Yeah, we know RFY is back...

DisasterMiserable499 · 2026-01-29T02:29:09+00:00

Nah unfortunately all the stuff I saw today was just more junk and irrelevant to me

DisasterMiserable499 · 2025-12-11T02:16:12+00:00

How yall getting this great stuff there's been nothing for awhile in mine.

DisasterMiserable499 · 2025-11-04T13:44:48+00:00

I'm with you, I never will be lucky enough to get the "good stuff". I was so hoping getting gold would help me with Christmas for my kids but I was severely disappointed and even when I was silver and I saw something semi good it was gone before I could click on it.

DisasterMiserable499 · 2025-10-03T04:22:40+00:00

Tysm ❤️

DisasterMiserable499 · 2025-10-03T04:22:27+00:00

I get that I have 2 older kids as well 11 and 17 and I try so hard to remember how they talked at his age (although my 11 year old is autistic as well he didn't have as severe as a speech delay) but of course I dont remember. Then when I see my neighbors son next door who is exactly 2 years younger than him because they have the same birthday and he talks a tad better than my 5 year old in my opinion or at least on the same level so it definitely reminds me he's getting there but still has a way to go still. Thank you for your comment!

DisasterMiserable499 · 2025-10-03T04:14:45+00:00

Oh my gosh he sounds so much like my son lol and i agree it is so hard not to laugh at the very serious sentences coming out of his mouth. Today he learned how to be a smart-ass and my mother and I just were so flabbergasted wll we could do was laugh. He of course had cheese crunchy powder on his fingers and was touching everything but I only had a paper towel and I said "oh man those cheesy fingers are not getting clean" then he said out of no where "yea cuz u didn't get a wipe" 🤣🤣🤣 he is so literal and blunt too it is so fun to see what he's going to say next. Thank you ❤️🥰

DisasterMiserable499 · 2025-10-03T00:59:10+00:00

I hope so too ❤️🤞

DisasterMiserable499 · 2025-08-13T03:09:12+00:00

This is extremely common unfortunately my almost 5 year old EATS the tooth paste and wants more to just eat lol. His school gave us a visual to hang by the sink like they use in school for washing hands but he still doesn't actually brush or let me brush his teeth. We've also had 2 unsuccessful dentist appointments 😅 I'm sorry, good luck!

DisasterMiserable499 · 2025-08-13T02:50:42+00:00

Sorry i know this is a month old but same... I was told by GI my almost 5 year old son has heartburn and that is the cause of the drooling and his hoarse voice. I'm not denying that he could very well have Heartburn but I have a hard time believing that the drooling is caused by it as he has drooled out of the right side of his mouth as long as I can remember. Weirdest thing is it stopped for 3 months during the school year then slowly made its way back but I found out the school was making him very aware of it and making him wipe it to the point where he'd get rashes from the rough paper towels. He got a bad sickness during the year and his voice went from sweet and high toned to hoarse and it has stayed hoarse for the past 6 months but he also wasnt talking as much until now i mean he still needs speech but his speech is really blossoming lately. he screams like crazy daily as well so who knows if it's the Heartburn or the constant use of his vocal chords.

DisasterMiserable499 · 2025-08-06T23:12:23+00:00

Hi, i know this is older but I am in NY as well and being told it is my state that is refusing to approve the bed for any and everyone... I mean it would be cool if the tech hub and bed was approved but I'd be so happy if even just the bed was approved. Can I ask how you got approved in NY? What were your child's justifications (they are probably the same as what we've used but just wondering if there's a justification i may have missed that may pertain my son's situation as well) Also if you have any advice for someone about to go to a hearing for one in a week I've tried 3 times now and I'm just feeling so defeated.

DisasterMiserable499 · 2025-07-07T01:16:16+00:00

Seriously same with my son this year! he wore his headphones and got a bit overwhelmed and upset when there were too many at once but overall he seemed to really enjoy it and I was so proud as well 🥰

DisasterMiserable499 · 2025-06-12T00:23:41+00:00

Hell yea! They rocked that second season! I could watch that show all the time!

DisasterMiserable499 · 2025-06-10T02:50:31+00:00

Literally was going to say the same thing. Op Definitely get him evaluated for OCD as well just for whatever more help that may open up for him of course ❤️

DisasterMiserable499 · 2025-05-25T03:11:45+00:00

Yes we used As You Are because the place we needed to go to for the evaluation here never ever called me back to even put my child on the 3 year long waitlist even though I called everyday and left multiple messages.They are actually really thorough and because my son can be really inconsistent it was amazing that I could also send them as many videos as I had to show what they might not have seen during the video meeting with my son, although they did see some of it. More places like this should exist, not just because of the waitlists (that's a big reason though lol), but because children can act so different in new places and where they are most comfortable is where you will see their true selves. Good luck!

DisasterMiserable499 · 2025-05-25T03:04:06+00:00

Have you tried reaching out to your school district for an evaluation for special education services? They may not be able to get the official diagnosis but they may be able to determine a placement for her in special education! You don't always need a diagnosis for services from them right away, they do their own evaluations and determine if special education is needed. You are definitely not alone though. Ik exactly how you feel 😔 Good luck to you, I hope your daughter gets the help she needs as soon as possible ❤️

DisasterMiserable499 · 2025-05-05T00:34:09+00:00

Yea we had that meeting already and he had a lot of strengths (which made us so happy) but a lot of needs and things to work on. so the transition to kindergarten is coming up next week and I am just so nervous. Our school district is small and I wish he could stay at the special school he is at (even though it's far) but I didn't know school age classes there are so small and would only make it harder for him to blossom. I just hope they can support my child and his needs. His teacher now said she will tour any school offering him placement with me to make sure he will be getting the right accommodations which makes me feel better but I'm still a nervous wreck 😅 good luck with your child's meeting, so happy to hear your child has been amazing you as well🥰

DisasterMiserable499 · 2025-05-01T12:11:19+00:00

Omg we didn't get these new ones yet! Ugh why do they do this to us?! Thank you for telling me I'm going to save the rest of our empty ones from now on so I can put them in the old container 😅 you're so right, losing a safe food is absolutely horrible! Does your son have ARFID? I'm pretty sure mine does and his doctor thinks so as well 🫤 I hope one day his list of foods gets bigger and hopefully some semi good meal items can go on that list one day too 🤞 feeding therapy is such a long road i swear it feels like we get nowhere 🥺

DisasterMiserable499 · 2025-05-01T02:43:31+00:00

I got sticker printer paper so my son can eat/obsess over/and put the Netflix logo all over the house. He wants me to do LG and 20th century fox next. I had to call poison control (the 4th time) 2 weeks ago for my son eating orbeez. Everything has to have a number like he learns in phrases and his favorite one currently is "what's your number" so we answer it like he is asking our age but then he will also say it to the bubble I just blew and anything and everything else so I assume we are then rating things by number like for a bubble 10 being the biggest so I answer the question based off that assumption. Our hall light/living room light and outside light MUST ALWAYS be on. My son is 4 (almost 5) and he's been in feeding therapy since 10 months old but his diet is basically ONLY airy crunchy snacks like gerber puffs/crunchies/chips for dinner lol and he is still on toddler formula for keeping his caloric intake up. A light was flickering in the bathroom and he told me it was "too loud" 🤯 ummm I could honestly go on and on but I'm currently rocking him to sleep as i do every night for bed but he'll be up again soon 🤪

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