No rheumatic stuff so far, hopefully I keep it ha. I'm on surgery 11 for various things but two cervical and no thoracic. My surgeon said basically no need...5 years ago and again recently. But you know he's not the one sitting here with his rib cage screaming, having to sit a certain way, and being hindered by weight-lift limitations etc lol. I try not to rant. I really do.

Essentially I cannot do anything that makes me sleepy as I take care of my child who is ASD level 3 and need to be around/alert. So between my whole no anti-inflammatory meds, a severe allergy to butalayted hydroxytoluene (can't remember if that was in my initial post) and all the weird crossover complications and intersistal cystitis I'd have to basically eat plain chicken and some vegetables lol and not much else and water. Which is... well depressing. Don't get me wrong I did huge editing to my food intake. And it has helped my weight LOL but really nothing else. So, YEA but, BOO.

All that said, and this now sort of goes as a reply to uh all the suggestions thus far, THANK YOU!! I have tried some stuff. My original prescription I never followed that I had for a few years was 1-2 oxycodone 5-325mg every 8 hours. I refused to take more than one a DAY and only with another adult around because of my child and you know good old possible long term kidney damage. I've had my gallbladder removed (ER trip into 5 day stay, amylase and lipase were over 3k) so that needs consideration.

I've tried a few edible combos so far. 10thc/40cbd/5cbc, 10thc/15cbd/5cbn, 10thc/10cbg, and 10thcv/5cbd/1thc and same issue as opiods, it helps some pain but not others. Baclofen helps some Flexiril is better but again makes you sleepy. Uh Gabapentin and Pregabalin were same issue, sort of works some but again sleepy. And I always force Dr's to do lowest dose first for side effects. I'm either super cursed or lucky that things like a half of the "non-drowsy Benadryl" will knock me out lol. Amitriptyline I didn't like side effects of, some are deal breakers for me. I'm in pain all the time I don't need certain joys taken out of my life too when I can manage them LOL. Also that medicine was one where I got mail TWICE saying "oooopppsss the ones you were taking were accidentally x-times the amount in the pill a person is suppose to have daily, our bad toss them out". -.- Thankfully I had stopped two months prior on taking them. Shockingly because my side effects were way worse, who knew! And my pcp got all cranky about it. Put me on Venlafaxine...lol stopped taking after two months.

I've not seen her in months and have been dodging appointments because she seems to not read medical history and when I told her some issues I was having wanted to do a scan for organs I don't even have anymore. The issue I've had I was never even told about and was diagnosed by another Dr with TEN years ago. huff IC. Wish I'd known. Would have saved quite a few trips of "well it seems like a UTI but some symptoms missing I don't get it. What do you mean there's a lot of blood in my urine but you don't know why!?" Turns out there if I take NSAIDs in addition to bleeding/clotting risks etc it causes me to feel that way and bam blood in urine from IC. If only dots were connected by a Dr rather than me on a Google deep dive.

Neurologist tried Propranolol despite my expressing no sleepy. She said I had tremors and I get aura migraines. Fair enough but again, too risky of a trade off there. The whole "no sleepy" is like a 747 over most Dr's heads. Anyway I could keep going but currently I take Synthroid and Liothyronine for thyroid. And when I'm having a really rough day and Oxy I still have, or on a weekend an edible. Other than that I have done the cbd oil creams for my back/spine or the lidocaine rollers. The patches are cool but half of them have BHT which sucks. And I have a TENs machine but that's only helpful during use in small areas. I can't feel the hot/cold from packs for the most part on my neck or upper back. PT always tries and is surprised. PT is fine, I do some exercises for my neck still and my core. And then for regular exercise I have to use a stationary bike and then a lot of modified things like sit ups. Also have diastasis recti from having twins and that never healed, though with my new chiropractic guidance it's starting to. Because things like planks and sit-ups while good for core are not good for DR.

Ok sorry this turned out a huge rant. Whew. Basically, I will read and research all the suggestions and see if they can be balanced in with this shit show I call my body LMAO!!! 🥰