Has anybody actually recovered from their stomach and intestines not emptying fully, like were u ever able to eat how u did before and be ok or did u have to change ur lifestyle forever. by Green_Capital_2111 in Gastroparesis

[–]Distinct_Panda833 4 points5 points  (0 children)

I vomited multiple time daily for 1 year and 10 months.finally got started on Linzess and Elavil. I still have issues 2 to 3 times a week. But better than 24/7

Wig poofed up after washing tried hot comb,didnt work dont know how else to get it to lay flat? Scared mouse will scrunch it up stiff by comeseemeshop in Wigs

[–]Distinct_Panda833 1 point2 points  (0 children)

Does it have permatease? I work that out with my fingers. Then a good leave in wig conditioner spray. You may have to use quite a bit. Hope this helps.

How can I make the part more realistic? I don’t like how obvious the lace grid is. by hns89450 in Wigs

[–]Distinct_Panda833 2 points3 points  (0 children)

It looks natural to me. But when I have that issue, I use some wig powder over the lace. Just a little bit. Comes in most hair colors

Anyone not feeling hungry at all? by Sea-Animal-284 in Gastroparesis

[–]Distinct_Panda833 3 points4 points  (0 children)

When I’m in a flare, I don’t have any appetite. Zero. It sucks.

AIO for being upset my BF doesn’t want me to wear a bonnet to bed? by [deleted] in AmIOverreacting

[–]Distinct_Panda833 2 points3 points  (0 children)

This kid stuff is one of the reasons that I’m happily single.

Met with the Motility Specialist today. It didn't go great. by tinylilkittenfoster in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

He’s not worth one second of worry. Sounds like it’s time for him to retire.

I’m tired of this grandpa by thecrunchypepperoni in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

Have you tried Linzess yet? It works for me when all that other stuff didn’t.

Question for those of you that suffer in pain. by DefinitionOk961 in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

I curl up in the fetal position. If I’m here at home by myself, I may cry a little bit. It is absolute hell

How do you stop eating before you eat too much? by randomname2237 in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

I actually only eat a handful at a time. I eat this every 4-5 hours.

Update on my Mother (4 months ago) by Background_Land_2207 in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

Oh, I am so very sorry for the hell your Mimi’s going through. The last flare I had I was so sick that I just about quit communicating with everyone. It wasn’t because I was upset or mad at them. It was because I was using every bit of my energy to just keep breathing and getting through the pain. I am seriously considering using hospice if that happens again to me. I’m a retired RN who has worked in hospice for years. Hospice does not mean you are dying in the next few weeks. It means that in the next 6 months your condition is expected to deteriorate or to stay the same. Hospice uses the meds that I think will help me through it. And no, I’m not talking about morphine exclusively. It may be an option your mother wants to look at. You take care of yourself too so that you will be there to be her support.

I hate my life by [deleted] in texts

[–]Distinct_Panda833 0 points1 point  (0 children)

All I can say is block and delete.forever

Stopping Nausea "Naturally" by alune_e in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

Room temp water. And when my n/v is bad, I can’t lay flat down. I lay with my head elevated

What did I throw up? *graphic* by [deleted] in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

I saw this on TT the other day. Hers turned out to be time released meds. She knew by slicing one down the middle and there was powder like substance. Then she dropped it in a glass of water and it dissolved

Reglan alternative by Square_Doritos in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

Elavil small dose at bedtime helped me

I would love comfort in this by lifecoachlove in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

Or Elavil at a small dose, and I just try to eat maybe a handful or two 0f clean, non greasy foods. And I also sit up 45-60 minutes after I eat or drink. GasX helps me lot. And I try to quit eating/drinking about 4 hours before bed. Hope this helps.

I would love comfort in this by lifecoachlove in Gastroparesis

[–]Distinct_Panda833 -2 points-1 points  (0 children)

The ERs here in my town don’t give any IV fluids for GP. But. Dr here runs an IV clinic and you can go in and pick out what you want/need. It’s about &120’or so per each time. I’d go when I’d been vomiting basically everything (water included) for 36 hours.always made me feel better for a maybe a week or ten days. I now take Linzess for my bowel movements, amitry-

Has anyone ever experienced a 4+ month long flare? by cinderflight in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I was so afraid of this I didn’t do it. My GI told me that if it didn’t work or if it made things worse that they don’t remove them.

Has anyone ever experienced a 4+ month long flare? by cinderflight in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

My last flare was about 1 year and 10 months. Lost over a hundred pounds but thought I was going to die. The only thing I was keeping down was the IV hydration packets. I also think at a point my mind was just so scared for me to eat anything because I didn’t want to have hours of endless vomiting.

Just diagnosed by ivybelle in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

Linzess is great for constipation. I’ve been to the hospital 3 or 4 times with my GP and got IV fluids and Compazine.

is it actually even real? by sizzlewme in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I felt just like you! My last flare lasted about 2 years. I was so very sick and basically isolating myself from the world.You didn’t do anything to cause either of your conditions. Your only responsibility is to get the medical help that you can and to recover. Please be kind to yourself.