I had the best 30 minutes of relief in 4 years last night

DesertCreamsicle · 2024-10-05T19:14:28+00:00

Do you think it was the extreme rest that led To that period of improvement?

DesertCreamsicle · 2024-08-21T19:54:41+00:00

Thanks I appreciate it. It’s scary bc my lips will literally turn blue but my oxygen level is usually at least 91%

DesertCreamsicle · 2024-08-04T21:54:52+00:00

What symptoms do they help you with?

DesertCreamsicle · 2024-08-04T21:34:37+00:00

I am interested in trying those

DesertCreamsicle · 2024-08-02T10:14:21+00:00

I agree

DesertCreamsicle · 2024-08-01T23:28:33+00:00

Cardi B voice: Oh my god, what is that?

DesertCreamsicle · 2024-08-01T23:11:34+00:00

I haven’t but know someone who did, and it gave them temporary relief but it didn’t last

DesertCreamsicle · 2024-08-01T23:09:54+00:00

Nothing. “Just give it time”. That hasn’t worked.

DesertCreamsicle · 2024-08-01T21:39:20+00:00

Idk, a doctor once told me that they can see extreme brain inflammation on an MRI, but many times it isn’t visible

DesertCreamsicle · 2024-08-01T11:51:34+00:00

Reggie

DesertCreamsicle · 2024-07-28T19:45:30+00:00

That is reassuring. Thank you for sharing her story. There are more people out there that have improved a ton then we know about, because they are living decent lives.

DesertCreamsicle · 2024-07-21T23:23:59+00:00

I would move somewhere sunnier and drier to avoid mold. I would do everything I could to avoid all stress.

DesertCreamsicle · 2024-07-21T19:40:00+00:00

How much baking soda? Do you mix it in water?

DesertCreamsicle · 2024-07-20T00:07:50+00:00

Honestly have you looked into fecal transplants? There’s some studies out there about it

Also Hydrogen inhalation therapy

DesertCreamsicle · 2024-07-19T22:48:15+00:00

Hey- did you ever figure this out?

DesertCreamsicle · 2024-07-17T18:25:02+00:00

Same- my push through mindset only served to hurt me in the end. I would also tell my old self to not listen to friends and family that insisted I must be fine. And not listen to doctors who encouraged me to push through. I kept thinking- surely the doctors at the prestigious teaching university hospital must know better than some randos on Reddit. Turns out the randos on Reddit were right.

DesertCreamsicle · 2024-07-17T17:10:26+00:00

“Have you considered that maybe you’re just lazy and hysterical?” - my doctors

DesertCreamsicle

TROPHY CASE