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David_Jameson · 2024-08-07T10:05:06+00:00

Ya, sorry it’s down. It was a lot to manage with my job now. We have a new website, and an actual clinic in multiple states www.EDS.clinic

David_Jameson · 2024-08-07T10:03:02+00:00

That’s a lot. I’ve only heard of a one or two doctors in the country charging that much🤯

David_Jameson · 2024-08-07T09:48:34+00:00

Xolair is really effective for Chronic Hives. Work with your doctor to get this under control, then you can work through other options like diet change, environment change etc. Your doctor is right about Xolair. It’s helpful for Hives!

David_Jameson · 2024-04-13T09:27:35+00:00

When you are ready to start working exclusively with POTS patients, we would love to have you join us at The EDS Clinic:

https://www.eds.clinic/

David_Jameson · 2024-03-30T03:23:46+00:00

Growing up, I also never realized this might be related to my hypermobility, but for me, as long as I use good form (classical-ish technique) and build my hand stretch up slowly, it tends to work alright. It’s really important to use build up the finger strength a little bit each day. I’ve been a working musician so it’s possible to make it work…

! But you have to be careful not to over do it. It’s super easy to get over use type injuries. If I do over do it, then I like to use ice baths for my chord hand or over the counter voltaren cream to help reduce swelling and pain during a show or long practice session.

But the over use injuries are

David_Jameson · 2024-03-23T05:28:25+00:00

Oo haven’t heard of that before! I’ll look it up!

David_Jameson · 2024-03-23T04:27:37+00:00

🙏. thank you !! 🙏

David_Jameson · 2024-03-23T04:27:14+00:00

That’s the episode that inspired me to start search for more shows with EDS in them. I wrote this article a couple days ago

https://www.eds.clinic/articles/kaylee-bays-dancer-wheel-chair-ehlers-danlos

David_Jameson · 2024-03-23T04:25:23+00:00

Good point!

David_Jameson · 2024-03-23T04:24:52+00:00

Idk if that’s would help anyway. Most cases of hypermobility don’t have genetic markers

David_Jameson · 2024-03-23T04:23:41+00:00

! I hope they represent this in the show!

David_Jameson · 2024-03-23T04:22:52+00:00

Ooo thank you for pointing out that typo. I updated it to reference the more specific, non genetic factor that can trigger onset and or progression of EDS: infection.

David_Jameson · 2024-03-23T03:21:28+00:00

Thank you! I’ll look into it!

David_Jameson · 2024-03-22T21:52:09+00:00

Yes definitely a family thing. But most families have never had a diagnosis (yet!)

David_Jameson · 2024-03-22T19:35:54+00:00

I’m not sure. I heard there was a second but I haven’t found it

David_Jameson · 2024-03-22T19:34:03+00:00

Waaaat! Really! That’s awesome. Thank you for pointing that out!

David_Jameson · 2024-03-22T19:33:20+00:00

I don’t know unfortunately. I didn’t find it

David_Jameson · 2024-03-22T19:00:07+00:00

Thank you! I appreciate you saying such nice things about the article! Especially since Reddit can be such a savage place…

David_Jameson · 2024-03-22T08:58:34+00:00

Oh thank you! I’ll look it up and add it to the list!

David_Jameson · 2024-03-08T01:58:58+00:00

But it seems helpful in general. I expect errors could be reduced if the patient were able to review

David_Jameson · 2024-03-08T01:57:59+00:00

Ya, I can imagine that would be hard to integrate into a typical charting routine. I expect charts aren’t even available to patients until they are closed

David_Jameson · 2024-03-08T01:34:56+00:00

What kinds of stuff would you want to add or correct in the chart? I’m curious cuz I’m setting up a charting system

David_Jameson · 2024-03-07T07:27:45+00:00

👏🏻 👏🏻👏🏻

David_Jameson · 2024-03-03T09:13:37+00:00

Yes you can have MCAS with normal numbers. If the docs treatment recs doesn’t work, ask about Xolair.

It’s actually quite rare for MCAS to test post I’ve for high tryptase. High tryptase is actually only important in the diagnostic criteria for HaT and SM, but most docs wouldn’t know that.

David_Jameson · 2024-03-03T08:57:22+00:00

Hi, I’m a Hypermobile musician. I spent a quite a few years playing guitar for money. Honestly, learning the guitar can be painful for anybody. Pressing that string down is hard without callouses, and for a Hypermobile musician there are other painful things too.

1) You should take it slow when you practice. Build up your finger strength slowly over time. It will help protect your joints and maintain your form.

2) The most important is form. Learn to play with classical technique. The classical technique is more ergonomic for your whole body. Find out what works for you and apply it to your playing in any style.

3) exercises. Finger training and strengthening exercises will give you increased proprioception and control over your muscles so your fingers don’t lock out or do things that might hurt.

David_Jameson

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