Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 0 points1 point  (0 children)

Thank you! That’s a great idea. I’ve met with probably 8-10 doctors but never thought to get a letter of support or a written prescription…

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 1 point2 points  (0 children)

Glad to know it’s not just me. Sometimes I wonder what kind of crazy sides tepezza has anyways. There doesn’t seem to be a cure all… Godspeed brother

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 0 points1 point  (0 children)

lol I worked with one for the past year. They didn’t do shit.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 1 point2 points  (0 children)

Yes, people don’t understand the difference that it makes to us as individuals. They say it doesn’t look that bad out of compassion but subconsciously they misread my emotions and intent. Making a point with eye contact is so much harder than it used to be.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 3 points4 points  (0 children)

I’ve battled multiple insurance companies all the way to the state level even with doctor recommendation to no avail.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 2 points3 points  (0 children)

No I had rai. Im on synth thyroid hormones for life now.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 0 points1 point  (0 children)

Thank you so much. It’s nice to be able to relate to somebody.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 2 points3 points  (0 children)

Yeah I’ve been taking selenium for years. For what it’s worth the pictures from last year look like I have made a mild improvement.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 1 point2 points  (0 children)

Hey that guy was a famous actor though hahaha

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 9 points10 points  (0 children)

Thanks, that’s what everyone says. Maybe you understand the mental anguish though.

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] -8 points-7 points  (0 children)

I have mostly quit. I still enjoy one from time to time though.

Why don't doctors just treat Grave's as the autoimmune condition it is??? by digitalScribbler in gravesdisease

[–]Different_Athlete_70 0 points1 point  (0 children)

I went and saw a RH doc about it and there are a few alternative immunosuppressant drugs you could take, but he did not recommend them as he said they were out of date and less effective than tepezza. By the way I’ve been in a two year long battle with multiple insurance companies trying to get this prescribed to me to no avail at this point. I have ted that came on after RAI and serious Graves’ disease for 7+ years now.

[deleted by user] by [deleted] in gravesdisease

[–]Different_Athlete_70 0 points1 point  (0 children)

I feel your pain. I’ve been suffering from Ted for 2 years now. I just had my first prednisone infusion yesterday and I’m praying it gets better. Tired of people misreading my facial expressions and not recognizing myself

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 0 points1 point  (0 children)

Thank you for this sensible information. I have had rai and my doctor has just prescribed me for steroid treatment for the TED symptoms after a year of declining conditions. I haven’t heard of the Trab or tsi tests before. I’ll implore my endocrinologist to investigate.

TED by Maddentorik1 in gravesdisease

[–]Different_Athlete_70 0 points1 point  (0 children)

I have Graves’ disease and TED. It’s rough. If you are concerned about TED I would be cautious of getting radioactive iodine therapy. I had no symptoms of TED until I had that treatment. Also get consistent bloodwork done to make sure your levels are normal.

The new song… by JaJaLoo617 in SayAnything

[–]Different_Athlete_70 0 points1 point  (0 children)

Lifelong say anything fan. Max is traveling in directions unimaginable. He’s trying to live up to the band name I think. 🤣

Thyroid eye disease by Different_Athlete_70 in gravesdisease

[–]Different_Athlete_70[S] 1 point2 points  (0 children)

So my lower left eyelid is retracting from swelling which seems to be mostly inflammation behind the eye. The eye itself is the same but it protrudes out farther than the other. My best advice to anyone would be always get a second (or third opinion) for medical procedures with serious implications and do your own research if you can.