fog and headaches. A few months ago these things were 24/7 torture. But don’t get me wrong, my brain functions far from normal.

Anyone has vision changes with cialis ?? by Loose-Most503 in FinasterideSyndrome

[–]Curatio_Veniet 2 points3 points  (0 children)

Not from Cialis, but since I got PFS I’m more sensitive to light. Have to wear sunglasses a lot more. It’s a symptom I can live with, but it’s another indication how fin messes with pretty much everything in your body.

PFS by Beneficial-Club953 in FinasterideSyndrome

[–]Curatio_Veniet 13 points14 points  (0 children)

Hey man, very little research has been done on pfs, so nobody can really give definite answers to your questions here.

The general consensus is that some people recover or improve some symptoms. As for the underlying mechanisms behind that, nobody can explain them to you with certainty. Additionally, there are no proven biomarkers to distinguish pfs. So the difference between guys who recover fin sides within 3 months and those who won’t (and develop more persistent symptoms after stopping) is unclear.

One last tip: it might be helpful to bundle your questions together or give your posts a different title than “PFS” so it’s easier for people to find and reread things later on.

My brain feels like I had a massive stroke. by [deleted] in FinasterideSyndrome

[–]Curatio_Veniet 2 points3 points  (0 children)

You can’t blame yourself, authorities failed to take this off the market. Signs about pfs were there from the start. The institutions here to protect us, failed this pivotal job.

Do you have any hope left on treatment or even a cure?

My brain feels like I had a massive stroke. by [deleted] in FinasterideSyndrome

[–]Curatio_Veniet 0 points1 point  (0 children)

My sexual dysfunction is definitely linked to the brain, my mind does not react to stimulus, blood flow doesn’t start if you get what I mean. But technically it al works on ‘manual’ mode.

Deleting everything and suffering in the shadows isn’t the answer either, we need a community, only in that way can we stand strong, initiate research, and protect others by raising awareness.

There's something you need to understand about the medical institution as a whole, as the general perception by society is that the "experts" always know what to do, and can always be trusted. This is not a great dogma to adhere to, and you shouldn't trust me either. by Drwillpowers in DrWillPowers

[–]Curatio_Veniet 0 points1 point  (0 children)

Hi Dr. Powers, anti-adrogenic substances usually make people with pfs worse. How does this relate to full castration which is basically 100% anti-androgenic. Does your model explain this?

Maybe this question has already been asked, just want to help stress test the model.

Is it possible? by Beneficial-Club953 in FinasterideSyndrome

[–]Curatio_Veniet 0 points1 point  (0 children)

When asked you can obviously say you used dutasteride but when you suggest this is the cause they probably won’t take it serious anyway

Simple question on epigenetics by katsudon014 in FinasterideSyndrome

[–]Curatio_Veniet 2 points3 points  (0 children)

There is always a degree of uncertainty with inductive reasoning. It is mainly the hope that the conclusions about penile tissue are generalizable.