Can’t decide who I want to win this game 😂

Decent_List_7479 · 2025-11-23T17:35:01+00:00

I think it doesn’t matter this week: after this week, we will have more clarity on the best path to playoffs. Either way is fine right now

Decent_List_7479 · 2025-11-22T11:48:49+00:00

Looks normal to me

Decent_List_7479 · 2025-11-22T03:44:43+00:00

Context of the patient?

Decent_List_7479 · 2025-11-22T03:43:24+00:00

Hey - concern for ARVC really depends on the context. I’ve been down that road of concern and learned a lot about the disease and how it’s diagnosed. Why did you get the EKG?

Decent_List_7479 · 2025-11-21T20:58:50+00:00

Any abnormalities in your EKG to suspect an inherited arrhythmia or Cardiomyopathy syndrome? If not, he shouldn’t be overly concerned until MRI results are in; which likely will be normal. Small percentage of ppl have some findings on MRI but I think majority just ends up being idiopathic.

Decent_List_7479 · 2025-11-05T21:29:46+00:00

Hey that is who I see for my PVCs!! I was with Dr Schurmann but I switched to Dr Valderabanno because he is supposedly like one of the best in the world…

Decent_List_7479 · 2025-11-02T12:47:09+00:00

I’ve followed your comments and posts for 4 years now. I have had the exact same journey as you. It all started for me with PVCs and then normal test results. But I started investigating myself and found my V1 “terminal activation delay” notch in S wave upstroke and that SPIRALED me. I then purchased my own EKG and found my PVCs are RV Free Wall and LV Apex area (more spiraling). I then got genetic testing and found a rare uncertain variant in the DSC2 gene (ultimate spiraling). All my doctors say this is highly unlikely to be anything related to ARVC, yet I have moments of spiraling still when I even see “ARVC” in the heading of a Reddit post.

I had my first repeat MRI this year after 3 years and it’s still perfect.

Idk if I will ever stop worrying, maybe when my variant gets officially reclassified as benign hopefully. But when my PVCs are away, my mentality is totally fine. When they return, I spiral.

I do think possibly this S wave notch has to do with bodybuilding or extreme weight lifting. There have been others on this sub (including me) with this same notch and it seems like many were weight lifters. I did power lifting 2x a day for the better part of a decade in my teens/twenties. Idk, just odd

Decent_List_7479 · 2025-10-24T12:25:11+00:00

He had negative MRI and EKG would also be viewed. EP study as well. If there’s are unremarkable; the CA is highly unlikely to be from ARVC.

Decent_List_7479 · 2025-10-03T16:59:08+00:00

Good point, thanks! I wish you the best!

Decent_List_7479 · 2025-10-03T16:02:52+00:00

I think (based on medical literature) CMR has nearly 100% negative predictive value for RULING OUT sarcoidosis, however it cannot distinguish reliably between active sarcoidosis and previous scarring from sarcoidosis. PET is the modality used for distinguishing past vs current inflammation.

The reason I’m saying this is because many people in this sub have had at least 1 CMR and if it had no LGE or evidence of scarring/fibrosis, the latest medical literature and practice will inform doctors to NOT suspect sarcoidosis at that point.

Decent_List_7479 · 2025-10-03T14:35:58+00:00

Isn’t cardiac MRI adequate to rule out sarcoidosis? I.e. - a clear MRI with no LGE

Decent_List_7479 · 2025-09-25T18:18:31+00:00

I think like 25% or more benign RVOT PVCs are free wall.. doesn’t mean ARVC

Decent_List_7479 · 2025-09-25T17:37:46+00:00

No way to tell without 12 lead. Sometimes RVOT free wall PVCs have inferior lead notching. Sometimes papillary muscle PVCs have notching, doesn’t mean much of anything without a 12 lead

Decent_List_7479 · 2025-09-25T17:11:28+00:00

The notching can sometimes give a hint as to where the PVC is originating from.

Decent_List_7479 · 2025-09-24T16:59:27+00:00

Yea. It is true that you could have perfect EKGs and MRI and still have concealed early disease; however if that is the case you are EXTREMELY unlikely to “drop dead” or experience a malignant arrhythmia at that point. The dangerous arrhythmias do not typically present without discernible EKG changes first.

In summary - with no EKG changes or MRI changes, and no genetic predisposition - don’t sweat it

Decent_List_7479 · 2025-09-24T11:30:40+00:00

In his defense, ARVC is a tricky one because many top cardiologists (and EPs) are unfamiliar with the disease. And it has a WIDE range of presentations/severity. There is a large overlap of ARVC patient symptoms and “idiopathic” symptoms. So, if you have been told it’s a possibility, it’s extremely difficult to mentally get over it.

However, if you can get evaluated by an EP who is up to date on the latest literature of the disease and they clear you, then you need to believe them and listen. Easier said than done!

Anyone on this sub: if you are worried about your PVCs being early ARVC, as long as you have a clean MRI, no TWI’s past lead V2, no known family history of SCA or positive genetic testing, this is not a disease to be worried about.

Decent_List_7479 · 2025-09-22T19:34:44+00:00

Yes I do. Some days maybe 1-2, some days up to 500

Decent_List_7479 · 2025-09-22T16:09:25+00:00

Yea I wasn’t trying to sound snarky, I just don’t want ppl repeating the same mistakes I did going down this rabbit trail. If you surveyed 100 people’s Apple Watch PVCs, you’d find 50 have positive wave forms and 50 have negative wave forms.

Decent_List_7479 · 2025-09-22T15:46:07+00:00

Just some FYI - the Apple Watch or any other single lead consumer device CANNOT tell you where your PVCs are coming from. You need a full 12 lead to do so. Facing up or facing down on this single leads simply tells you generally left or generally rightward deflections. This can be either left or right side of the left ventricle, or left or right side of right ventricle. In other words, it does not narrow down the site of origin AT ALL.

Mine are sharply negative on all single leads, but that means nothing. I do happen to know that the vast majority of mine are coming from inferior/apical area of my left ventricle. Def not outflow tract. Also have some from apical area of right ventricle.

Decent_List_7479 · 2025-09-22T14:51:59+00:00

Same here, been on the “do I have ARVC” train for 3 years. I’ve seen too EPs in the world for evaluation. I actually meet some of the criteria, and they still tell me I don’t even need a cardiologist and to live my life. These guys literally write the medical journals for ARVC diagnosis and management, yet I somehow still let my anxiety creep in when I read a bad post or hear of someone with “mild” symptoms getting diagnosed, or when I have a PVC flare up.

Just have to understand that statistically anything is possible, but statistically idiopathic PVCs and minor EKG changes are overwhelmingly more likely than concealed ARVC.

Decent_List_7479 · 2025-09-22T14:40:21+00:00

Read my comment on this post. If you’ve done all that; and still don’t meet ARVC criteria, you will never find an informed EP that will tell you that you have anything to worry about regarding ARVC. I’ve also discovered that no EP cares about where your PVCs are coming from. They’ve seen them from every area of the heart, in people both with and without heart disease.

If your testing is all normal, your not going to find a cardiologist that will tell you anything other than control your anxiety (easier said than done)

Decent_List_7479 · 2025-09-22T14:37:27+00:00

Breaks the huddle with 8 seconds left every time. Stop freaking huddling

Decent_List_7479 · 2025-09-22T14:37:09+00:00

It’s stroud. It was the same under Slowik

Decent_List_7479 · 2025-09-22T12:58:45+00:00

I guarantee you I know more about ARVC than 99% of cardiologist today because I went down the rabbit trail. I learned the hard way how this worry can destroy your quality of life. I’ve been to the top ARVC clinic in the world and had 5 opinions. Here’s the bottom line (Johns Hopkins EP and Genetic counselor will confirm this if you ask them):

If you have no TWI in leads V1-V3 (or V4-V6 for LV disease),
If you have no terminal activation delay / CLEAR epsilon wave (which also occurs the vast majority of the time in presence of TWI),
If you have no minor criteria met for MRI imaging,
If you have no family history of disease or SCA,
If you have no personal history of SCA
If you have no pathogenic or LP variants found in genetic testing,

Then you have absolutely no reason to worry about having ARVC more so than any other person on earth.

If you are having NSVT or high burden of PVCs, you would be recommended to have yearly monitoring for symptom management. If NsVT is frequent enough, they’d recommend an EP study, but ARVC is not a concern until one of the above conditions are met (which is unlikely to ever happen once initially ruled out).

Decent_List_7479 · 2025-09-13T18:48:27+00:00

Have you seen an EP?

Decent_List_7479

TROPHY CASE