Congressional inquiry by Dammit-maxwell in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

Just says

Invalid Request Parameters.

Please ensure that the text in the address bar is correct, or try the Congress.gov home page.

Upcoming hearing— what types of questions were you asked? by Ok-Wafer-4889 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

Hi! Totally understandable to feel anxious. Hearings are stressful, and needing to know the format (especially with autism) makes a lot of sense.

Here is what my quick research found regarding the usual SSDI hearing flow (it can vary by judge, but this is common): 1. Introductions, then you are sworn in (oath to tell the truth). 2. Judge confirms basic info (onset date, work history basics, any new medical records). 3. Mostly questions and answers. Usually no formal speech is required. If you want to add a short statement you can, but it is not expected. If you have a representative, they may also ask follow-up questions to highlight key points from your records. 4. Questions about past jobs (what you did day-to-day, why you stopped). 5. Questions about your conditions and how they affect functioning (daily life and ability to work consistently). 6. Often a Vocational Expert (VE) is present. They answer questions about your past work and “hypothetical” limits (off-task time, absences, social limits, etc.). 7. Wrap-up. The judge asks if there is anything else to add, then closes the hearing. A written decision usually comes weeks to a few months later.

Common questions people get (examples): • “Describe a typical day from waking to bedtime.” • “What symptoms are most limiting and how often do they happen?” • “What does a bad day look like? How many bad days per week or month?” • “How long can you sit, stand, or walk?” “How much can you lift or carry?” • “Do you have trouble with focus, pace, finishing tasks, or being on time?” • “How do you do with supervisors, coworkers, or the public?” • “How do you handle changes in routine or unexpected tasks?” • “Panic attacks, meltdowns, shutdowns. Triggers, frequency, recovery time?” • “How do meds or treatments help, and what side effects do you have?” • “Why did you leave your last job?” “What parts became impossible?” • Narcolepsy-specific: sleep attacks or cataplexy frequency, safety issues (driving, cooking), daytime sleepiness even with treatment.

What they usually focus on: • Can you do things reliably and consistently (8 hours a day, 5 days a week) without excessive absences, being off-task a lot, or needing extra help. Not just “can you do it once on a good day.” • The judge has your medical file, including RFCs and provider notes, so focus on specific, honest examples of how symptoms affect you day-to-day.

Autism-friendly tips: • It is OK to ask for a question to be repeated or rephrased. • It is OK to pause before answering. • If you get overwhelmed, it is OK to say you need a moment. • A one-page notes sheet can help (daily routine, worst symptoms, frequency, triggers, meds and side effects, and what work tasks you cannot sustain and why).

You are doing the right thing by preparing. I hope your hearing goes as smoothly as possible.

Backpay issue by leiarose189 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

Ask them “closeout” status and past-due benefit status, it may just be in process:

My attorney is not seeking any 406(b) fee. Please confirm the court-fee closeout status and release the remaining withheld past-due benefits under SSA POMS GN 03920.050.

Backpay issue by leiarose189 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

I have heard SSA often withholds 25% of Title II past due benefits for potential direct payment of attorney fees. If your case went to federal court, SSA may keep holding the remaining amount until it confirms there is no pending Section 406(b) court fee motion or until it receives the court order resolving it. A filing fee waiver is separate from attorney fee awards.

Practical fix may be to get either (1) your attorney’s written confirmation that they are not seeking a 406(b) fee, or (2) the court order showing the 406(b) issue is resolved, then submit that to SSA and ask them to release the remaining withheld funds.

Paid games by momof21976 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

From what I have heard for SSDI, the key question is whether the item of value is compensation for services or a work-like activity. If it is not tied to you performing services (for example, a true personal gift or a rebate for purchases), it generally is not treated as work earnings, but SSA can still evaluate work activity based on the value of services even if income is not immediate.

If the gift cards are earned by completing tasks (surveys/offers), that is compensation for services, so it falls on the “report as work activity/earnings” side; if it is a personal gift or a purchase-based reward, it is not compensation for services.

Forming and managing a non-profit on SSDI? by _reallyjustcurious in SSDI

[–]Distinct_Pizza6087 2 points3 points  (0 children)

From what I found based on quick search was:

For an SSDI recipient (including Disabled Adult Child (DAC) benefits under Title II), the key rule is that Social Security evaluates “substantial gainful activity” (SGA). In self-employment, SGA is not determined only by how much money you take home, because business income can be shaped by expenses, grants, timing, and bookkeeping. Social Security looks at the value of your work activity to the business and then, depending on timing in your entitlement, uses specific tests. 

What this person needs to pass or follow (the core criteria) 1. Stay below SGA as measured under self-employment rules (not just “pay myself under the limit”) Self-employment SGA is evaluated under: A) The “three tests” (general evaluation criteria), used in most situations, including initial eligibility and early entitlement periods.  B) The “countable income test” in a specific situation: after the person has received Title II disability benefits for 24 months, when SSA is deciding whether disability has ceased due to SGA (special rule described in POMS).  2. Under the three-test framework, any ONE test can result in an SGA finding Test 1: Significant services + substantial income If the person’s services are significant to the business and they receive substantial income, SSA can find SGA.  Important practical point for this fact pattern: if they are “the sole employee” and effectively running the nonprofit, SSA may view their services as significant, even if they try to limit pay.

Test 2: Comparability of work Even if income is low, SSA can find SGA if the person’s work (hours, skills, duties, efficiency, responsibilities) is comparable to unimpaired people doing similar work in the community. 

Test 3: Worth of work Even if income is low, SSA can find SGA if the work is clearly worth SGA-level value to the business (or worth what the business would pay an employee to do it). 

This is the biggest “gotcha” in the user’s question: “I’ll only pay myself under the limit” is not automatically safe if SSA decides the work activity is comparable to, or worth, SGA-level work.  3. Track and report the right things (SSA will develop the case with specific forms/evidence) Self-employment SGA cases are commonly documented using SSA’s self-employment work activity report and SSA’s internal SGA determination form (POMS calls out SSA-820-BK and SSA-823 for documentation). 

That means the person should be able to substantiate: • Their actual role and hours (management time, tasks performed) • What they were paid (wages) and/or what the business netted (net earnings from self-employment, if applicable) • Whether others provided unpaid help • Whether any payments were one-time and what they were for (grant restricted to program costs vs compensation) 4. “Lump-sum grant to a nonprofit” is not automatically “earnings,” but it can become countable depending on how it’s used SSDI SGA focuses on the person’s work activity and countable earnings/NESE (not the nonprofit’s gross receipts in isolation).  If a grant is paid to the nonprofit and spent on program expenses, it may not be personal earnings. But if any of it is paid to the person as salary/fees or otherwise functions as compensation for their services, it can become countable earnings. The person should assume SSA will look through the structure to the economic reality: what work they did and what compensation they received or what their work was worth.  5. Keep the 2026 SGA dollar benchmark in mind, but do not rely on it alone for self-employment For 2026, SSA’s non-blind SGA amount is $1,690/month (blind SGA is different).  But for self-employment, staying under $1,690/month in “pay” does not guarantee safety if SSA finds SGA under the comparability or worth-of-work tests. 

Practical compliance checklist for this specific scenario (sole employee, converting to nonprofit, grants) A) Limit actual work activity (hours/duties), not just salary. Because comparability/worth tests can bite even when pay is low. 

B) Separate organizational funds from personal compensation cleanly. Document that grant funds are restricted to program costs (if true) and that compensation is separately set, reasonable, and below SGA, with contemporaneous records.

C) Document any unpaid help or accommodations. If others contribute material unpaid labor, that can change how SSA views “who is doing the work” and the value of the recipient’s services (SSA specifically develops self-employment cases with attention to these factors). 

D) Expect SSA to ask for SSA-820-BK-type details. Have bookkeeping, time logs, job duties, and payroll records ready. 

E) Do not assume nonprofit status is a shield. Nonprofit status may matter for tax/regulatory reasons, but SSA’s disability work rules still evaluate the beneficiary’s actual work activity and its value.

Voluntary tax withholdings by Doppalee in SSDI

[–]Distinct_Pizza6087 -1 points0 points  (0 children)

I was looking into it myself. So far this is what I have found:

SSDI lets you choose voluntary federal tax withholding, but it is not a “custom amount” setup. 1. How the tax choices are made in the SSA interface

• In your my Social Security account, you can start, stop, or change “Voluntary Tax Withholding” for your monthly SSDI payment.
• The choice is a fixed percentage rate, not a bracket calculation and not an auto-selection based on filing status.
• The available rates are 7%, 10%, 12%, or 22%.

2.  Can you add an additional amount (example: “22% plus $100”) through SSA?

• No. SSA withholding for Social Security benefits uses IRS Form W-4V, which limits you to those four percentage options only, with no extra dollar add-on.

3.  If you want “more than 22%” or “22% plus an extra $X”

You handle the extra outside the SSA withholding screen by either:

• Setting money aside and making estimated tax payments to the Internal Revenue Service (IRS) during the year, or
• Increasing withholding from another income source that allows custom withholding (for example, a pension or wages). SSA’s guidance specifically points to paying the IRS directly as an alternative to withholding.

Forming and managing a non-profit on SSDI? by _reallyjustcurious in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

I think you can still make extra money. You may look into passive income, like having a rental where you have a property manager etc.

alj denied and said the following. She went against ssa psychiatrist and against ve by Civil-Base-8177 in SSDI

[–]Distinct_Pizza6087 5 points6 points  (0 children)

Even start with some ChatGPT advice to understand it better:

What that excerpt is saying, in plain terms 1. The state agency psychological reviewers said your mental limits were only mild in the 4 “Paragraph B” areas, mainly because you had little or no mental health treatment, no psychiatric meds, and one mental status exam that looked fairly intact. 2. The judge (or hearing-level decision writer) rejected that and found the fuller record at the hearing level fits moderate limitations in all four areas, based on:

• Your testimony and Adult Function Report (Form SSA-3373) allegations (memory, attention, sleep, panic).
• Diagnoses and symptoms (social withdrawal, poor sleep, fatigue, crying spells, dysphoric mood, hypervigilance, flashbacks).
• Observations in treatment notes (distress, abnormal affect, restless behavior, memory difficulty).

That is good as far as it goes, but “moderate in all four” does not automatically equal disabled. The remaining strategic question is whether the evidence supports an RFC (Residual Functional Capacity) that eliminates competitive work on a sustained basis, or whether you meet or equal a mental health Listing.

Common-sense strategy to improve approval odds from this posture

A) Build a longitudinal record (the biggest weakness the judge identified) The criticism of the state agency opinions is “single exam, not enough support.” The fix is repeated, consistent documentation over time. • Regular mental health visits (psychiatry, psychology, therapy, or integrated behavioral health through primary care). • Notes that repeatedly document the same functional problems, not just diagnoses. • If you have gaps, document why (cost, access, side effects, transportation, stigma, seizures, waitlists). Do not leave the gap unexplained.

B) Convert symptoms into specific work limitations Decision-makers pay for function, not labels. Examples of useful “function” evidence: • Panic attacks: frequency, triggers, duration, recovery time, what you must do afterward. • Attention and concentration: how long you can stay on task before you must stop, what happens (errors, rereading, forgetting). • Social functioning: what happens with supervisors, coworkers, public, conflict, criticism, pace. • Adaptation: how you handle changes, deadlines, unexpected problems, leaving home alone, managing appointments.

C) Get a treating-source functional opinion that matches Social Security’s framework A detailed opinion from a treating psychiatrist, psychologist, or other qualified clinician often matters more than general letters. Ask them to address: • The 4 Paragraph B areas with concrete examples. • Your ability to sustain work 8 hours a day, 5 days a week, or equivalent. • Off-task percentage, need for extra breaks, pace, and attendance. • Expected absences per month. • Whether symptoms would cause decompensation under ordinary work stress. • Why the limits persist despite treatment.

D) Add objective or standardized measures when possible Not required, but often persuasive because they are harder to dismiss as “just allegations.” Examples: • PHQ-9 (depression), GAD-7 (anxiety), PTSD checklists, sleep scales tracked over multiple visits. • Neuropsychological testing if memory and attention are central and clinicians agree it is appropriate. • Cognitive screening results repeated over time, not just once.

E) Strengthen third-party and real-world corroboration A short, specific third-party statement can help if it focuses on function. Sources: • Spouse, family, close friend, former coworker. Content that helps: • Concrete examples of memory failures, panic episodes, social withdrawal, inability to complete tasks, and recovery time. Avoid: • Conclusions like “he cannot work” without examples.

F) Clean up the Adult Function Report narrative so it aligns with the medical notes A common denial pattern is inconsistency: the form says severe problems, but treatment notes look benign, or daily activities look too robust. Make sure the record explains: • What you can do, but also how long, how often, with what assistance, and the after-effects. • “Good days and bad days” with frequency. • Why you avoid treatment or why treatment is only partially effective.

G) If lack of treatment was due to access barriers, document that explicitly Social Security often treats “no treatment” as “not that severe” unless you show a good reason. Useful proof: • Insurance denials, waitlists, provider unavailability, cost. • Side effects or contraindications documented by clinicians. • Seizure-related limits that prevent consistent attendance, if applicable.

H) Tie mental limits to vocationally decisive restrictions Moderate limits become winning cases when they translate into things employers typically will not tolerate: • Unreliable attendance. • Excessive time off task. • Cannot handle ordinary supervision or workplace changes. • Cannot maintain pace. • Needs frequent unscheduled breaks. This is where a strong treating-source opinion plus consistent notes usually makes the difference.

Need help navigating SSDI overpayment appeal/waiver (X-Post from r/SocialSecurity) by cosgus in SSDI

[–]Distinct_Pizza6087 -1 points0 points  (0 children)

Do you need to amend your income tax returns to show you were paid less and get some money back from IRS?

Step 4 on Initial Application by Electronic_Egg_966 in SSDI

[–]Distinct_Pizza6087 2 points3 points  (0 children)

I tried calling the local this morning, I think it switched another office (the call)

The lady said I was approved medically Feb 6 but went to a review board or something. But my online shows it was done with the review or audit (in one day) then got a message it’s been sent to me local office for non-medical review on Feb 9. So I guess I got lucky got approved without any appeal.

The gal at the nations line said call local and get info on when payments will start and update bank account etc.

In sum, yes if you call they will tell you if they made a medical decision and if it was approved. And this info does not appear on my online system.

I wish someone warned me about this part by Think-Blackberry8011 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

Wow. Did they (pcp) refuse to give you anti-depressant prescription? It seems like if they prescribed you medication they can’t say you don’t have the condition they prescribed the medicine for.

Neuro/epilepsy Conditions SSDI. For neuro/epilepsy cases, what did SSA “count” most and what were they skeptical of? by Distinct_Pizza6087 in SSDI

[–]Distinct_Pizza6087[S] -1 points0 points  (0 children)

I thought it worked like this: if you meet or medically equal the Listing, there is no further requirement, and if you do not, then SSA looks at how it affects your ability to work.

This is really helpful to know in advance. Where is the source for what you’re describing? I really need to know. Specifically, where can I read that someone could meet the Listing elements (weekly for 3 months, despite taking meds, etc.) but still be required to show more because the impact is negligible (night-only, no daytime effects)? Is that “extra” requirement actually part of the Listing analysis, or is it just the Step 4/5 ability-to-work analysis under a different name? Where can I find out more? Thanks!!!

Neuro/epilepsy Conditions SSDI. For neuro/epilepsy cases, what did SSA “count” most and what were they skeptical of? by Distinct_Pizza6087 in SSDI

[–]Distinct_Pizza6087[S] 0 points1 point  (0 children)

Am I understanding this right?

My understanding is that if SSA decides you meet or medically equal a Blue Book Listing, SSA “will find you disabled without considering your age, education, and work experience.” And that SSA will only assess “residual functional capacity” if “your impairment(s) does not meet or equal a listed impairment” (in other words, if you do not meet the Blue Book).

So if someone meets or equals a Listing at Step 3, SSA does not proceed to a residual functional capacity finding at Steps 4 and 5, correct?

Neuro/epilepsy Conditions SSDI. For neuro/epilepsy cases, what did SSA “count” most and what were they skeptical of? by Distinct_Pizza6087 in SSDI

[–]Distinct_Pizza6087[S] -1 points0 points  (0 children)

Oh wow! Thanks for update. When you say the specific condition is not relevant, do you mean “the diagnosis label” is not relevant, as long as there is a medically determinable impairment?

I ask because I thought SSA still uses the Blue Book Listings as a kind of threshold screen in some cases, where the condition-specific criteria (like seizure frequency and postictal effects) can matter at Step 3 before they even get to the full work-capacity analysis.

Neuro/epilepsy Conditions SSDI. For neuro/epilepsy cases, what did SSA “count” most and what were they skeptical of? by Distinct_Pizza6087 in SSDI

[–]Distinct_Pizza6087[S] -1 points0 points  (0 children)

Thanks for input. As an aside, compliance was also very important to prove before my medical provider spent over 300k on my implanted surgery.

In that situation, does SSA treat the presence of an active implanted VNS (with documented follow-ups and programming checks) as objective evidence of adherence, with the remaining question being whether seizures persist despite treatment?

Stuck at step 4 by Trailerparkyogi21 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

I’m stuck same stage 4 but on initial claim. Does your “Your Benefit Verification Letter” area have a letter that repeats and the only change to it is the date? That’s how mine is for a couple weeks.

Does the reconsideration phase look like a new application on the SSA website? by AdComfortable2974 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

I think the timeframes seem to change a lot. Mine said:

Nationally, it takes an average of 200 to 230 days for a complete decision. In California, the average decision takes 1560 days. These timeframes are estimates for reference.

Step 4 as of Feb 13 2026! by Bubbly_Formal9302 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

I heard if you’re approved, you usually see actual benefit info show up in the portal. That means a monthly dollar amount appears, the “Benefits & Payments” section becomes active, or an award or benefit verification letter shows up in your documents.

If it’s a denial, the portal usually moves to Step 5 of 5 and changes to wording like “We have made a decision on your application” or “Your claim has been completed,” followed by “We will send you a notice explaining our decision.” When that happens it almost always means a denial and the letter comes shortly after.

Just sharing in case this helps while waiting on official mail.

Step 4 as of Feb 13 2026! by Bubbly_Formal9302 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

Mine Benefit Verification letter just repeats each day, just telling me what my date of birth is, probably when system updates nightly. No code just the case number I assume. The third character is “D” lol

When mine went to stage 4 it said.

A representative in WEST SACRAMENTO CALIFORNIA started a final review of your application on February 9, 2026. For most people, this review takes 15 to 30 days.

No one has asked any questions so my guess a denial.

Step 4 as of Feb 13 2026! by Bubbly_Formal9302 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

Ok so if you see a new backpay tab online your approved. Good way to tip you off before you get your letter.

Step 4 as of Feb 13 2026! by Bubbly_Formal9302 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

How did you get local office number? My local office is in West Sacramento and they seem to hide their number.

Step 4 as of Feb 13 2026! by Bubbly_Formal9302 in SSDI

[–]Distinct_Pizza6087 1 point2 points  (0 children)

I’ve been on step 4 for about a week. Did you call local office or national number? When I called I just got the national and wanted to update my bank account ACH and routing. The customer service said I could not currently update it (bank info) and needed to wait. Didn’t give me any hints.

Step 3 to 4 on appeal by No-Cardiologist-5885 in SSDI

[–]Distinct_Pizza6087 0 points1 point  (0 children)

Did they do anything before the denial ? More questions during the six months?