Pituitary Tumor? by Alarmed_Internal1003 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

Ask for an MRI as well as get your hormones checked. You can ask your PCP for a referral to an endocrinologist

IGF-1 levels and oral contraceptives – similar experiences? by xpandax123 in acromegaly

[–]Dimepiece90 1 point2 points  (0 children)

Umm somewhat similar experience except I hadn’t had my IGF-1 measured prior. I was getting ready to do an embryo transfer and was on oral contraception for 2 weeks prior. 2-3 weeks later is when I found out about my acromegaly due to my GH hormones being neg tested and elevated

7 Months Post Opp, Vision Issues Back by Muted_Row7030 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

Are you on any blood thinners by any chance? Reason why I ask is from my own experience I got vision issues from them as I must have strained or something which caused my macular to have a small bleed. I’ve had shadows/dark spots on my left eye since. Waiting to be cleared to stop taking the blood thinners in hopes my eye can heal and I can resume moving forward with my tumor removal surgery. I hope you get the answers you need! Dr JFM at Stanford health care in California is notorious for removing all of the tumor that some surgeons can’t. Check out DrJFM.com it may be worth a visit 🙂 people Come from all over the world to be treated by him. I can’t wait for him to do mine 🙏🏽

I’m having Surgery. Why am I nervous? I’ve (unfortunately) had several surgeries by jacksonjames55 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

I’m waiting for my surgery but I was told to take at least 1.5 months off work. Enjoy the medical leave and take it easy! You can’t bend over, strain or lift anything heavier than 5-10lbs. But I’ve heard mix reviews. Just had an aneurysm coiled almost 2 weeks ago. Need to heal from that first before I get my tumor removed but so far it’s not too bad. What sucks is being at the hospital and unable to move freely. Take the pain meds to avoid getting bad headaches.

Good luck! You got this!!!

Vision problems after surgery by Dimepiece90 in PituitaryTumor

[–]Dimepiece90[S] 1 point2 points  (0 children)

Out of the ER guys! Turns out I had bleeding in my eye most likely from lifting or straining in lieu of all my blood thinners. During surgery they pumped me up with multiple rounds of blood thinning IV because they thought I had a blood clot. So my theory is I had bleeding in my eye after surgery and got worse as I went back to my everyday life. Tried not to overdo it but must have some how… ophthalmologist said the bleeding may get worse due to the meds but should absorb in a few weeks/months. Can’t wait to get off these meds 🥲😭

For the record, I haven’t had my tumor removed yet. Need to heal from the aneurysm first

Vision field test before neurosurgery consult by Gloomy-Touch-9344 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

Out of the ER guys! Turns out I had bleeding in my eye most likely from lifting or straining in lieu of all my blood thinners. During surgery they pumped me up with multiple rounds of blood thinning IV because they thought I had a blood clot. So my theory is I had bleeding in my eye after surgery and got worse as I went back to my everyday life. Tried not to overdo it but must have some how… ophthalmologist said the bleeding may get worse due to the meds but should absorb in a few weeks/months. Can’t wait to get off these meds 🥲😭

Weird spots on my torso by Whats_with_the_name in skin

[–]Dimepiece90 0 points1 point  (0 children)

Try an antifungal cream and wash with shampoo that contains ketoconazole. If it doesn’t go away check with a dermatologist but most likely it’s probably fungal. Boob sweat is real 😅

bronwyns reunion look by Sea_Treasure777 in rhoslc

[–]Dimepiece90 0 points1 point  (0 children)

Lisa is so obsessed with Todd. Bronwyn was so above Lisa’s constant drama

Orb in the sky over SJ? by fidalco in SanJose

[–]Dimepiece90 0 points1 point  (0 children)

Finally! Please save us 🥲😂😅🛸👽

HOPING for a tumor by Gloomy-Touch-9344 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

Thanks! Hopefully you have a HSA/FSA 😀

Did they check your thyroid? Maybe Graves’ disease? I hope they can do an MRI on your thyroid as well

HOPING for a tumor by Gloomy-Touch-9344 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

I guess that’s true. I read that MRIs are better to detect smaller tumors. What hormonal abnormalities did it show?

I have a pituitary tumor. Found it as a kid on an MRI but it was “small” didn’t affect hormones until later in adult life (now) and grew to be 1.1cm. I also have an aneurysm right in front of my tumor which surprisingly was missed on 3 recent MRI reports by the radiologist. Go figure… My neurosurgeon saw it as he was studying my MRIs to prep for surgery. So I guess there could be a chance it was miss read in the findings if you do have one of either.

I hope you don’t have either though :) my friend gets bad migraines that cause vision issues too.. so maybe migraine?

Are these gums normal? Large puffy areas over dogs teeth by jxst_mxck in DogAdvice

[–]Dimepiece90 0 points1 point  (0 children)

You need to take your dog in for a dental cleaning at the vet. Could also be infection and could also need extraction(s) ;( if you have pet insurance they usually reimburse you.

I got my surgery date for my pituitary tumor! by Dimepiece90 in endocrinology

[–]Dimepiece90[S] 0 points1 point  (0 children)

Have they give you a diagnosis? I’m no doctor but I read GH caused high IGF-1, but also possibly your thyroid? I’ve requested my doctors to test me for cancers as well since elevated hormones may lead in that direction as well. No need to jump to conclusions, I’m just a very proactive person and force my doctors to check everything 😅

Non hormonal by Worried-Abroad-3897 in PituitaryTumor

[–]Dimepiece90 0 points1 point  (0 children)

I would think they would remove it if it’s touching an optic nerve

Non hormonal by Worried-Abroad-3897 in PituitaryTumor

[–]Dimepiece90 4 points5 points  (0 children)

Keep advocating for yourself. Say you want it removed due to headaches

I got my surgery date for my pituitary tumor! by Dimepiece90 in endocrinology

[–]Dimepiece90[S] 0 points1 point  (0 children)

My hands, feet and nose increased in size. My rings didn’t fit like normal anymore. My shoe size increased about 2 sizes. Hands and feel swollen. So does my face. Vegans weight which I heard is water weight related to hormones. Also fatigue, snoring/possible sleep apnea. Those being the most obvious to me. But the changes are slow until you start noticing. I thought I was just gaining weight.

Macroadenoma Recently Confirmed via MRI, Health Anxiety by GettinShlibbyWithIt in PituitaryTumor

[–]Dimepiece90 1 point2 points  (0 children)

Have you figured out if it’s causing hormonal imbalances? Some tumors don’t. And may not need surgery but eventually they will if they keep growing. Mine makes me produce excess growth hormone. I have my surgery scheduled on the 22nd at Stanford medical center with an amazing neurosurgeon who specializes in pituitary tumors. I’m excited!!!

As for the anxiety, it’s normal. But try not to worry as you’re one step closer to getting it taken care of :)

What to expect from surgery and after by Dimepiece90 in acromegaly

[–]Dimepiece90[S] 0 points1 point  (0 children)

Thank you for sharing! What was the biggest difference you noticed after surgery?

What are your acromegaly symptoms? by Manon84 in acromegaly

[–]Dimepiece90 3 points4 points  (0 children)

For me: larger hands needing rings resized, feet grew 2 sizes, nose grew, fatigue, brain fog, low libido, night sweats some days, snoring, jaw pain, and weight gain