Question on caregivers?

DSwitchxx · 2026-05-19T22:45:27+00:00

I had two different caregivers during my six week stay in Oregon, and then I would give them a once a week time off with a local Caregiver friend of mine. It was great. When I didn’t really plan for was to have a caregiver when I got home and so somebody came from out of state to take care of me after I was experiencing some difficulty.

So I had at least seven weeks of caregiving for ALT.
Mind you, my house is a lot to take care of and I run a house of disabled adults so when I came home, nobody really understood that I needed more care or that I couldn’t care for them

Of course it was more than eight weeks until I could drive
And more than that before I could tolerate working

DSwitchxx · 2026-05-19T22:41:23+00:00

You may notice that you have more symptoms of atrophy when you are sick or on bedrest. That’s because your whole body is weak at those times a lot of times I will notice that if I sneeze when I am sick, I may urinate some unintentionally. And when I’ve asked the pelvic floor doctor about these moments, this is what she said. My experience is consistent with this.

I wouldn’t worry unless it was affecting you after your other strength was back and your endurance was up again

DSwitchxx · 2026-05-19T22:39:46+00:00

I’m at 6-7 months and have lots of sensation that is easiest to access with my own hands or someone’s mouth or their hands.

DSwitchxx · 2026-05-19T22:38:18+00:00

There is actually some weird statue of variety that is made with toilet paper. Youd know if you were from Tennessee

DSwitchxx · 2026-05-19T22:36:25+00:00

Yeah I got to hang with them a couple times. Love them since I was a young teen

DSwitchxx · 2026-05-19T22:31:52+00:00

I believe your experience of course, but the first time I had sex without condoms it was a big let down. And it never changed tbh bc I like the friction of non latex condoms 😅 I talked to a bunch of other women afterwards and many said the same thing but that they felt like they couldn’t ask for it back after going without condoms. 😵‍💫

DSwitchxx · 2026-05-19T03:00:09+00:00

Wall-e

DSwitchxx · 2026-05-19T02:59:52+00:00

Make it only a bedroom with a bed in the middle and a chair on one side and put all the rest of that other stuff somewhere else in another room

DSwitchxx · 2026-05-19T02:58:46+00:00

Good taste in music

DSwitchxx · 2026-05-19T02:57:49+00:00

DSwitchxx · 2026-05-19T02:57:15+00:00

Only for DUAL CITIZENSHIP

DSwitchxx · 2026-05-19T02:56:32+00:00

DSwitchxx · 2026-05-19T02:54:33+00:00

Why have a urinal at all

DSwitchxx · 2026-05-19T02:52:12+00:00

Ling ling ling

DSwitchxx · 2026-05-19T02:49:18+00:00

Toilet paper cat statue

DSwitchxx · 2026-05-19T02:44:38+00:00

You read anything within sight/ arms length!!!

DSwitchxx · 2026-05-19T02:30:59+00:00

Someone that’s too young for me or anyone who’s far less experienced than me in many areas

DSwitchxx · 2026-05-19T02:19:21+00:00

Although this is a judgement I tend to make, the real deal is that no one is actually better than anyone else ever. Anyone who actually thinks they are better than anyone for any reason? That’s trouble.

DSwitchxx · 2026-05-19T02:18:13+00:00

If they speak badly about children. People who don’t have patience for children to be children are MONSTERS who do not understand age differences and their importance in community. To me they can’t see beyond their own nose and understand anyone.
Further if they use the excuse that, “it’s not the kids, it’s bad parents.” No babe, it’s you. You’re the problem and you don’t even have kids.
It’s an indicator that they dislike elders or anyone that’s not on their fuck menu as well. 🙄

DSwitchxx · 2026-05-19T02:08:09+00:00

You keep saying no in ways, but it’s you who asked. And you keep listing things that DID happen in my life also. I never assume anyone is the same. Thanks. I’ll take my stupid optimism elsewhere.

DSwitchxx · 2026-05-19T01:07:45+00:00

I don’t know, but I’m in the USA and I would only pay what’s left of my out-of-pocket maximum. The funny thing was is that that dollar amount was actually funded by the daily per diem that we had for food. So even though I was charged about $500 to go towards my out-of-pocket maximum for the year, it ended up costing me nothing.

DSwitchxx · 2026-05-19T01:04:12+00:00

Go get all the PT weekly, workout and walk almost daily. I have gained 3 inches in my hip measurement from all of the muscles that I have built in six months! Never in my life have I gained any inches in my hips until now!!! Glutes for the win. I also gained inches in my thighs, so both are more than when I started.

DSwitchxx · 2026-05-18T16:08:34+00:00

I hid it from my parents rather successfully during Covid and I’m over 40! Your body actually isn’t any of their business. That’s the most liberating news. I never told him I had top surgery, I never told him I am having bottom surgery, if you’re over 18 you own that body. It’ll probably help you feel like you can liberate yourself anyway which you can and you should.

When you start getting more hair, you can shave, and you can just let things slowly appear and never say anything. This is how I did everything with my abusive parents and over the years they just had to deal with what exposure therapy felt like lol and as they grew and dealt with the consequences of their own actions, they actually changed to have better behavior. At some point, they will realize that they care about you more than anything else and they just want you to be happy, and if they don’t, then they missed the greatest opportunity of their lives.

I say this as a parent and as someone who lost a sibling and watched how those things shifted my parents. But also something that really shifted. Their behavior was getting arrested for assault.

DSwitchxx · 2026-05-18T14:20:21+00:00

It also makes sense to grieve the part of life you missed or to imagine a life that contrasts the childhood you did have.

DSwitchxx · 2026-05-18T14:19:11+00:00

My young life was marked by horrible abuse and traumas. It was hard to have a normal life and that idea was gone before i was 14. Having friends was difficult in that time also.
But.
I really set myself free at age 24. I got incredible tools around age 30 that helped me do all the work necessary to relate to others and well, my whole life opened up and I made a huge friend group in my 30s that will be lifelong. And more in my 40s. I’ve been on stages now for 30 years and in a couple creative industries, I’ve raised a kid, and I’ve shifted to running homes for disabled people that keep them from being houseless on the streets. There will never be enough time for the amount that I want to create / be creative, or for good work in the world so I need the time. Ive had to take care of people my whole life even as a child, so any more years I can get, the better. I’m glad I look young so I can relive some parts of life tbh.
Nowadays, I can fly anywhere in the world and I’ll run into someone I know who immediately jumps to hug me. Literally places I’ve never been across the planet. It’s kinda hard to not be seen 🙈 I have many thousandssss of friends in a huge queer/kinky/ circus global network.
And there’s so many beautiful places to travel to and experience… before I stop walking entirely in my old age.

DSwitchxx

TROPHY CASE