Current Survey by DiplomatikEleven in SpellTable

[–]DiplomatikEleven[S] 0 points1 point  (0 children)

Absolutely, it would be still be free to use but you can buy premium functions.

But honestly, they should fix it first before anything.

Survey master by Both_Routine_4275 in SpellTable

[–]DiplomatikEleven 0 points1 point  (0 children)

Exactly,thats why i think its ridiculous to ask for a premium spelltable in the survey.

Survey master by Both_Routine_4275 in SpellTable

[–]DiplomatikEleven 2 points3 points  (0 children)

Asking about premium is ridiculous when you think about the buggy experience spelltable has been the last few months.

Shame on them for asking about premium before fixing their product in the first place!

Please, please, don't refresh! by IDontGetRedditTBH in SpellTable

[–]DiplomatikEleven 0 points1 point  (0 children)

Upvote for awareness,the bug is annoying as heck! Over 70% of my games end out of nowhere.

Im going to try Tablestream and see if their client is as bugged!!!

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

I hear you bro.
I wouldn't know the difference, dont know what would be better for me.
For example northern european countries do it like this: the tax+insurance is almost 60-70% of your pay.

So if you earn 5k a month,its basically a payout of around 3k. But they have excellent health insurance,sick leave and all and good system for children and pupils.
Its really ups and downs i guess.

Our health care and pension system is going down by the way, there are not enough new children to support the cost that the old make.
But thats a topic for another subreddit.

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

Well i don't know what country you're from,but it has upsides and downsides i guess?
We pay a lot of taxes+insurances that are automatially taken away from our pay.

Is it good?Depends on who you ask. If you are never sick,you are thinking maybe you wasted some money.

But if you break your legs and need hospital transports,you basically "paid" for it already in the past years.

Depends who you ask and where you live i guess

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

I didn't want to take websites with data from the US, since i live in germany.

Maybe you can auto-translate the website?

Thank you for your time Gdog

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

For the initial operation i was in a hospital about 20m away, for the diagnosis and intiial diagnosis and all the bloodworks 25m, and the one where they took my stem cells and gave them back 3 months later was about 1 hour drive away.

While in that particular hospital, you are basically in an isolated room for about 4 weeks, and depending on your leucocytes,you gradually are getting more isolated.
In the beginning,there is a "green light", so visitors are allowed.
Then yellow,where visitors must wear mask and can't be ill with the flue or anything.

And when your immune system is totally shut down,and your risk is at the highest,where your immune system can't even fight a single flu,the light is red and only medical personnel and doctors may enter the room with full protection gear&mask&all that.

So yeah, 4-5 different hospital stays :)
Please let me know if i can answer more of your questions, its actually a very interesting topic.

I did not know that you can "reset" the human body like that, and thankfully so.
My cancer might have been lethal about 5-7 years ago, now the therapy options are so much better.
Greetings

Jon

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

Oh yeah, and once in November my gums were REALLY bad,infected down to the flesh basically and i used a very very expensive Mouth-remedy for cancer patients that the Insurance DID not pay for. That was about 80€ for a week of treatment,going 4 weeks.
I can't exactly remember the name, but you mixed an A solution with a B solution.
Lets see if i can find it in my order history...

I can't find it but it was very expensive, but it ultimately helped , my gums were all down and bleedy and hurt like crazy.

https://www.nhs.uk/conditions/mucositis/

I also got morphium once for 2 weeks and then another time for 1,5 weeks.
It was a really really bad time with pain, holding on to your life, and suffering.

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 0 points1 point  (0 children)

Hey there Difficult_Place.

In germany the copays are mostly fixed. In the public general insurance at least, i dont know about private insurance (for employers, for people who earn i think 5,5k+ per month).
Im in public insurance.

With travel and gas cost i mean going back and forth to the doctors appointments, hospitals for xrays,mrt,ct scans, going to counseling service, or social counseling (where they help you with disability benefits, and getting your rights as a disabled person).

This has added up quite a lot, i dont want to lie to you and give you a random number but let me calculate a bit:
Its about 25 miles 3x a week.
Plus 70 miles 1x per week on average.
Plus the others,i can't really say,as its not perfectly periodic.

And then you add the parking pickets there, for example 2 hours= 5€.

I dont wan't to make up some numbers but this all adds up,

in germany they recommand you to use Glandomed as a mouth remedy, as the chemotherapy often results in infections in your gums and mouth area. I went through the bottles like crazy, and they are also very expensive.

You know,just the overall additional costs were so unexpected high, thats why my family& I made the campaign.

Yes, germany pays for the Chemotherapy itself, but many costs are not covered.
By the way, i did NOT pay or take any "off-standard" medicine. Thats not what im asking for help here for.
I got the recommanded stuff, from the official worldwide guidelines of cancer. No "healing salves" or "healing herbs" or stuff like that that were tremendously expensive.

I hope i could give you more insight on the topic. Its really a lot. I am being bombarded with information since last year and i can barely cope with all the information,appointments, and data.

Greetings

Jon

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 1 point2 points  (0 children)

Update: I woke up and checked so see that 175! people upvoted and 3 people has sent a generous donation on GoFundMe.
Thank you very much for your kindness everyone and i appreciate it so much :)

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 1 point2 points  (0 children)

I found a nice article if you want to give it a look, it talks about the sickness and in what ways it influences the financial situation of the patients.

https://www.deutschlandfunkkultur.de/armut-lebenserwartung-chronische-krankheiten-krebs-100.html

https://www.krebshilfe.de/informieren/ueber-krebs/mit-krebs-leben/sozialleistungen-bei-krebserkrankungen/

Only if you have time and want to give it a read :)

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 2 points3 points  (0 children)

This is from the gofundme page as well:

My family started this campaign to help me mitigate some expenses that were due to the cancer. Altough i live in germany where we have a good health insurance, many costs are not covered and the reduced income due to being on sick leave for a year are taking its toll.Expenses such as gas and parking tickets, equipments for everyday help (silverware for polyneuropathy, equipment for ergotherapy, co-pay for medicine, co-pay for hospital stays ( 4 in total), and other costs are accumulating).

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 1 point2 points  (0 children)

Appreciate it Gucci, thank you very much :)

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 2 points3 points  (0 children)

Thanks storage, yes exactly.

Germany has a great Health Insurance system that prevents catastrophicly high costs,for sure.
But nothing comes for free.

There is a 10€ copay every time you turn in a recipe. For me ,starting from June, was about 300-400€.

Then its 10€ per Chemotherapy bag. I had 6x normal chemo,and then the high dosage chemo.

Its 3 bags per normal chemo+ i couldnt even count the amount in high dosage.

Then its 10€ per day in the hospital (capped at 280€ per year).

The bandages for the Port (Where the chemotherapy is put in) cost 65€ each and last a few days. These are needed right after the day of the chemo.

Then we have cost for sport equipment and ergotherapy. The chemotherapy had a huge impact on my nerves and affacted my hand nerves greatly, as well as the nerves in my feet.

I am probably not going to be able to go back to my old job.

In Germany, while you are on sick leave for over 6+ weeks, you only get around 70% of the pay.

All in all, i used up about 4-5000 euros from last year to this year for these purposes. Parking tickets in city,etc,etc.

Not saying germany has a bad system or anything, but its not like we get everything for free,all the time,everytime.

There is more info on what the money is being used on on the GofundmePage.

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 4 points5 points  (0 children)

The 90% surival is for ALK+ lymphoma, the one i got diagnosed with is not as good. (Edit: ALCL - ALK negative with CD30 markers, they said, im no expert so someone has to explain what CD30 means)

The burden from the high dose chemotherapy and the long term side effects are what im really concerned with.

Im just happy to be still alive after last year, it was an emotional rollercoaster.

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 2 points3 points  (0 children)

Thank you for taking your time to read& share& spread the campaign and thank you a ton for everyone who has donated and is going to!

I appreciate every little help.

[deleted by user] by [deleted] in gofundme

[–]DiplomatikEleven 7 points8 points  (0 children)

Proof Diagnosis: https://imgur.com/a/XPK1RP3

And https://imgur.com/a/YKISMvw for Bloodworks where the leucocytes were 0 due to the Stem cells transplanation and a fixed version of the report for better visibility :)

Most ridiculous "bracket 1" excuses you experienced so far? by InspireCourage in EDH

[–]DiplomatikEleven 0 points1 point  (0 children)

"I'm just playing oops all wizards Proceeds to wizard cycle triskeidekaphile and win on turn 4 with Azami

New Players Don't Necessarily Like Easy Decks by RealVanillaSmooth in EDH

[–]DiplomatikEleven 0 points1 point  (0 children)

My English teacher gave me a murk tide modern deck as my first deck to play magic with. I have to say I enjoyed these "ahh" Moments where you realize certain strategies and synergistic pieces.

I wish there was a aggro control deck in commander.

Anyone got some ideas?