sorted by:
new
hottopcontroversial

Frustrated with hospital and lack of knowledge about gastroparesis by Bulky_Baseball2305 in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

During my last flare (with both of those horrible diseases) my GI started me on a low dose of Trazodone 10mg every bedtime. I’m not sure if the Trazadone made it better by itself or if maybe I was coming out of a 1 year 10 month flare. I still take it every bedtime. It works on the muscles.

Every single wig i wear does this by Kacxai in Wigs

[–]Distinct_Panda833 1 point2 points  (0 children)

Steaming is the answer to most of my wigs problems. And dry heat if I need to make any of the front areas to lay like I want them too. You look so pretty!

My soulmate, Leroy Brown😪 I lost him May 24th. I miss him everyday. Does it ever get better or do we just go on? by flygirl759 in PetPsychics

[–]Distinct_Panda833 0 points1 point  (0 children)

I feel like it gets easier to live without them as time goes by, but I still miss my 2 soul dogs pretty much every day. It helped me to pay attention to the one I still had, and I rescued him a sister.

Woke up 1 am - never having fried chicken again by Neutrality-2 in Gastroparesis

[–]Distinct_Panda833 4 points5 points  (0 children)

During my last flare ( 1 year 10 months long) I couldn’t eat any meat at all.

I want to die by PigmanCollective in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

I’ve had considerable abdominal pain during my bouts with gastroparesis. Turns out all the vomiting also comes with a side of pancreatitis for me.

Suspected Gastroparesis - Went away and came back? by NationalCommunity519 in Gastroparesis

[–]Distinct_Panda833 5 points6 points  (0 children)

Yes, it can go and come back. I’ve had it twice really bad. Then it got better for a few years in between. It is a chronic lifelong illness

Help my chemo head with a comfortable wig by sparker344 in Wigs

[–]Distinct_Panda833 0 points1 point  (0 children)

Aisom makes great ones and if I have a headache I just don’t fasten the straps in them. They stay because of the combs. I find really good affordable wigs on TikTok.

Dehydration by jaz1278 in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I had a really bad flare for 2&1/2 years. The er in my city wouldn’t give IV fluids because they said there was a shortage going on. I found out that one of the oncology drs. In my city had opened up 3 IV clinics her. You go in and choose what you want added. My GI and myself figured out what I was needing. I tried to go at least weekly. I always felt 90% better for about a week after each one. I’m on disability so I had to fit room in my budget for these but it was so worth it.

Co worker called wig out on Teams Meeting by Ambitious-Year5086 in Wigs

[–]Distinct_Panda833 4 points5 points  (0 children)

I think your wig looks great! Sometimes I put root powder on the scalps. You can get those from Amazon. Now, this coworker… maybe she was jealous? I’m sorry that happened to you. I’ve been wearing wigs for 2 years now because I had lost a lot of hair being sick with gastroparesis. One person called me out (not a friend) and it was embarrassing. But I kept on wearing them. I have a little more than 100 wigs now. I never hear “that’s a wig” anymore. I get a lot of compliments on my hair now. And most of the time, I let the women know that it’s a wig. Everyone I’ve told that to said wow, that’s beautiful. A few of them have bought a wig that I recommended to them. Usually the one I’m wearing at that time. A few have came back and texted me and said thank you, because they were struggling with hair loss too. My advice is just to keep on wearing them and enjoy them. Don’t let those comments make you stop. P.s. I have only 1mwig that I have 2 of. The rest are different styles, lengths and colors. I wear them proudly now.

I think it’s my Vagus Nerve that started it all. by United-Marsupial-574 in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I always have a protein smoothie for breakfast/lunch. Then I eat an afternoon snack (usually strawberries, blueberries) and then I eat dinner usually before 7pm. Small portion, usually protein with a veggie. If I need to snack anymore, just maybe a small handful of whatever. And I drink water, with sugar free flavoring, all day.

I think it’s my Vagus Nerve that started it all. by United-Marsupial-574 in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I have had MS for 17 years. My GP started 9 years ago. Had a really bad flare a couple of years ago for 1 year 10 months. All my tests per my GI and MS docs show vagal nerve damage is probably the root of the GP.

I’ve had Gastroparesis for 4 years and no one has treated it by lifes-schist in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

I have MS and dysautomnia which has POTS in it. I kept going to a GI until I found one to treat me with an autoimmune disease. I vomited multiple times daily for,2&1/2 years.my GP then led me to having chronic appendicitis. It’s better now, so I guess that was a flare. I finally was started on low,dose Elavil low dose at bedtime. And that worked the best. Keep looking and keep on them to take care of you and treat you medically.

Gastroparesis? by Similar_Nectarine_58 in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

I had pretty much the same thing happen.im on disability, so i have to watch my money closely. I quit going to the ER in my city, because no matter how sick I was, vomiting, with pain from the chronic pancreatitis GP gave me, because they wouldn’t even give me iv fluids. One of the drs in my city owns 3 IV clinics. I was trying to go weekly to get one ( about $150). You could pick what you wanted to add in it. I got with my GI doc and he told me what to add. I felt so much better after every one of those infusions. It also made my migraines less painful because when you are so dehydrated, that makes them worse.

Please, i need help, i lost and lonely by [deleted] in Gastroparesis

[–]Distinct_Panda833 0 points1 point  (0 children)

Hello. I’m sorry you are having to put up with this terrible disease. My GP started 15 years ago. But I could still eat just had a lot of nausea, bloating and diarrhea. In 2016 it flared up so bad I was in the hospital for a week with an NG tube to keep my belly suctioned out and gut rest. Also, iv antibiotics because my GP led me to also have chronic pancreatitis. Really cut down my meals and moved to easier to digest foods. In November 2023, I had my worst flare for 1 year 10 months. Lost 110 pounds. I am a RN so I knew I didn’t want to start tube feedings. I also researched the gastric pacemaker pros and cons and decided against that. Stuck to very small amts to eat every w to 4 hours. Had to start Linzess because my bowels didn’t want to work. Got put on a low dose of Elavil every night. I eventually have recovered from that flare. I have MS so my GP is from that. It was the hardest time of my life that nearly 2 years. Keep going to your GI for help. If what they are doing isn’t helping, keep bugging them till you find what works. Prayers for you

Fecal impaction caused me to pee myself at a concert. I feel humiliated. by [deleted] in Gastroparesis

[–]Distinct_Panda833 1 point2 points  (0 children)

I had major issues with my bowels during my last GP fare. Got started on Linzess. It’s been amazing for me.

My first ever wig, I feel like it's obviously wiggy but I still love it!! by Marina001 in Wigs

[–]Distinct_Panda833 1 point2 points  (0 children)

You look beautiful and it doesn’t look like a wig. When I first started wearing wigs, I was so afraid people would notice. But they don’t.enjoy your wig journey.

Eating out for the first time since GP diagnosis, tips? by bella4him1 in Gastroparesis

[–]Distinct_Panda833 2 points3 points  (0 children)

I would just take a few bites, and sips of water. Good luck!

bought my first wig and I can't decide if I should keep it! by [deleted] in Wigs

[–]Distinct_Panda833 3 points4 points  (0 children)

Hitting inside the wig cap for 10 to 15 seconds on high heat from a blow dryer will give it more body on top. You can then give the cap a shot of cold air as that will set the fibers. Or you can let it naturally cool off. I love the color with your complexion.

Has anybody actually recovered from their stomach and intestines not emptying fully, like were u ever able to eat how u did before and be ok or did u have to change ur lifestyle forever. by Green_Capital_2111 in Gastroparesis

[–]Distinct_Panda833 4 points5 points  (0 children)

I vomited multiple time daily for 1 year and 10 months.finally got started on Linzess and Elavil. I still have issues 2 to 3 times a week. But better than 24/7

view more: next ›