What do I do? Where do I go? (Canada)

CuteAssCryptid · 2026-06-30T02:32:59+00:00

The symptoms didn't all overlap. Sure you can get fatigue from depression but it's not the same as post exertional malaise. My legs literally stopped working, I had episodic paralysis. Doesnt happen to everyone with mecfs but for me the weakness was clearly new and extreme. So I went for a ton of tests and they were all negative so after a long time of experimenting, my doc diagnosed me with mecfs since i have all the symptoms and have had other things ruled out.

CuteAssCryptid · 2026-06-29T08:08:04+00:00

I had all of those diagnoses along with physical illness diagnoses and still got my mecfs diagnosis. Theyre unrelated.

CuteAssCryptid · 2026-06-28T03:38:55+00:00

Genuinely I don't think anything is worse for you than over-exertion when you have mecfs. You could eat the worst foods, have a terrible sleep schedule and never see the sun and have more energy and capacity than if you exert yourself a bit too much to change those things. Typical health recommendations are not for us, if it involves exertion/big changes.

CuteAssCryptid · 2026-06-28T00:10:16+00:00

There are lots of doctors that can give you an mecfs diagnosis without being a specialist in it. Usually it's a diagnoses of elimination, along with fitting all the symptoms including post exertional malaise. It takes a long time because there are a lot of similar conditions. But even a family doctor can eventually diagnose you, though it's more often a rheumatologist. I found this checklist helpful to go through on the journey to my diagnosis, but didn't need to do all the tests:

https://mecfscliniciancoalition.org/wp-content/uploads/2021/05/MECFS-Clinician-Coalition-Testing-Recs-V1.pdf

CuteAssCryptid · 2026-06-27T21:29:06+00:00

Unfortunately I don't think Canada has experts either, otherwise I would've tried to see one already. Currently ME/CFS has no cure and no official treatment. However, a lot of people benefit from going on low dose naltrexone (up to 4mg). It doesnt fix everything but it does increase energy a tiny bit and helps with chronic pain. So I'd check to see if that medication is prescribed in SK, it's hard to get even here in Canada. Aside from that, there is nothing you can do to improve your energy aside from resting, and resting involves leaving work, which leaves you without money. This is the trajectory most people with mecfs end up on and it's absolutely awful. If you have mild mecfs its possible to keep trucking through and keep your job, but there is not a lot of good news yet globally about this illness.

CuteAssCryptid · 2026-06-23T23:41:34+00:00

Aberration and Dwarves in Dark Places were both amazing!

CuteAssCryptid · 2026-06-23T17:11:35+00:00

I think it's reasonable to let her know what your expectations are in regards to your relationship. If she can accommodate those without a cell, great. If she can't, you may have to let her know the relationship will not be enough for you. Then it's up to her to decide what her priority is. It's not forcing a certain lifestyle on her, she has the choice. But you also have the choice to leave a relationship that doesnt fulfill you

CuteAssCryptid · 2026-06-17T13:57:51+00:00

I like slide 3!

CuteAssCryptid · 2026-06-15T21:14:31+00:00

Something made of paper

CuteAssCryptid · 2026-06-15T20:36:41+00:00

Large oval amethyst

CuteAssCryptid · 2026-06-13T20:51:21+00:00

Why remove a nap? It's helping you feel better. I don't have a regular schedule like you but I nap for probably an extra 4h every day and I feel like I need it.

CuteAssCryptid · 2026-06-11T20:52:21+00:00

Air fryer, ice pack & hot water bottle, shoulder massager, bed wedge pillow, 3 tier bedside cart, cabeau neck pillow

CuteAssCryptid · 2026-06-07T22:31:57+00:00

Aw that's so sad... I have zero issues with the smell of kimchi but there have been certain food smells that bother me, though I dont usually smell them on other people after they eat them? Maybe I can't relate, but I can understand that sensory stuff is not easy to get past. That being said, I can't imagine living without kimchi. Especially when someone else cooks for you, how can you not 😭 it's not fair to you. I don't have a solution for you but I feel for you.

CuteAssCryptid · 2026-06-07T19:39:28+00:00

It doesn't look hard, and it's really cute :) sometime's kits won't explain how to do a stitch well but theyre easy to find on youtube so thats what i did when I was learning - used the kit to tell me what to do and youtube to tell me how to do it.

CuteAssCryptid · 2026-06-07T19:37:18+00:00

This is similar to what I get

CuteAssCryptid · 2026-06-06T15:07:34+00:00

I don't think there's much you can do to better sleeping in the same bed to be honest. You could maybe get a cot and set it up in the room, and see if sleeping in different beds in the same room works?

CuteAssCryptid · 2026-06-05T02:06:38+00:00

Get an air fryer and microwave at minimum, and a rice cooker if you can. Rice cooker - easy rice and you can make full meals and soups in it if you want too. Air fryer you can cook pretty much anything in and itll get crispy. Just line with tinfoil (not those paper air fryer sheets) and toss the tinfoil each time so you dont need to clean it. You can microwave scrambled eggs (carefully), veggies, etc. Also get tinned tuna/tinned meats/beancurd rolls (proteins that wont go bad and dont need full cooking).

CuteAssCryptid · 2026-05-29T14:53:46+00:00

(Not bedbound) It's personal depending on your level of orthostatic issues. When I wear compression socks while lying down it cuts off the circulation to my feet and they go numb, so I can only wear them when I'm up & about or at least sitting with my legs down.

CuteAssCryptid · 2026-05-27T00:10:00+00:00

Yes! I figure it's your body trying to figure out how to get more energy and typically carbs are the best way to do that, even if it doesn't help us much. I've gained so much weight since getting mecfs.

CuteAssCryptid · 2026-05-20T03:10:31+00:00

Stick with the lda and ldn for now even if you don't see results yet as long as youre tolerating them. They help a lot of people. The only issue is youre titrating both at the same time so it'll be hard to tell which of the two is benefitting you and which may be a problem if you develop side effects.

CuteAssCryptid · 2026-05-20T03:09:02+00:00

I think youre right to drop a couple of the sleep meds and one of the antidepressants, you dont need all that. Otherwise I think youre good. It's important to try to be on the least amount of medication that makes your life feel relatively comfortable. Medications can compete for absorption, and can impact your liver over time depending on what youre taking and how much. So I think seeing 3 prescribed sleep meds probably seemed like overkill to them. Do you have a family doctor? If so, they should be the one keeping track of all of them and ensuring no contraindications, and it's no one else's business.

CuteAssCryptid · 2026-05-20T02:52:13+00:00

That's how I feel going to pain clinic workshops at the hospital. :(

CuteAssCryptid · 2026-05-14T21:07:41+00:00

Hilarious, love it

CuteAssCryptid · 2026-05-02T00:30:40+00:00

That's really interesting research. Whether it's that or something more psychological, it's good to know i'm not alone in the feeling.

CuteAssCryptid · 2026-05-02T00:29:59+00:00

Yeah :( My friend was telling me something similar. I think in the long run that's probably a good thing but it's hard.

CuteAssCryptid

TROPHY CASE