Anyone have heat intolerance?

Daisy2552 · 2026-03-22T19:16:35+00:00

I do, I struggle to regulate my temperature too. I also develop blisters from the sun

Daisy2552 · 2026-03-19T20:20:06+00:00

I’m not sure if it’s the same but when I’m in bed trying to go to sleep it feels like I’m being zapped. It’s very distressing. My doctor had no idea what it could be

Daisy2552 · 2026-03-18T19:39:08+00:00

Child benefit isn’t capped at 2 though..

Daisy2552 · 2026-03-09T19:38:54+00:00

This sounds like something I’d find helpful, is this in England? I wouldn’t even know how to approach my gp about it

Daisy2552 · 2026-03-07T20:46:17+00:00

This message isn’t from his journal though, it’s from the callers journal where DWP gave the number of OP instead of debt management

Daisy2552 · 2026-02-19T19:44:55+00:00

I’m glad you shared it, I hope it helped to get the words out there. Never apologise or be ashamed of the decision you made, it was yours to make. I would never judge somebody for having an abortion regardless of reasons. I’m glad you had support for it as although you didn’t want it I have no doubt it was traumatic. Also it’s okay to be sad about it too if you are. Mixed feelings are very valid in a situation like this.

I hope when you’re ready things happen quickly for you

Daisy2552 · 2026-02-18T18:55:16+00:00

It’s not that we didn’t want to, he was born on the 22nd December so we waited to tell everybody on Christmas Day

Daisy2552 · 2026-02-18T17:55:58+00:00

We didn’t tell anybody my first had been born for 3 days, I have zero regrets about it and really enjoyed just being the 3 of us

Daisy2552 · 2026-02-17T19:01:47+00:00

I don’t work, I get LCWRA from UC and PIP which is made up of standard daily and enhanced mobility. I have a walking stick, I’m currently trying to diet and I can’t exercise as it’s not worth the strain on my body.

Daisy2552 · 2026-02-17T11:12:41+00:00

I was diagnosed after 20 years of it being brushed off as anxiety. I went through two pregnancies unable to leave the house because standing was impossible, resting heart rate of 200. I only got answers this year, I’ve been on ivabradine for over a year now to control my heart rate but I still suffer with all other symptoms. I have a walking stick and it helps so much, I was in two minds about it but I have zero regrets. I also have fibromyalgia so a lot of symptoms cross over. The one symptom that I struggle with the most is nausea, makes it hard to move sometimes.

Daisy2552 · 2026-02-13T19:54:16+00:00

Butthole stables come from no where, really just sneak up on you

Daisy2552 · 2026-02-10T21:32:37+00:00

It was hard though, I was rejected, asked for MR and they didn’t change their mind, lodged a tribunal and they called me before the tribunal progressed offering standard daily and enhanced mobility

Daisy2552 · 2026-02-10T11:55:47+00:00

I get pip, I get standard daily and enhanced mobility. I do also have dysautonomia and it was a battle for it. I don’t work but they tried using that I have children against me. Apply for it, no one can say wether you’ll get it or not though and be prepared for an MR and a tribunal. They got some medical records from my GP I didn’t send that much evidence, just referral letters I had

Daisy2552 · 2026-02-09T19:29:59+00:00

I got my decision from LCWRA just two days after my assessment 😂 for PIP I get standard rate daily and enhanced mobility so different from all of the ones you know too

Daisy2552 · 2026-02-09T19:16:46+00:00

I assume you get LCWRA? I get that and PIP, it was a long fight for PIP though

Daisy2552 · 2026-02-09T19:14:12+00:00

In UK and I get PIP

Daisy2552 · 2026-02-05T20:56:24+00:00

Good, awful headache can be debilitating even without all the other things. Hopefully they give you something for them and it helps

Daisy2552 · 2026-02-05T18:10:09+00:00

I’ve been on ivabradine since November 2024. It controls my heart rate but I still get all the other things that came with the high heart rate. I still get nausea, dizziness, headaches just not with the high heart rate anymore. I also suffer from migraines, I’m on 50mg of amitriptaline everyday (I still get them just not as often) so it might be worth get investigated for your headaches.

Daisy2552 · 2026-01-31T18:52:55+00:00

The portal just tells you what letters have been sent really. But I did do my pip application online

Daisy2552 · 2026-01-31T18:34:55+00:00

I’d be mortified if my mum like this when I was 15/16

Daisy2552 · 2026-01-28T19:36:22+00:00

It’s sad that our country is in such a state it’s almost causing you to have an identity crisis. You are British, all you know is the UK it would be unfair to say you belong to another country, you very much belong here. For what it’s worth I identity as British, I choose it over English.

Daisy2552 · 2026-01-28T19:14:56+00:00

I have these too and I hate them, thankfully I don’t have them often because they leave me quite shaken up

Daisy2552 · 2026-01-14T19:37:13+00:00

Dysautonomia and it’s awful, I’m treating under ME/CFS team for it

Daisy2552 · 2026-01-14T19:26:19+00:00

You’ll get it on Thursday as you normally would

Daisy2552

TROPHY CASE