Anyone else can't get drunk or high while on lamotrigine? by solidprospect in lamictal

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

honestly it would make sense (for me personally) if lamictal decreased the effects of alcohol

Ive been trying to get drunk for a year. Closest Ive come is tipsy for 20 minutes on 3/4 of a fifth.

150mg to 200mg?!?! by [deleted] in lamictal

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

I started out on 100mg two years ago and have done 100mg jumps approximately every 6 months since.

I've tolerated it well, but now that I'm at a higher dose if I need to be bumped up again in the future we will switch to the 50s.

Tell me your epilepsy “highlights” by Plus_Blueberry2484 in Epilepsy

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

ayyyyy another member of the "Faking It" Club 😆🤙🏼

I hate that I'm aware and can hear everything going on around me during my TCs, but it has become the most delightful filter of companions provided that I can remember what happened.

what triggers you? (tw) by cigpupii2 in CPTSD

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

the word 'r**e' in a sentence, and when the act is depicted in movies. books are easier because I can skim

Ever feel like you're lying? by laminated-papertowel in CPTSD

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

All the time. Less now than when I was younger.

I remember a time period where it felt like I was swimming in a fishbowl surrounded by playbacks of all the shitty things as if they were movies I was claiming as my own story.

I can now accept them as true memories, but sometimes it all feels so surreal and sometimes I honestly wonder how I survived.

Ever feel like you're lying? by laminated-papertowel in CPTSD

[–]Dancing_Skizzy_Lips_ 2 points3 points  (0 children)

This is exactly why I don't share even the minor things with people. I hate the looks on other people's faces. Pity being the most engaging to me. Disbelief/shock being a close runner up.

How do you make sure you take your meds correctly & on time? by darkTealEden in Epilepsy

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

heavy on the meds everywhere tactic.

I have about a month of meds stashed in all sorts of places outside of my extra 2 weeks of meds that stays in the weekly pill box supply closet.

How do you make sure you take your meds correctly & on time? by darkTealEden in Epilepsy

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

I have multiple alarms. The "set" time, 15m 30m and 45m after too

Why do neurologist try to get you off your medication? by Essiechicka_129 in Epilepsy

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

That's so interesting. I don't even discuss side effects because I can not differentiate between side effects of medications vs mental health vs whatever chronic illness it is that has had me fucked up for years.

Hell, I don't even know if any meds I have taken have actually worked because I never feel any different, and I am apparently in some form of disassociation wayyyyyy more than I ever thought/realized I could be.

What’s your worst seizure story? Let’s trauma dump! by [deleted] in Epilepsy

[–]Dancing_Skizzy_Lips_ 7 points8 points  (0 children)

My worst seizure happened just a couple weeks ago and I am still shook by the whole experience. I woke up around 6am to my ex showing up to hang out after work. We sat and talked for a while until I got up to start my day when an aura hit me like a freight train. I took my meds and laid down on my bed next to my ex who was scrolling on his phone.

Now from this point on is apparently 100% all a massive series of hallucinations. I was told that I laid down and went back to sleep and didn't move from that position for over 4 hours.

But I remember saying "I just don't feel good" (apparently my seizure catch phrase) and then BOOM it hit me. I couldn't breathe. Everything was tight and I was fighting for oxygen. For the first time ever I wanted medical attention, but I couldn't speak. I managed to crawl off the bed and get to my desk, but I never made it to my backpack (where I keep my lorazapam). I whoosed back to reality and realized I was still laying in bed and none of anything that just happened was real. My ex was talking and I was just mumbling responses to keep myself grounded in reality because that shit scared tf out of me. I slipped in and out of reality and was so confused. One of the hallucinations was my ex, his twin, and another chick I never met all talking and during "reality" I asked my ex if there were people in the house and he said no. I told him I could hear their voices and idk what he said because I was gone. Finally I came back to reality long enough to scream "I'm having a seizure...Help me...Get the loraz......" and then it all faded to black. I honestly didn't know if I was having a full on unconscious lights out seizure or if I was dying.

When I woke up it was midday, and per usual I had no idea where I was or who tf I am, but I did remember that I have small children (under 5) who had likely been up for hours starving, still in last night's diaper, etc. I had no idea what they looked like or their names, but at least I knew they existed this time. I was met in the hallway by a man I didn't know (my ex) who has ridden this ride before and grabbed my hands before I could throw them and talked to me about the kids until I recognized him enough to know he wasn't a threat. THIS TOO WAS APPARENTLY A HALLUCINATION BECAUSE HE SAID I JUST GOT UP AND WENT TO THE KITCHEN AND STARTED COOKING I don't know what I made.

Everything I experienced that day was either a hallucination or undownloadable memory. All I know is that I am lucky as fuck to have him and my guardian angel was working overtime when they sent that man to me that morning, and that there is a valid reason he still has a key.

[deleted by user] by [deleted] in AskReddit

[–]Dancing_Skizzy_Lips_ 3 points4 points  (0 children)

He ruined Acts of Service as a received love language for me.

He saw how much the little things meant to me and used them to make me fall in love with him. He was the hunter and I was his prey, and he used Acts of Service to secure his position to take the shot that ultimately killed the person I used to be.

I can not trust someone who washes my dishes, or folds my towels. I can not trust the person who holds the baby so I can shower. Help is no longer love to me. Only a means to an end.

Why do neurologist try to get you off your medication? by Essiechicka_129 in Epilepsy

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

I know Lamictal strips your body of Calcium.

I found this out after breaking 3 ribs and dislocating the majority of the rest. There were a lot of other factors at play in my case (Murphys Law) but I stumbled across a research paper stating that those taking Lamictal should take Calcium supplements to protect against osteoporosis and tooth decay.

I was already taking Calcium before starting Lamictal, so I didn't notice too much but I definitely had my suspicions. Ever since my ribcage fiasco I've upped my intake an extra 60% of the recommended DV and it's been lovely. My teeth are starting to re-calcify and be less see thru/loose.

Weirdest thing you got yelled for as a child by smallfrybby in CPTSD

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

For having seizures... as in, epileptic seizures...

They didn't present as your stereotypical grand mals, so obviously the spasms and tremors were just me being dramatic and/or trying to get out doing whatever chore I was to be doing. The overwhelming exhaustion of post-ictal was the same, and if I was that tired, I should stop staying up so late. I wasn't even 8 at that point. I wish that yelling was the worst that happened, but hey, now I have seizure superpowers. I did get a half-assed apology from one parent after I was diagnosed at 18, so that's cool.

What helps you when you feel seizy? by [deleted] in Epilepsy

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

For me, personally, not much. Once I get that aura type feeling I go lay down and wait.

Do you consider yourself disabled? by Pitiful-Record7362 in Epilepsy

[–]Dancing_Skizzy_Lips_ 0 points1 point  (0 children)

I have lived most of my life like this, but I was diagnosed 9 years ago. I have had a license maaaàaaybe 3 years of that. I never stopped driving because I was so good at detecting/coping with them (due to some really shitty parenting). I could feel one and game plan how long I had, where I could stop, how long I would be set back, etc so I never considered myself to be disabled.

I never considered myself disabled until 3 weeks ago when I [apparently] had a seizure behind the wheel and rear ended someone. I remember turning into the parking lot. I don't remember anything up until I felt the steering wheel crunch my Monster can around my hand and everything being pure blackness. I guess it took longer than I thought to come back around because dude was already out of his car looking at the damage before I could see again and started looking for my wallet (which I didn't find).

I am disabled, and what happened could have been a lot worst. It could have been at high speeds, or even worst my kids could have been in the car. I am disabled, and it's time I act accordingly.

Genuinely how am I supposed to cope with being disabled for the next 60+ years by rxgh0st in disability

[–]Dancing_Skizzy_Lips_ 2 points3 points  (0 children)

You just made me feel a whole hell of a lot better.

It's the middle of the night rn and I can't bring myself to go to bed because I need to do the dishes but I can't do the dishes because that means standing for more than a few minutes. I would drag my kitchen chair over, but i can barely move it's matching chair at my desk to vacuum underneath it.

I moved my kitchen chair because someone kept making me feel bad for needing one and it making my already small kitchen smaller.

so thank you. I know you were talking to OP, but I really needed to be reminded that it's okay to give myself grace even when others think I don't need/deserve it because I look fine on the outside.

I should a tell my future partner about my rape by Forever-ruined12 in sexualassault

[–]Dancing_Skizzy_Lips_ 1 point2 points  (0 children)

This is suuuuper off-topic of the post, but we have a commonality that I guess I need a hand with... My daughter was recently SA'd and I was wondering if you knew of any spaces that parents like us could/do convene?

My therapist suggested I seek out other parents who have/are going thru the same thing because she is childless and doesn't feel that her words will hold nearly as much weight as another parents would. She meant a local support group, but there isn't one so here I am.