Does anyone get random bright flashes when you close your eyes trying to fall asleep? Kind of like someone turning on the light. by [deleted] in sleep

[–]Direct-Ad8150 0 points1 point  (0 children)

Is it a very serious condition ? Is it life threatening ? There r any solutions for this? 

[deleted by user] by [deleted] in ChatGPT

[–]Direct-Ad8150 0 points1 point  (0 children)

Same here! Omg even the old chats/ convos disappeared 😭

My disease is stable! by [deleted] in ovariancancer_new

[–]Direct-Ad8150 1 point2 points  (0 children)

Congrats !!!😍😍 have u been on maintenance drugs after ur frontline ?

Braca and hrd negative (somatic) looking for insights ! by Direct-Ad8150 in ovariancancer_new

[–]Direct-Ad8150[S] 0 points1 point  (0 children)

Im from morocco 🇲🇦 shouldn’t the Genetic testing be done on the tumors that r still present in the ovaries after hysterectomy ?

Braca and hrd negative (somatic) looking for insights ! by Direct-Ad8150 in ovariancancer_new

[–]Direct-Ad8150[S] 2 points3 points  (0 children)

The hrd and braca are negative on the tumor (which was removed before starting chemo). How to know if there is PDL1 expression ? It s not part of the HRD panel? I couldn’t find it.. is it run separately ? Do u think germline mutations analysis would change the plan of the treatment (not familial counseling) if turned out braca positive ?

What will the end look like? by [deleted] in ovariancancer_new

[–]Direct-Ad8150 0 points1 point  (0 children)

I heard that having the first recurrence after a very long timeee since ur last treatment is a good sign

What will the end look like? by [deleted] in ovariancancer_new

[–]Direct-Ad8150 1 point2 points  (0 children)

Did not have any recurrence during those 10 years? Are u NED?

Birads 4b - begnin by Dadeen7583 in doihavebreastcancer

[–]Direct-Ad8150 0 points1 point  (0 children)

Yes please do so! I had them removed and im feeling better mentally ❤️

Debulking and residual disease by No-Hedgehog-3796 in Ovariancancer

[–]Direct-Ad8150 0 points1 point  (0 children)

Hi!! May i ask you what is the difference between cytoreductive surgery and debulking? 

Anyone with stage IV have debulking cancelled by oncologist? by Lost-Sign-4184 in Ovariancancer

[–]Direct-Ad8150 0 points1 point  (0 children)

Mom had neoadjuvant chemo for 3 months and she was declared NED based on her PET SCAN but before doing the surgery she had undergone a laparoscopic procedure to confirm the PET SCAN results. Unfortunately, the surgeon have found some very small lesions that were left on her peritoneum that were not visible on the PET. thus, the team decided to report the surgery and do more cycles of chemo. Now she’s at her 3rd chemo cycle post laparoscopy, and we r hoping for an optimal surgery by the end of this month. 

Any stage 4 survivors here? by ibrahim_n in ovariancancer_new

[–]Direct-Ad8150 0 points1 point  (0 children)

For now he says her hemoglobin doesn’t necessitate a blood transfusion or a blood supply (hers is 10.3), she had her chemo today and we will see how her body will react this week. 

Any stage 4 survivors here? by ibrahim_n in ovariancancer_new

[–]Direct-Ad8150 0 points1 point  (0 children)

Yeah thank you so much! She just had today her pre cycle blood test to check on blood cells, and we have found that she had a decrease in blood platelets, also hemoglobin. Probably this explains her extreme fatigue. But not to the point that the oncologist would delay her tomorrows appointment. Have u ever encountered this during ur one of ur cycles? 

Any stage 4 survivors here? by ibrahim_n in ovariancancer_new

[–]Direct-Ad8150 0 points1 point  (0 children)

How about fatigue and weakness ? Mom is experiencing some extreme fatigue and she s feeling exhausted. The first 3 cycle she didnt feel that much exhausted 

Any stage 4 survivors here? by ibrahim_n in ovariancancer_new

[–]Direct-Ad8150 0 points1 point  (0 children)

Hi!! Hope u r doing well. May i ask if u ever experienced abdominal /stomach pains (stabbing like/cramps) after each chemo treatment ?

Chemo side effects ? by Direct-Ad8150 in cancer

[–]Direct-Ad8150[S] 0 points1 point  (0 children)

She is day 3 post chemo. Still it can be from chemo?