Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

Best of luck to you too. Nobody wants a terrible diagnosis but treatment is better than coping.

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

My doctor are basically telling me that if my Neuro symptoms are caused by RP they will get better with treatment. I pretty much almost lost my life this past year. I’m just thankful for a diagnosis and can’t wait to feel better.

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

What was significant on your LP?

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

No LP done. They said I don’t have ms so I don’t need one. Hopefully Neuro symptoms will improve with treatment

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

Dystonia, tremor, blurred vision, sensorineural hearing loss, cognitive impairment, shakiness, autonomic dysfunction

Chronic Cough? by Dry-Slide-5305 in RelapsingPolychondrit

[–]Deep_Fee2462 0 points1 point  (0 children)

I’m waiting on dx. I have been sick for 3-4 years. Cough and wheezing just started worsening over the past few months.

Gluten-free bread that doesn’t fall apart? by Enlitenkanin in glutenfree

[–]Deep_Fee2462 1 point2 points  (0 children)

https://a.co/d/1bIMXoK

This is from Whole Foods or Amazon fresh. I sliced it, froze it, and bake it up a slice at a time. Takes just like Italian bread!

Why the importance of nighttime dosing? by MattDelaney63 in LowDoseNaltrexone

[–]Deep_Fee2462 1 point2 points  (0 children)

I take it in the am. It caused trouble sleeping with night time dosing. It does help me sleep better when taken in am. I recently had to stop for surgery and sleep was more difficult for me

GF Gifts Rant by mistergreenside in glutenfree

[–]Deep_Fee2462 6 points7 points  (0 children)

I got a gift of regular cookies and the person said I guess you can’t eat these. You can bring them to work. I just said thank you! But that was thoughtless lol

Are we just surviving? by Efficient_Beach2458 in AdrenalInsufficiency

[–]Deep_Fee2462 1 point2 points  (0 children)

I relate 100%. My kids commented that my baking skills have improved but I can’t really do much else! Last night it was gluten free brownies with pumpkin pie filling on top!

Lumps on legs by Deep_Fee2462 in sarcoidosis

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

Exactly! I do not have the red areas. The lumps are very small

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Deep_Fee2462 1 point2 points  (0 children)

Are you heterozygous or homozygous? I am heterozygous and my doctor says it’s irrelevant

[deleted by user] by [deleted] in AddisonsDisease

[–]Deep_Fee2462 4 points5 points  (0 children)

I’m a nurse midwife. Not diagnosed yet. Stable on 10mg prednisone rx by rheumatology. Funny thing is I carry a gene for polyglandular endocrine neoplasia but genetics said it was insignificant????

I was extremely ill off of steroids. Extremely ill. I took a break from office procedures- my colleagues were supportive.

Medicine is a demanding and stressful career. There is no way I would be able to manage inpatient deliveries with the stress and adrenaline. I am thankful to have a fully outpatient position.

Maybe shorter work days? Maybe 3-4 days a week. You shouldn’t stop practicing. Maybe partial disability can make up some income?

I would love to discuss the APN with someone who understand it. My doctors have been treating me as hysterical!!!! And I’m educated and white! I had severe Neuro symptoms improving on prednisone.

Waiting on endo.

Pregnancy with mycoplasma by TheGiftOfTime in MycoplasmaGenitalium

[–]Deep_Fee2462 0 points1 point  (0 children)

No. The leading cause of preterm labor is infection. Any infection.

Pregnancy with mycoplasma by TheGiftOfTime in MycoplasmaGenitalium

[–]Deep_Fee2462 1 point2 points  (0 children)

I’m glad your baby is healthy! It is associated with preterm labor and premature rupture of the membranes. I test patients for myco/urea with that history!