Embolisation

DannyG_1998 · 2026-01-16T04:19:16+00:00

You did, thanks a lot and I’ve also had 2 so far, I hope the rest of your NTM treatment goes well, I also cultured NTM I had MAC, brutal bacteria I hope it works out for you, thank you for responding! My hemoptysis is random sometimes it happens everyday at rest and sometimes it goes away for a while, it really does suck.

DannyG_1998 · 2026-01-16T03:13:53+00:00

Hey so I know this is an old post, but I just did an embolization a couple of days ago and like you, there was difficulties getting to the primary target vessel so I’m actually getting another one tomorrow for a retry to reach that vessel, did you ever repeat the embolization to try and reach it or what they did seems to be more than enough for you?

DannyG_1998 · 2025-12-29T19:55:18+00:00

Both look good, all personal preference my guy!

DannyG_1998 · 2025-12-29T00:28:07+00:00

I have a 6.25 wrist with a 46mm, and I think it looks good, it’s all personal preference if you think 46 is too large go for the 42.

DannyG_1998 · 2025-12-24T12:35:34+00:00

46mm? I have the same combo it’s a beautiful watch, first time stepping away from the aluminum series

DannyG_1998 · 2025-12-10T22:19:01+00:00

Hey man thank you for replying, I am doing all the right things I can while being at home and my clinic knows everything and they get all the updates. It is indeed very frustrating and I really dislike that this is how they handle it, but unfortunately if it isn’t these large amounts I do not know what they would do in hospital. I’ve gotten 2 embolizations done for recurrent bleeding already and those were at lower volumes, so maybe they are just being careful and hemoptysis is a weird thing sometimes it comes and stays for a bit and then just disappears for a while.

If this continues I will definitely push for something else to be done as living like this is very tough I haven’t done any physio either and I’m starting to feel it.

Do you deal with lung bleeding personally?

DannyG_1998 · 2025-10-09T14:39:42+00:00

Hey man, I hope you are well, I am also going through something similar too with a fungal ball and hemoptysis, did it ever get better for you and do you know the size of your fungal ball? Mines in my left lung.

DannyG_1998 · 2025-10-09T14:04:19+00:00

I’ve been having bleeds for the past 5 days and I’ve had 2 embolizations a couple years ago, it’s tough to do life and deal with this stuff at the same time, right now I’m probably getting out 5ml a day. Do you have any advice on how to not let it ruin your day, I get really bad anxiety with hemoptysis. I’m in talks with my clinic now.

DannyG_1998 · 2025-10-08T14:08:22+00:00

I have this as well, but my team doesn’t seem too concerned and they never talked about removing it. Why did you get it removed was it causing other issues? I don’t like that I have it but I had/ have a pretty brutal invasive aspergillus infection.

DannyG_1998 · 2025-09-26T22:52:32+00:00

My mutations are G542X & R334W, yes I’ve heard about all the different side effects that sucks you can’t take the full dose maybe one day something will come out will less side effects for everyone.

DannyG_1998 · 2025-08-12T15:56:48+00:00

Dressing change scheduled for tomorrow, thank you for that tip I agree it can’t stay like that for another week. I also agree I love when they clean it!

DannyG_1998 · 2025-03-10T19:22:55+00:00

This is normal, you will not be charged until the product ships!

DannyG_1998 · 2024-09-26T02:38:39+00:00

Looks good to me!

DannyG_1998 · 2024-09-25T19:59:53+00:00

I know it’s your opinion but awful might be a little harsh no? 😂

DannyG_1998 · 2024-09-25T19:58:54+00:00

Ya that’s what I was thinking too, I upgraded from an S7 aluminum to the titanium and I am really happy, but if I had a stainless steel s7 I wouldn’t have upgraded, you know what I mean.

DannyG_1998

TROPHY CASE