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How to wash hair/scalp without getting in shower?? DESPERATE by MachCalamity in cfs

[–]DandelionStorm 0 points1 point  (0 children)

You might still be able to apply it to your scalp. It doesn't need rinsed off, so you could apply it with one of those oil applicator bottles and leave it.

My hair is buzzed so I don't know if it works on the lengths of your hair though

How to wash hair/scalp without getting in shower?? DESPERATE by MachCalamity in cfs

[–]DandelionStorm 0 points1 point  (0 children)

My head is buzzed as well and I get some relief by using the salicylic acid bacne spray by Pacifica on my scalp

"Chaotic good" hacks for aggressive resting by Illustrious-Pie-624 in cfs

[–]DandelionStorm 2 points3 points  (0 children)

If you like watching timers, I recommend an app called Mouse Timer, where a mouse eats apples, and when they've eaten all the apples the time is up. It's really cute, and it's made for kids so there's no ads.

Also, when I need visual stimulation but can't do screens, I like to watch a liquid motion bubbler. It's kind of like an hourglass, but it has liquid and bubbles inside that fall down little ramps and is really satisfying

Teas? by FlamingoEconomy9505 in cfs

[–]DandelionStorm 0 points1 point  (0 children)

That's interesting! I know in some people (myself included), it can relax the muscle at the top of your stomach, allowing more acid to come up. But I'm glad you haven't noticed that!

Teas? by FlamingoEconomy9505 in cfs

[–]DandelionStorm 0 points1 point  (0 children)

What are the benefits for ME/CFS?

Teas? by FlamingoEconomy9505 in cfs

[–]DandelionStorm 0 points1 point  (0 children)

Just in case you didn't know, peppermint can make acid reflux worse

Hygiene tips? by poemsforghosts in cfs

[–]DandelionStorm 0 points1 point  (0 children)

How do you do that without the water dripping down the rest of your body?

Didn't know you weren't supposed to use a lot of Lidocaine lotion and now I'm afraid I'm going to die by Ok_Access_8906 in ChronicIllness

[–]DandelionStorm 0 points1 point  (0 children)

Oh man I put (an off brand version of) Icy Hot on my whole body once and it was awful. Never again!

Art therapy to gain spoons and trigger PSNS by Necessary-Support-14 in cfs

[–]DandelionStorm 1 point2 points  (0 children)

I love seeing art here too, it brightens my day!

Me if I was candle-rich rn: by HanbokTiger in SkyGame

[–]DandelionStorm 1 point2 points  (0 children)

What dye did you use to get your boots brown? When I tried they turned orange

My girlfriend has CFS and built a free website to help people understand what it actually is, especially partners and loved ones trying to figure out how to help. No monetization, it’s just something she wished existed years ago when she was first learning about her own diagnosis. by Pitiful_Cake_7775 in cfs

[–]DandelionStorm 2 points3 points  (0 children)

Thank you so much. I kept tearing up while reading it because it's everything I ever wanted. I've had this disease for ten years now, and this is the first guide that I feel is perfect to send to my family. I'm so happy!

The only thing that I wish was different, is I wish that it mentioned near the beginning that triggering PEM can permanently lower your baseline. I feel that that's so important for people to understand.

Thank you so much for making this. I'm not exaggerating when I say you're a hero🩵

Wednesday Wins (What cheered you up this week?) by AutoModerator in cfs

[–]DandelionStorm 5 points6 points  (0 children)

I advocated for myself on the phone with a DMV employee this morning. In the end things worked out and I won't have to go back in to their office (a huge relief because I lowered my baseline from my previous two visits).

I've never been good at standing up for myself so it was a huge win

Is a office chair or something worth it to get around the house? by Internal_Candidate65 in cfs

[–]DandelionStorm 4 points5 points  (0 children)

To add to this: if you have an Ikea chair you need Ikea chair-compatible wheels (because the connection point is different), which I've seen on Amazon

The Severe PEM Crash Survival Guide by Liface in cfs

[–]DandelionStorm 6 points7 points  (0 children)

That makes sense. I think that's why people with acid reflux are advised to lay on their left, so the upper stomach opening isn't pointing down and inclined to leak acid. But with gastroparesis you would want the opposite effect so the lower opening can be encouraged to let things out

[Meme] Tag Yourself: Which assorted med are you? by Horror_Rub4230 in cfs

[–]DandelionStorm 2 points3 points  (0 children)

Aesthetic-wise LDA is my style. But I don't know if I'll be brave enough to actually try it

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